Thursday, June 25, 2015

Supreme Court Upholds Affordable Care Act Subsides

The Supreme Court of the United States upheld Affordable Care Act subsides that current help many people living with bleeding disorders afford healthcare coverage.

"The stakes of the case, King v. Burwell, were enormous. Had the plaintiffs prevailed, millions of people who depend upon the Affordable Care Act for insurance would have lost financial assistance from the federal government. Without that money, most of them would have had to give up coverage altogether."

To read more of this article by The Huffington Post, please click on the following link:

#hemophilia #vWD #bleedingdisorders #ACA 

Wednesday, June 17, 2015

Rose: A Girl with Hemophilia Overcomes, Achieves, Succeeds!

Congratulations to our own Rose Bender!  Rose was featured on HemaBlog by L.A. Kelley Communications, Inc.

Photo Credit:  HemaBlog

"It's graduation time!  I am off to two graduation parties this month - one for a young man who I've known since age 4.  He's like my own son.  And here is a story about a wonderful young lady with hemophilia, who I have know since she was young , too.  This is written by her mother, Shari. What an honor to know these remarkable young people as they become our future leaders, in hemophilia, and in the greater world." - Laurie Kelley

Congratulations Rose!  We're so very proud of you and glad to have you a part of our hemophilia community.

Meet Our Newest Board Member!

Please join NYCHC in welcoming the newest member to our Board of Directors, Matt Porges.  Matt has been a dedicated member of our community for some time and we are excited to have him join our Board of Directors!

Matt Porges is a lawyer with a focus on employment discrimination.  Matt also handles other legal matters, including landlord-tenant cases and foreclosure defense.

Matt has severe hemophilia A, which was diagnosed at birth.  Matt attended hemophilia gatherings, including camps such as The Hole in the Wall Gang Camp as a child and teenager.  As an adult, Matt has been involved with the hemophilia community to give back to kids and new hemophilia families.

Matt received a Bachelor's of Arts at Brandeis University in 2000, a Juris Doctor from New England School of Law in 2004, and admission to the New York State Bar in 2005.  

He lives in Brooklyn with his miniature pinscher (and top fundraiser) Rose.  Matt is the captain of Team Good Blood, one of the top fundraising teams for the New York City Hemophilia Walk.

Thursday, June 11, 2015

Save One Life At 10th NYCHC Hemophilia Walk

As you know, the New York City Hemophilia Chapter recently held our tenth annual hemophilia walk, our biggest one yet!  We'd like to thank Save One Life for not only participating in our walk, but also for highlighting our walk in the most recent edition of their newsletter called "One Voice".

"Save One Life is a small organization, but big when it comes to innovative ideas.  When the earthquake struck Nepal, where 83 beneficiaries live, we sprang into action.  We did not have a disaster plan, but we immediately thought to raise money for earthquake victims in the bleeding disorders community." - Laurie Kelley, President and Founder

To read the latest edition of "One Voice, please click on the following link:

To learn more about Save One Life, donate or sponsor a child, go to their website at:

We are still accepting donations for our 10th annual hemophilia walk.  If interested in donating, please click on the link below.

#hemophilia #vWD #bleedingdisorders #NYCHC10thHemoWalk #SaveOneLife