Monday, November 3, 2014

NYCHC Education Day 2014

Thank you to everyone who registered for New York City Hemophilia Chapter’s Education Day, Sunday, November 23 starting at 9:00am at the Crowne Plaza Times Square. We're so excited to see you and have a lot planned!

For those who haven't registered yet, you still can, BUT PLEASE DO IT NOW. There's a registration link at the top of this email, and another one near the bottom. We're planning so much for you and we don't want you to miss it!
New This Year:infusion
  • Infusion Party - Learn to infuse, help others learn, or just come and infuse with friends! Open to all ages.
  • Trip for kids (ages 5-12, permission of parent or guardian and on-time 9:00am arrival required) to Marvel's Avengers avg_circleS.T.A.T.I.O.N., a completely immersive experience that brings visitors into the world of The AVENGERS.
  • Honoring Our Past, Building Our Future: A historical journey of the bleeding disorders communit14353218462_c8489d0319y over the last sixty years (presented with HFA).
More Highlights:
  • Breakfast Session (9:00am): All About Camp
  • Treatment Options - What's Here and What's Coming
  • Inhibitor Update with Dr. Christopher Walsh of Mount Sinai
  • Education, Empowerment and Entering Adulthood: A session for young adults and teens led by Patrick James Lynch of Stop the Bleeding!
  • Accessing Financial Resources
  • VWD: Finding Our Voice in the Community with Jeanette Cesta
  • New Research on Hemophilia A Carriers with Dr. Robert Sidonio
  • Understanding Plasma Safety
  • Constructive Conversations with Linda Polhammer, RN
  • En Español: Hemofilia en Niños de Hasta 12 Años
  • Kids activities
  • Buffet Lunch
  • Exhibits
  • and Much More!

santa_claus_gift_christmas_holiday_joy_36422_1920x1200Right after the educational sessions we will host a fun holiday celebration from 3:00 to 4:00 pm. The party will feature Santa's first appearance of the season and presents for all children eighteen and under!


    A live performance by the members of Cheer New York!
All individuals with bleeding disorders from the Greater New City area and their immediate families are invited to attend these events at no cost - it's free! However, advance registration is required so PLEASE REGISTER NOW and remember to include all attendees in your reservation. Be sure to tell us the age and gender of each child attending so that Santa can select an appropriate gift.

If you have difficulty registering or need more information, please contact Jeri Krassner at  or call NYCHC at (212) 382-2974.

Thank you and we look forward to seeing you on November 23!

Your friends at NYCHC 

P.S. - NYCHC's 2014 Gala is Saturday, November 22rd at India House - Cocktails at 5, Dinner at 6, auction, awards and more. For more information or to reserve tickets, visit

Monday, October 13, 2014

NYCHC Gala November 22 at India House

The New York City Hemophilia Chapter will hold our 2014 Gala on Saturday, November 22, with cocktails at five o'clock and dinner at six. The event will be held at India House , located at One Hanover Square in New York City's fabled  downtown district.
During the Gala we will be recognizing a very special surprise honoree with the 2014 Award of Distinction. We will also be presenting the Susan Galligan Volunteer of the Year Award to Danielle Kiesel, a long-time dedicated volunteer for NYCHC.

The Gala will feature live music, premiere raffle items, and additional special guests. 
You can view or download a copy of the full Gala invitation by CLICKING HERE.
If you cannot attend but are able to make a contribution of ANY AMOUNT, please know that every dollar helps us continue our programs and services all year long. You can make a contribution now or at any time by clicking here or by visiting our website at

Thank you for your ongoing support and involvement with NYCHC. We look forward to seeing you soon.

Friday, September 5, 2014

We hope everyone had a wonderful summer and is enjoying the start of fall.

This time always brings up a variety of issues for any family with children. Families affected by bleeding disorders face particular issues ranging from how to communicate key information to teachers and other members of a school’s staff, to creating an IEP or 504 plan, and many more. Our national organizations have some great resources and information you may want to check out.

The Hemophilia Federation of America (HFA) has a “Back to School Toolkit” with a very wide variety of resources. CLICK HERE TO VIEW IT

The National Hemophilia Foundation (NHF) also has some excellent resources on its “Steps for Living” website.CLICK HERE TO VIEW THEM

Whether you are dealing with back to school issues, back to work issues, insurance issues, or anything else, NYCHC is here to help.  Watch for details on more fun and informative programs and events in the near future, and please let us know if there’s anything we can do to help.

SAVE THE DATE! NYCHC 2014 Gala Saturday, November 22

Please mark Saturday evening, November 22 in your calendar for the 2014 New York City Hemophilia Chapter Gala. Once again, this festive celebration will be held at India House, a nearly three hundred year old building built in the style of an Italian renaissance palazzo.

The evening will feature cocktails and hors d'oeuvres, an elegant dinner, live entertainment, guest speakers, a silent auction with wonderful items and more.

A formal invitation with opportunities for sponsorships and tickets will follow in a few weeks. Please save the date and let us know if you have any questions. We look forward to seeing you on November 22. For more information, call (212) 382-2974 or email

 ALSO - save Sunday, November 23 for NYCHC's Education Day at the Crowne Plaza Times Square.