Friday, September 5, 2014

We hope everyone had a wonderful summer and is enjoying the start of fall.

This time always brings up a variety of issues for any family with children. Families affected by bleeding disorders face particular issues ranging from how to communicate key information to teachers and other members of a school’s staff, to creating an IEP or 504 plan, and many more. Our national organizations have some great resources and information you may want to check out.

The Hemophilia Federation of America (HFA) has a “Back to School Toolkit” with a very wide variety of resources. CLICK HERE TO VIEW IT

The National Hemophilia Foundation (NHF) also has some excellent resources on its “Steps for Living” website.CLICK HERE TO VIEW THEM

Whether you are dealing with back to school issues, back to work issues, insurance issues, or anything else, NYCHC is here to help.  Watch for details on more fun and informative programs and events in the near future, and please let us know if there’s anything we can do to help.

SAVE THE DATE! NYCHC 2014 Gala Saturday, November 22

Please mark Saturday evening, November 22 in your calendar for the 2014 New York City Hemophilia Chapter Gala. Once again, this festive celebration will be held at India House, a nearly three hundred year old building built in the style of an Italian renaissance palazzo.

The evening will feature cocktails and hors d'oeuvres, an elegant dinner, live entertainment, guest speakers, a silent auction with wonderful items and more.

A formal invitation with opportunities for sponsorships and tickets will follow in a few weeks. Please save the date and let us know if you have any questions. We look forward to seeing you on November 22. For more information, call (212) 382-2974 or email
info@nyhemophilia.org.

 ALSO - save Sunday, November 23 for NYCHC's Education Day at the Crowne Plaza Times Square.

Friday, August 15, 2014

Join us in Washington for the NHF Annual Meeting!

If you are thinking about joining us in Washington for the NHF Annual Meeting, now is the time to let us know. We are holding rooms at one of the official meeting hotels, but they are going fast. Please let us know by Monday, August 18 if you are interested in coming. Travel and hotel assistance are available.

Please let us know of your interest by sending an email to

(Please note: If you have previously responded that you want to attend, we are holding a room for you and will contact you separately to confirm).

In addition, NHF has extended the deadline for registering children for the youth and childcare programs until THIS SUNDAY, AUGUST 17.  If you want your child to be included, please register now. You can learn more and register by CLICKING HERE.

More information about the meeting:

The NHF Annual Meeting will take place from September 18-20 in Washington, D.C. Since Washington is so close to New York, this is a rare chance for folks from our area to attend this very special event.

The NHF Annual Meeting will feature a broad array of educational sessions and social programs for the entire bleeding disorders community. It's an unprecedented opportunity to get important information about a range of key issues while meeting other families and clinicians from all over the country. You can read more about the meeting by clicking here.

We hope you will join us for this very special gathering of members of the bleeding disorders community from across the country!

Tuesday, June 3, 2014

An Incredible Day at the NYC Hemophilia Walk in Riverside Park!

A large, enthusiastic crowd, incredible weather, awesome food and entertainment, and an unbelievable team of volunteers all contributed to making Sunday's New York City Hemophilia Walk the BEST WALK EVER! Thank you to EVERYONE for helping to make it such a great success!

With your help, we raised over $235,000, but we're still about $15,000 short of our goal. Please reach out to people you know one more time and help us close the gap! Ask them to donate to you or your team, or send them to the Walk page at bit.ly/nycwalk14.

Pictures from the Walk will be coming soon. In the meantime, Patrick Lynch, Ryan Gielen and the "Stop the Bleeding!" team made a fantastic video with highlights of their experiences at the Walk. You can view it here ( and don't forget to share):