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February 2018

2018 VWD Retreat: Hope on the Horizon

February 23 @ 6:00 pm - February 24 @ 3:00 pm UTC+0
Courtyard by Marriott Central Park, 1717 Broadway
New York,New York10019
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NYCHC invites you to the 2018 vWD Retreat: Hope on the Horizon! This event is intended for individuals and families affected by VWD (von Willebrand Disease). The program will feature opportunities to: Get to know other community members affected by von Willebrand Disease Participate in discussions with local clinicians and other experts Learn about vWD on a national scope Learn strategies for dealing with the day to day challenges of living with vWD Share thoughts, experiences, and ideas for strengthening…

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March 2018

2018 Walk Kickoff Brunch

March 4 @ 9:00 am - 12:00 pm UTC+0
Bareburger, 535 LaGuardia Place
New York,NY
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To jump start Walk season and celebrate Bleeding Disorders Awareness Month, we're inviting all Walk Captains, walkers, and anyone else who wants to make the 2018 Walk bigger and better than the last to brunch! Sunday, March 4th, we want to celebrate with you at Bareburger! The Hemophilia Walk has a new, more inclusive focus and name: Unite for Bleeding Disorders Walk!  

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NHF Washington Days

March 7 - March 9
Hyatt Regency Washington on Capitol Hill, 400 New Jersey Ave NW
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The National Hemophilia Foundation (NHF) will host the annual Washington Days advocacy event March 7-9, 2018 on Capitol Hill in Washington, DC. NHF’s Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are important to them. Last year’s Washington Days had more than 500 volunteer advocates from 47 states that met with legislators and staff to discuss maintaining key patient protections in the Affordable Care Act (ACA). The hotel for 2018 Washington Days lodging and trainings…

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Christopher’s Hemophilia Benefit

March 16 @ 7:30 pm - March 17 @ 12:30 am UTC+0
The Coral House, 70 Milburn Avenue
Baldwin,New York11510
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2018 Albany Days

March 18 - March 19

As a member chapter of the New York State Bleeding Disorders Coalition, we unite with other chapters in Albany annually to advocate for the needs of the bleeding disorders community. Individuals and families are encouraged to participate in this legislative day. Prior to the session, attendees receive training and become more familiar with speaking about the issues. They then meet with their legislators (or representatives) to express their views. Throughout the event, families learn more about the legislative process and…

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April 2018

Factor 7 Retreat

April 6 - April 8
Marriott at City Center, 740 Town Center Drive
Newport News,VA23606United States
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Comprehensive Health Education Services and the LadyBugs Foundation teamed up in 2012 to present the only national program of its kind for those affected by FVII; funding by an education grant from Novo Nordisk. Join us for our 7th annual weekend of education, support, and fun for those affected by FVII deficiency and their families. The Factor 7 Retreat brings together individuals with factor 7 deficiency (FVIId) and their immediate families for a weekend of education and community building. This…

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Innovation Summit

April 7 @ 5:00 pm - 10:00 pm UTC+0
Museum of the Moving Image, 36-01 35th Avenue
Astoria,New York11106
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In 2018, Spring Event has a new look! This year, we want to introduce you to the creators, big picture thinkers, and problem solvers who are changing the world! The Innovation Summit is a chance to see up close what exciting new technologies and approaches are being used to solve complex problems, inside and out of the world of bleeding disorders. This FREE event will also give you exclusive all-access to the Museum of Moving Image (MoMI)! The MoMI features…

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Women’s Retreat

April 20 @ 6:00 pm - April 21 @ 3:00 pm UTC+0

NYCHC is expanding our programming to serve the needs of women and girls with bleeding disorders. This Spring, NYCHC will host it's first retreat dedicated to women and girls and their specific needs. This retreat will present the opportunity to: Participate in peer-to-peer mentoring Gain insights with medical expertise from obstetricians and gynecologists familiar with bleeding disorders Engage in programming made specifically for teen girls Share thoughts, experiences and ideas for strengthening this community and more! Stay tuned for more…

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May 2018

2018 Inhibitor Retreat

May 5 @ 6:00 pm - May 6 @ 3:00 pm UTC+0

Following the success of the 2017 Inhibitor Retreat, NYCHC once again presents this awesome opportunity for families and patients who struggle with inhibitors. The 2018 Inhibitor Retreat will feature opportunities to: Access and discuss case studies of patients with inhibitors Participate in peer-to-peer mentoring Gain insights and medical expertise Learn strategies for dealing with the day to day challenges of living with inhibitors Engage in meaningful activities and programming for kids Share thoughts, experiences and ideas for strengthening this community…

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June 2018

NYC Unite for Bleeding Disorders Walk

June 3
Riverside Park, 6681 Riverside Dr
New York,New York10025
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In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together we could make a difference for ourselves and our children. There was excitement in the air that first beautiful day, and the promise of a better tomorrow. Many of you were there with us, and many more joined in the years that followed. The 2016 Walk teams raised over $313,616.00.…

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