Monday, December 1, 2014

It's Giving Tuesday

It's Giving Tuesday
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We have a day for giving thanks. We have two for getting deals. Now, we have #GivingTuesday, a global day dedicated to giving back. Today, Tuesday, December 2, 2014,nonprofits, families, businesses, community centers, and students around the world are coming together for one common purpose: to celebrate generosity and to give.

It’s a simple idea. Just find a way for your family, your community, your company or your friends to come together to give something more. Then tell everyone you can about how you decided to give. Join us and be a part of a global celebration of a new tradition of generosity.

This is an opportunity to give much needed funds, volunteer hours, or both to the causes dearest to your heart. Of course, all of us at New York City Hemophilia Chapter hope you will remember our efforts on behalf of families affected by bleeding disorders. But whatever causes you choose to support, we hope you will help us spread the word to the entire community about the importance of giving.

If you'd like to support our efforts, you can make a secure online contribution or find out about opportunities for volunteering by clicking on the appropriate link on our
"YOU CAN HELP" page.

We are also very excited that we have begun planning our 2015 New York City Hemophilia Walk - our tenth year!  The Walk will take place on Sunday, May 31st in Riverside Park.

We need everyone to get involved! You can sign up to receive information about teams, volunteer and much more by CLICKING HERE.

Thank you for celebrating Giving Tuesday with us, and for supporting this community all year long!


World AIDS Day – December 1st

Since 1988, December 1st is observed as World AIDS Day. The World Health Organization designated this day to ensure renewed and ongoing attention to the threat posed by HIV/AIDS. It is estimated by Centers for Disease and Control (CDC) that over 1 million people in the United States are currently living with HIV.

We observe and acknowledge this day in honor of our community members who contracted HIV and hepatitis C after injecting contaminated antihemophilic clotting factor into their bodies prior to 1985. Approximately ten thousand people with hemophilia contracted HIV (and hepatitis C) during this time, and no less than eight thousand have died.

Monday, November 3, 2014

NYCHC Education Day 2014

Thank you to everyone who registered for New York City Hemophilia Chapter’s Education Day, Sunday, November 23 starting at 9:00am at the Crowne Plaza Times Square. We're so excited to see you and have a lot planned!

For those who haven't registered yet, you still can, BUT PLEASE DO IT NOW. There's a registration link at the top of this email, and another one near the bottom. We're planning so much for you and we don't want you to miss it!
New This Year:infusion
  • Infusion Party - Learn to infuse, help others learn, or just come and infuse with friends! Open to all ages.
  • Trip for kids (ages 5-12, permission of parent or guardian and on-time 9:00am arrival required) to Marvel's Avengers avg_circleS.T.A.T.I.O.N., a completely immersive experience that brings visitors into the world of The AVENGERS.
  • Honoring Our Past, Building Our Future: A historical journey of the bleeding disorders communit14353218462_c8489d0319y over the last sixty years (presented with HFA).
More Highlights:
  • Breakfast Session (9:00am): All About Camp
  • Treatment Options - What's Here and What's Coming
  • Inhibitor Update with Dr. Christopher Walsh of Mount Sinai
  • Education, Empowerment and Entering Adulthood: A session for young adults and teens led by Patrick James Lynch of Stop the Bleeding!
  • Accessing Financial Resources
  • VWD: Finding Our Voice in the Community with Jeanette Cesta
  • New Research on Hemophilia A Carriers with Dr. Robert Sidonio
  • Understanding Plasma Safety
  • Constructive Conversations with Linda Polhammer, RN
  • En Español: Hemofilia en Niños de Hasta 12 Años
  • Kids activities
  • Buffet Lunch
  • Exhibits
  • and Much More!

santa_claus_gift_christmas_holiday_joy_36422_1920x1200Right after the educational sessions we will host a fun holiday celebration from 3:00 to 4:00 pm. The party will feature Santa's first appearance of the season and presents for all children eighteen and under!


    A live performance by the members of Cheer New York!
All individuals with bleeding disorders from the Greater New City area and their immediate families are invited to attend these events at no cost - it's free! However, advance registration is required so PLEASE REGISTER NOW and remember to include all attendees in your reservation. Be sure to tell us the age and gender of each child attending so that Santa can select an appropriate gift.

If you have difficulty registering or need more information, please contact Jeri Krassner at  or call NYCHC at (212) 382-2974.

Thank you and we look forward to seeing you on November 23!

Your friends at NYCHC 

P.S. - NYCHC's 2014 Gala is Saturday, November 22rd at India House - Cocktails at 5, Dinner at 6, auction, awards and more. For more information or to reserve tickets, visit

Monday, October 13, 2014

NYCHC Gala November 22 at India House

The New York City Hemophilia Chapter will hold our 2014 Gala on Saturday, November 22, with cocktails at five o'clock and dinner at six. The event will be held at India House , located at One Hanover Square in New York City's fabled  downtown district.
During the Gala we will be recognizing a very special surprise honoree with the 2014 Award of Distinction. We will also be presenting the Susan Galligan Volunteer of the Year Award to Danielle Kiesel, a long-time dedicated volunteer for NYCHC.

The Gala will feature live music, premiere raffle items, and additional special guests. 
You can view or download a copy of the full Gala invitation by CLICKING HERE.
If you cannot attend but are able to make a contribution of ANY AMOUNT, please know that every dollar helps us continue our programs and services all year long. You can make a contribution now or at any time by clicking here or by visiting our website at

Thank you for your ongoing support and involvement with NYCHC. We look forward to seeing you soon.