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Tuesday, November 22, 2016

NYCHC Jam-Packed Weekend

This weekend was a particularly busy one for NYCHC. With our 2016 Annual Gala on Saturday, and a full day of activities and learning at Education Day, it was a whirlwind of a weekend.

2016 GALA

Through the Gala, held at the Manhattan Penthouse, we raised over $98,000 for our work in support of bleeding disorders (including advocacy, travel grants, and education). We also honored long-time advocate for women with bleeding disorders, Jeanette Cesta, with the Award of Distinction. Julia Martin Alvarez was also honored as our 2016 Susan Galligan Volunteer of the Year.

Special Guest speakers included Patrick James Lynch and Christopher Ambrosio, who shared their inspiring stories of challenges and successes in spite of having bleeding disorders. Guests enjoyed a delicious dinner, made connections, and danced the night away with surrounded by beautiful views of Manhattan.


Education Day brought hundreds of people together to learn, grow, explore, and have fun at the Crowne Plaza Times Square Hotel. Starting the day with a light breakfast, NYCHC committees gathered together to plan for the 2017 year. The highlight of the day was a morning Infusion Party, where participants infused together and learned to infuse. Our very own Santa Claus even infused! 

Attendees then broke out into sessions featuring pain management, sports injuries, bleeding disorder camps, identifying bleeds and more. An afternoon panel with local practitioners Drs. Acharya, McGuin, and Walsh allowed attendees to gain insight on present and future treatment trends for bleeding disorders. After lunch, another set of breakout sessions took place, this time featuring workshops on financial aid, joint protection, factor and its purpose, and perspectives on VWD, among others.

We ended the day's activities with a Holiday Party featuring breakdancers, a super fun photo booth, and Santa and his elves handing out gifts to the kids.

All in al, both events were our most successful to date!

Check out the photos from NYCHC's Gala as well as our Education Day and Holiday Party.

Wednesday, November 16, 2016

Education Day is Almost Here!

Eventbrite - NYCHC's 2016 Education Day & Holiday Party

Haven't registered yet? REGISTER NOW! 

Check out what's in store for you:
  • Breakfast and committee member gatherings 
  • An Infusion Party
  • Workshops in English and Spanish 
  • Sessions on pain management, sports injuries, basic bleed treatment, relationships and VWD, carrier conversations, and more 
  • A panel with your HTC providers ready to answer questions on the state of bleeding disorders now and in the future, and more 
  •  A Teen Track for affected teens and siblings featuring games, workshops about bleeding and personal experiences, and camps 
  • A Kids Track with games, science experiments, and SLIME
  • A delicious lunch 

 This is definitely a day you won't want to miss! 

So what are you waiting for?! REGISTER NOW!

See you at Education Day!

Si aún no se ha registrado, ¡definitivamente deberías hacerlo!

¡Regístrese aquí ahora!

Si no lo hace, se perderá un maravilloso día de aprendizaje, comunidad y diversión:
  • Desayuno ligero y encuentros con los comités
  • La fiesta de auto tratamiento (Infusion Party)
  • Ofreceremos impresionantes talleres en inglés y español
  • Sesiones sobre manejo del dolor, genotipo, lesiones físicas y factores de estrés emocional / mental, y conocimiento básico de sangrado, y mucho más
  • El panel plenario con profesionales de los HTCs locales que responderán a sus preguntas sobre el estado actual de los trastornos de coagulación y lo que les espera en el horizonte
  • Sesiones para los adolescentes de 13 a 19 años, hermanos y afectados por igual, con algunos juegos geniales y, al final del día, todos seremos BFFs
  • Sesiones para los niños de 6 a 12 años, un programa súper divertido, con ¡¡¡S L I M E !!!
  • Un delicioso almuerzo
  • ¡Y vamos a pasar el rato con SANTA, y tener una fiesta de vacaciones impresionante!

Este es definitivamente un día que no se quiere perder.

¿Entonces, a qué espera? ¡Regístrese ahora!

¡Nos vemos a Día de Educacíon!

Tuesday, November 8, 2016

NYCHC Gala-Sold Out!

Thank you to everyone who purchased tickets, as well as to all who continue to support NYCHC. It is because of your generosity that we can continue to provide services and support to the bleeding disorders community.

We'll see you at the Gala!