Sunday, May 24, 2015

In The Home Stretch!

One week from today, we will be hosting our 10th annual hemophilia walk.  We are so proud of everyone that has raised money thus far.  So far, we've raised nearly 70% of our goal.  We still have a ways to go to meet or exceed our goal of $300,000.  Not registered or on a team yet?  It's not too late!  Already have a team?  Use these ideas to increase your teams fundraising goals.

Let's talk about how you can raise $500.00 in just 7 days.  Here's some great ideas from the National Hemophilia Foundation (NHF):

  • Sponsor yourself first:  $50.00
  • Ask 4 family members to sponsor you for $25.00 each:  $100.00
  • Ask 5 co-workers to contribute $15.00 each:  $75.00
  • Ask 5 friends to contribute $15.00 each:  $75.00
  • Ask 5 neighbors to sponsor you for $15.00 each:  $75.00
  • Ask your boss for a company contribution of $50.00:  $50.00
  • Ask 3 businesses you frequent for a donation of $25.00 each:  $75.00
Who should you ask to contribute?  Here's some ideas:

  • Mother, Father, Brother, Sister, Cousins, Uncle, Aunt
  • Doctor, Dentist, Pharmacist, Pediatrician
  • Landlord, Roommates, Neighbors
  • Co-Workers, Boss
  • Attorney, Accountant, Teachers, Banker
  • Hairstylist, Manicurist, Grocer, Baker, Coach, Dry Cleaner
  • Repairman, Doorman
  • Best friend, Friends
In addition to raising funds, we have set a goal of having 2,000 or more participants attend our tenth walk.  This is a great opportunity to pay it forward, meet the wonderful people connected to the bleeding disorders and have a great afternoon of fun!  The best part?  You don't have to have a bleeding disorder to participate!

Our 10th Hemophilia Walk - It's Not Too Late To Get Involved!

Our 10th annual hemophilia walk is just a week away!  It's not too late to participate, get involved and raise funds to help our community!  Here's several ways that you can help in the coming week:

  • Call Your Friends/Family:  When was the last time you actually called someone on the phone to talk instead of texting or instant messaging?  Now is the perfect time to give friends and family a call and talk about our walk and ask for their participation (attending the walk) and/or donating to the cause!
  • Email: We know all of us receive a ton of email daily and it can be difficult to keep up with it all.  Take this opportunity to email friends individually to talk about the walk and ask for their participation (attending the walk) and/or donating to the cause.  We find it's best to email people individually as they're more likely to respond to something that isn't a mass email sent out to many individuals.
  • Social Media: Over the past 5 years, social media has exploded and many, many people use it regularly to connect with friends, family, loved ones, co-workers etc.  Use Facebook, Twitter, Instagram etc. to share our posts with information about the walk or write your own posts and include the link to our walk website (See link at bottom of this post) 
Not only are we trying to meet and exceed our fundraising goal of $300,000, we want to have at least 2,000 participants at our tenth annual hemophilia walk!  You don't have to have a bleeding disorder to participate!  Please join us next Sunday, 5/31/15 and meet the wonderful members of our NYC bleeding disorders community! 

We encourage you to pre-register so that we can make sure we are ready for all participants.

#hemophilia #vWD #bleedingdisorders #hemophiliawalk #hemowalk2015

Thursday, May 21, 2015

Our Tenth New York City Hemophilia Walk Is Almost Here!

Our Tenth New York City Hemophilia Walk will take place on Sunday, May 31 in Riverside Park. For all of our amazing teams who are working so hard, we thank you! We are more than half way to goal but time is short - so please keep asking everyone you know. 

We can't get there without you!

Ten years ago, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together we could make a difference for ourselves and our children. In ten years, with your help, we've made great strides in our efforts towards education, advocacy, and research leading to better treatments and a cure!
For those who haven't signed up yet, it's not too late!  Please support the team of your choice -
or just sign up on your own.
Use the link below and please share it with anyone who needs it!


We want a record turnout on May 31. Please make sure that everyone you know registers so we can have enough rainbow bagels for everyone! We have great entertainment and fun surprises in store!

If you have any questions, please contact us at, or call (212) 382-2974. We're so delighted to have you with us, and we look forward to seeing you at the Walk!



Melissa Penn
President and Walk Co-Chair


Bill Patsakos
Walk Co-Chair


Glenn Mones
Executive Director


Jeri Krassner
Walk Manager

Friday, May 15, 2015

Christopher's Crew Comes Through!

The Long Island Herald recently published an article to help raise awareness about bleeding disorders. Fourth and fifth-graders in Long Island hosted a lacrosse game in honor of their classmate, Christopher who has severe ‪hemophilia‬. Christopher and his family are active advocates and members of our chapter and very involved in our community.  All funds raised at the game are being donated to the New York City Hemophilia Chapter (NYCHC).  Huge thanks to the Ambrosio family! Go Christopher's Crew!  Great job!  Click on the link below to read the story:

Photo Credit:

#hemophilia #vWD #bleedingdisorders #hemophiliawalk #hemowalk2015