Tuesday, June 3, 2014

An Incredible Day at the NYC Hemophilia Walk in Riverside Park!

A large, enthusiastic crowd, incredible weather, awesome food and entertainment, and an unbelievable team of volunteers all contributed to making Sunday's New York City Hemophilia Walk the BEST WALK EVER! Thank you to EVERYONE for helping to make it such a great success!

With your help, we raised over $235,000, but we're still about $15,000 short of our goal. Please reach out to people you know one more time and help us close the gap! Ask them to donate to you or your team, or send them to the Walk page at bit.ly/nycwalk14.

Pictures from the Walk will be coming soon. In the meantime, Patrick Lynch, Ryan Gielen and the "Stop the Bleeding!" team made a fantastic video with highlights of their experiences at the Walk. You can view it here ( and don't forget to share):

Thursday, February 20, 2014

The NYC Hemophilia Walk is On!

NYCHC is Calling All Team Captains, Walkers, Sponsors and Anyone Who Wants to Help Make the 2014 Hemophilia Walk Even Better Than Last Year!

If you have questions or need more information, please contact Jeri Krassner at jeri.krassner@nyhemophilia.org or at (212) 382-2974.  
We look forward to seeing you at Bareburger on March 9 and in Riverside Park in June.

Saturday, February 1, 2014

Super Surprises for NYCHC's own Patsakos Family

Earlier this week we shared news stories about how New York City Hemophilia Chapter's own Seth Patsakos received an autographed football from his beloved Denver Broncos at the family's home in Staten Island. The Patsakos have been honored for their work with the Chapter and Seth's dad Bill is the co-chair of our Dads in Action group. Now there's more good news for the family as a generous New Yorker who saw the original story on the news has come forward with a pair of Super Bowl tickets for Seth and Bill. Clips of some of the television coverage of these stories appear on NYCHC's Facebook page at https://www.facebook.com/NYCHemophiliaChapter.

Wednesday, January 22, 2014

Come with Us to Washington!

Washington Days, the National Hemophilia Foundation's annual grassroots advocacy event, will take place from Wednesday, February 26 until Friday, February 28, 2014 at the Crystal Gateway Marriott in Arlington, VA. This is your opportunity to join others from the bleeding disorders community in Washington, DC, to tell elected officials in Congress about the issues that affect you and your family.
The Washington Days program will begin with a first-time attendee workshop on Wednesday afternoon. Our interactive review of the fact sheets and talking points for all participants will take place Wednesday evening and will be followed by a Welcome Reception. On Thursday we hit the Hill for a full day of face-to-face meetings with members of Congress and their staff. Dinner on Thursday will again be dedicated to celebrating the advocacy efforts of our volunteers in their local communities. We close on Friday after the State Advocacy Workshop, a training program that explores state-specific issues and improves our effectiveness on the state level. It's important that we send a strong group from across the Greater New York City area to make sure our voices are heard!

Limited funds are available through NYCHC to cover a portion of the hotel and transportation expenses for community members who want to participate. If you would like to request this assistance, please send an email to glenn.mones@nyhemophilia.org.