Wednesday, October 19, 2016

Want to Be an Exercise Video Star?

The National Hemophilia Foundation is looking for volunteers. See below for more information on how to participate.


One of NHF's current areas of focus for education is the importance of physical activity as it relates to joint health and to our overall health. This Fall, to build upon the success of the Healthy Steps exercise sessions that have been at Annual Meeting the past few years, we will be filming three instructional exercise videos to share with the bleeding disorders community online. Below is a short summary of the project:

"Healthy Steps" 2016 Videos

  • 1 short video, 2-3 minute intro to the series

  • 3 exercise videos, 10-15 minutes each, on:

    1. Tai Chi

    2. Yoga

    3. Dance

Each of the three exercise videos will feature an expert Instructor active in the bleeding disorders community, who will lead the exercises, and a Physical Therapist, who will provide commentary and discuss modifications appropriate for people with limitations in mobility. The Instructor and PT will lead a small group of community volunteers through exercises.

We are working with an NYC-based production company for this project, and the filming for the 3 exercise videos and short intro video will all be completed in one day on THURSDAY, NOVEMBER 3, 2016.

Volunteers Needed:

We are looking for 2 local members of the bleeding disorders community to participate in the three exercises videos (both volunteers will participate in all 3 videos). These people will need to be available for a FULL DAY OF FILMING on THURSDAY 11/3/2016, and also be comfortable with being on camera! We know that this is a weekday, which may be challenging, and are offering each volunteer a gift card as a thank you for their time.

We already have one young woman recruited as a participant for the videos. We would like to show diversity in age and gender with the other participants, if possible.

Interested in participating? Email Krystle Cheirs-Roberts at by Friday, October 28th.


Monday, October 17, 2016

NYLI Acception Applications through October 31, 2016

What is NYLI?

The National Youth Leadership Institute (NYLI) at the National Hemophilia Foundation (NHF) exists to provide youth (18-24 years old) in the bleeding disorders community with leadership opportunities to encourage personal growth, effect change, and positively influence others.

What to Expect:
The National Youth Leadership Institute is a three-year program designed to assist young people from the bleeding disorders community to become well-trained, recognized leaders. In addition, NYLI provides a amazing opportunity for youth to learn and share experiences of living with a bleeding disorder. NHF achieves these outcomes by providing young adults with training, support, and opportunities to provide education to the bleeding disorders community.

As of January 2015, the NYLI program has implemented a three-year curriculum. The program will continue to provide youth with the same opportunities to become established leaders and speakers in the bleeding disorders community, while also providing them with the tools to implement more direct programs at the local level.

For more information and to apply, visit the NYLI webpage.

Powering Through NYC3!

Registration is still open for Powering Through NYC 3! Register here!

Powering Through is excited to return to NYC to deliver a truly dynamic panel of guests. Joining the conversation are Marilyn Ness - Filmmaker ("Bad Blood", "E-Team") and 
Tyshawn Constantine - Marketing Professional & Community Member,
for a discussion on overcoming life's challenges.

Powering Through New York - Thursday, October 27th
Studio Arte - 265 West 37th Street - 17th Floor - New York, NY 10018

6pmDoors open, snacks and drinks provided. 

7pmConversation with panelists.
Hosted by community activist Patrick James Lynch

Created by BelieveLTD and sponsored by NCHS, Powering Through events are free and open to the community, and seek to bring together exciting and dynamic guests to speak about overcoming life's challenges. Learn more and register (for free) by visiting the Upcoming Events page at
Questions? Email

Friday, October 7, 2016

Step It Up: Ser Más Activo con Hemofilia/Step It Up: Being More Active with Hemophilia


División de Hemofilia de la Ciudad de Nueva York
Comité  de Compromiso Latino Presenta

Step It Up: Ser Más Activo con Hemofilia
Una presentación y almuerzo con Cristie Vidal
Seguido de juegos y diversión para toda la familia

La sección de educación está presentado por Pfizer
29-21 41ST AVENUE
7, N, Q trenes a Queensboro Plaza; E, M, R trenes a Queens Plaza
Cuando se tiene un desorden de coagulación, ser activo es muy importante.
Discutiremos diferentes maneras para mantenerse activos y protegidos a la vez.
También aprenderemos a mantener conversaciones constructivas con los profesionales
y nuestras familias.
Y, finalmente, pondremos a prueba nuestros conocimientos con divertidos juegos para toda la familia!

Visita a para registrarse y más información.


The New York City Hemophilia Chapter Latino Outreach Committee Presents

Step It Up: Being More Active with Hemophilia
A presentation and lunch with Cristie Vidal
Followed by games and fun for the whole family

Educational portion sponsored by Pfizer
29-21 41ST AVENUE 
7, N, Q trains to Queesboro Plaza; E, M, R trains to Queens Plaza
When you have a bleeding disorder, being active is very important.
We'll discuss different ways to be active while also being protected.
We'll also learn how to have constructive conversations with healthcare professionals and our families.
Finally, we'll get to know one another through games for the whole family!

To register and find out more information visit: