Friday, August 15, 2014

Join us in Washington for the NHF Annual Meeting!

If you are thinking about joining us in Washington for the NHF Annual Meeting, now is the time to let us know. We are holding rooms at one of the official meeting hotels, but they are going fast. Please let us know by Monday, August 18 if you are interested in coming. Travel and hotel assistance are available.

Please let us know of your interest by sending an email to

(Please note: If you have previously responded that you want to attend, we are holding a room for you and will contact you separately to confirm).

In addition, NHF has extended the deadline for registering children for the youth and childcare programs until THIS SUNDAY, AUGUST 17.  If you want your child to be included, please register now. You can learn more and register by CLICKING HERE.

More information about the meeting:

The NHF Annual Meeting will take place from September 18-20 in Washington, D.C. Since Washington is so close to New York, this is a rare chance for folks from our area to attend this very special event.

The NHF Annual Meeting will feature a broad array of educational sessions and social programs for the entire bleeding disorders community. It's an unprecedented opportunity to get important information about a range of key issues while meeting other families and clinicians from all over the country. You can read more about the meeting by clicking here.

We hope you will join us for this very special gathering of members of the bleeding disorders community from across the country!

Tuesday, June 3, 2014

An Incredible Day at the NYC Hemophilia Walk in Riverside Park!

A large, enthusiastic crowd, incredible weather, awesome food and entertainment, and an unbelievable team of volunteers all contributed to making Sunday's New York City Hemophilia Walk the BEST WALK EVER! Thank you to EVERYONE for helping to make it such a great success!

With your help, we raised over $235,000, but we're still about $15,000 short of our goal. Please reach out to people you know one more time and help us close the gap! Ask them to donate to you or your team, or send them to the Walk page at

Pictures from the Walk will be coming soon. In the meantime, Patrick Lynch, Ryan Gielen and the "Stop the Bleeding!" team made a fantastic video with highlights of their experiences at the Walk. You can view it here ( and don't forget to share):

Thursday, February 20, 2014

The NYC Hemophilia Walk is On!

NYCHC is Calling All Team Captains, Walkers, Sponsors and Anyone Who Wants to Help Make the 2014 Hemophilia Walk Even Better Than Last Year!

If you have questions or need more information, please contact Jeri Krassner at or at (212) 382-2974.  
We look forward to seeing you at Bareburger on March 9 and in Riverside Park in June.

Saturday, February 1, 2014

Super Surprises for NYCHC's own Patsakos Family

Earlier this week we shared news stories about how New York City Hemophilia Chapter's own Seth Patsakos received an autographed football from his beloved Denver Broncos at the family's home in Staten Island. The Patsakos have been honored for their work with the Chapter and Seth's dad Bill is the co-chair of our Dads in Action group. Now there's more good news for the family as a generous New Yorker who saw the original story on the news has come forward with a pair of Super Bowl tickets for Seth and Bill. Clips of some of the television coverage of these stories appear on NYCHC's Facebook page at