Friday, March 14, 2014

Join Us at the Zoo!

The New York City Hemophilia Chapter invites you to join us for a day of food, friends and fun at our Spring Event at the beautiful Bronx Zoo on Sunday, April 6, 2014 at 11:30 am. The event ticket includes admission to the zoo, a BBQ buffet lunch with hamburgers, hot dogs and other treats, a wide range of rides and attractions, and more.

There is no charge for this event - it's free!. However, participation is limited to people with bleeding disorders and members of their immediate family.

Please reserve your tickets by Wednesday, March 25th.


If you have questions or need more information, please contact Jeri Krassner at jeri.krassner@nyhemophilia.org or at (917) 597-7256.

TRIVIA QUESTION: Which of the animal(s) above and on our postcard were NOT at the zoo last year? Answer correctly when you register for a chance to win a prize!

Thursday, February 20, 2014

The NYC Hemophilia Walk is On!



NYCHC is Calling All Team Captains, Walkers, Sponsors and Anyone Who Wants to Help Make the 2014 Hemophilia Walk Even Better Than Last Year!


If you have questions or need more information, please contact Jeri Krassner at jeri.krassner@nyhemophilia.org or at (212) 382-2974.  
We look forward to seeing you at Bareburger on March 9 and in Riverside Park in June.

Saturday, February 1, 2014

Super Surprises for NYCHC's own Patsakos Family



Earlier this week we shared news stories about how New York City Hemophilia Chapter's own Seth Patsakos received an autographed football from his beloved Denver Broncos at the family's home in Staten Island. The Patsakos have been honored for their work with the Chapter and Seth's dad Bill is the co-chair of our Dads in Action group. Now there's more good news for the family as a generous New Yorker who saw the original story on the news has come forward with a pair of Super Bowl tickets for Seth and Bill. Clips of some of the television coverage of these stories appear on NYCHC's Facebook page at https://www.facebook.com/NYCHemophiliaChapter.

Wednesday, January 22, 2014

Come with Us to Washington!

Washington Days, the National Hemophilia Foundation's annual grassroots advocacy event, will take place from Wednesday, February 26 until Friday, February 28, 2014 at the Crystal Gateway Marriott in Arlington, VA. This is your opportunity to join others from the bleeding disorders community in Washington, DC, to tell elected officials in Congress about the issues that affect you and your family.
The Washington Days program will begin with a first-time attendee workshop on Wednesday afternoon. Our interactive review of the fact sheets and talking points for all participants will take place Wednesday evening and will be followed by a Welcome Reception. On Thursday we hit the Hill for a full day of face-to-face meetings with members of Congress and their staff. Dinner on Thursday will again be dedicated to celebrating the advocacy efforts of our volunteers in their local communities. We close on Friday after the State Advocacy Workshop, a training program that explores state-specific issues and improves our effectiveness on the state level. It's important that we send a strong group from across the Greater New York City area to make sure our voices are heard!




Limited funds are available through NYCHC to cover a portion of the hotel and transportation expenses for community members who want to participate. If you would like to request this assistance, please send an email to glenn.mones@nyhemophilia.org.