Tuesday, December 1, 2015

World AIDS Day 2015

Photo Credit:  Jeanne White-Ginder

Today is World AIDS Day, a time to remember those we lost, how far we've come, and how far we have yet to go. In the 1980s, people with hemophilia received tainted blood and blood products. Ultimately, thousands were infected and many died. We remember so that we can help make sure it never happens again.
In honor of the day, we are sharing this video of Jeanne White-Ginder being interviewed last year on the 25th anniversary of her son Ryan's passing.

Loss of NYCHC Member, Melissa Lawrence Dawkins-Doumbia

The Board and staff of NYCHC are deeply saddened by the death of our member Melissa Lawrence Dawkins-Doumbia, of New Haven, CT on November 23. Melissa and her family attended a variety of community events where she found support and friendship.
At this time of great tragedy and need, a family friend has set up a fund to provide support for Melissa's three children, Makayla (14), Aiden (6), and Paulie (2). You can learn more about the fund and contribute at: 
Today is Giving Tuesday. We ask our members and supporters to consider remembering Melissa by making a contribution to this fund.

For more information about Melissa and her family, please visit:

Wednesday, November 25, 2015

Giving Tuesday is Coming!

Giving Tuesday is Coming!
We have a day for giving thanks. We have two for getting deals. Now, we have #GivingTuesday, a global day dedicated to giving back. On Tuesday, December 1, 2015, nonprofits, families, businesses, community centers, and students around the world are coming together for one common purpose: to celebrate generosity and to give.
It’s a simple idea. Just find a way for your family, your community, your company or your friends to come together to give something more. Then tell everyone you can about how you decided to give. Join us and be a part of a global celebration of a new tradition of generosity.
This is an opportunity to give much needed funds, volunteer hours, or both to the causes dearest to your heart. Of course, all of us at New York City Hemophilia Chapter hope you will remember our efforts on behalf of families affected by bleeding disorders. But whatever causes you choose to support, we hope you will help us spread the word to the entire community about the importance of giving.
If you'd like to support our efforts, you can make a secure online contribution or find out about opportunities for volunteering by clicking on the appropriate link on our
"YOU CAN HELP" page.
Thank you for celebrating Giving Tuesday with us, and for supporting this community all year long!

Saturday, November 21, 2015

2015 NYCHC Gala Wrap Up

We would like to take this opportunity to thank all of the guests and sponsors who attended our 2015 Gala this evening.  With nearly 200 guests in attendance, this was our largest Gala to date!  

We were honored to recognize several outstanding members of our community with awards for the work they've done in the community.  This year's honorees were:

The Giannola Family received the 2015 Award of Distinction.  

Ramona Shih was awarded the Susan Galligan Volunteer of the Year Award.

Our special guest speakers were Max and Eli Schoenfeld.  Max and Eli are 8 year old twins, who both have Severe Hemophilia B.  They did a wonderful job tag teaming with one another telling our guests what they like and don't like about living with hemophilia.  Turns out they absolutely love our annual hemophilia walk! 

Twins Max and Eli Schoenfeld pictured here with the NYCHC Staff and Board of Directors

We'd like to give a very special thank you to the 2015 NYCHC Gala Committee and NYCHC Staff for their hard work in planning and executing this wonderful event!  Your hard work is appreciated by all!

2015 NYCHC Gala Committee

Bradley Schoenfeld, Co-Chair
Matt Porges, Co-Chair
Lisette Dapena
MIchael Gemelli
Tina Gemelli
Grant Hiura
Jerry McMillan
Ilana Deutsch Robinson
Aliana Soto
Eleni Voyages


Glenn Mones, Executive Director
Jeri Krassner, Manager
Ryan Seeley, Communications and Social Media

We posted photos throughout the evening and there will be more pics posted soon.  Our Twitter and Instagram accounts (Find us on Instagram under nychemophilia and on Twitter under @nychemophilia) each have multiple posts related to tonight's event.  A complete photo album of pics is posted on our Facebook page.  To view this album, click on the following: