Albany Days

Join bleeding disorders advocates from across New York State for Albany Days from Saturday, March 16 to Monday, March 18. Whether you are new to advocacy, or you're an experienced advocate, you can help us make a difference! This three-day program will feature a fun and interactive advocacy training on Saturday and Sunday followed by meetings […]

Community Conversations: Navigating Childhood with Bleeding Disorders

Join us on Thursday, March 21 at 7 PM for a webinar focusing on guiding your child through the early years of life with a bleeding disorder with an emphasis on the mental health related aspects that come along with a new diagnosis. Dr. Regina Legere-Buccellato, a Clinical Psychologist and mom of two sons with […]

In The Know Treatment Decision Making Summit

WeWork 205 W. 37th St., New York, NY, United States

Our 4th Annual In The Know Treatment Decision Making Summit will be held on Saturday, April 6 from 10 AM to 2:30 PM at the NYCHC Office (enter at 205 W. 37th St., New York, NY 10018). With treatment options changing rapidly for our community, it is extremely important for patients and families to stay […]

HFA Symposium

JW Marriott Indianapolis 10 S West Street, Indianapolis, IN, United States

The Hemophilia Federation of America (HFA) is heading to Indianapolis for their annual Symposium! Join them for this year’s conference from Thursday, April 11 to Sunday, April 14 at the JW Marriott Indianapolis in Indianapolis, Indiana. They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with […]

PULSE for Bleeders – Teen Meet Up

WeWork 205 W. 37th St., New York, NY, United States

PULSE for Bleeders (Promoting Unity, Leadership, and Support for Empowerment) is a new group in the NYCHC Community! PULSE was designed by and for teens in our community to empower other 13-19 year olds to gain independence, improve their collaboration, and cultivate their leadership skills by embracing the bleeding disorders community in our area. Our […]

Infusion Training and Lunch

WeWork 205 W. 37th St., New York, NY, United States

Join us on Sunday, April 28, from 11:30 AM to 2 PM for our Infusion Training and Lunch at the NYCHC Office (entrance is located at 205 W. 37th St., New York, NY 10018). This small gathering will feature hands-on infusion and injection instruction and guidance from trained medical staff.  Patients of all ages and skill levels […]

A Day At The Zoo with NYCHC

Bronx Zoo 2300 Southern Boulevard, Bronx, New York

Bring your crew to the Zoo for a roaring good time! Join us for a fun day at the Bronx Zoo on Sunday, May 5, beginning at 11:30 AM. This event will allow families to come together to meet one another and connect in a relaxed and laid-back environment. Agenda Overview: 11:30 AM: Arrival & Check-In | […]

Día de las Madres

NYCHC Office 500 7th Avenue, 8th Floor, New York, NY, United States

El Chapter de la Hemofilia de NY (NYCHC) invita a las mamás de la comunidad latina con un desorden de coagulación a celebrar el Día de las Madres el sábado 11/Mayo a las 11am con una sesión educativa en la que hablaremos de ‘Abogacía’ y después tendremos una actividad manual donde haremos ‘Diamond Painting’. Almuerzo incluido. Dirección: 205w […]

Educational Dinner: Shared Decision Making

Meaux Space 305 7th Ave., 17th Floor, New York, NY, United States

On Wednesday, May 22 at 6:30 PM, we are partnering with Sanofi to host an educational dinner at Meaux Space (305 7th Ave., 17th Floor, New York, NY 10001). In addition to enjoying an incredible meal, you will also leave with a better understanding of how to partner with your care team to make treatment and management decisions. The educational […]

Educational Lunch: Advocacy and Self Care

HARVEST KITCHEN 269 Columbus Ave, New York, NY, New York, NY, United States

Moms and teen girls in our community are invited to join us on Saturday, May 25 at 11 AM for an afternoon of lunch, advocacy and self care! Our afternoon will begin with lunch at Harvest Kitchen (269 Columbus Ave.) alongside an interactive discussion about how you can become your own best advocate in life […]

Start typing and press Enter to search