New York City Hemophilia Chapter offers a variety of ongoing programs and events for members of our community. If you don’t see a program or event that applies to you on this list, click here to contact us so we can better help you get involved.
Advocacy
Advocacy
New York City Hemophilia Chapter is a member organization of the New York State Bleeding Disorders Coalition, a partnership of not-for-profit organizations dedicated to public advocacy...
Inhibitors
Inhibitors
Whether you’re a patient, caregiver, or a member of the support network, there are day to day challenges that come with having hemophilia with the added complication of an inhibitor.
Dads in Action
Dads in Action
Dads in Action is a program of the Hemophilia Federation of America offering support & education to fathers who have a bleeding disorder in their family.
Latino Outreach
Latino Outreach
NYCHC has established a Latino Outreach Committee that runs events for Spanish-speaking bleeders and their families.
TORCH Program
TORCH Program
TORCH (Teen Opportunities and Resources for Community Health) is NYCHC’s teen program for teens ages 13-18 within the Greater NYC bleeding disorders community.
VWD Program
VWD Program
Von Willebrand Disease (VWD) is the most common bleeding disorder in the world. It is estimated that 80,000 New Yorkers live with VWD and most do not even know.
Women's Program
Women's Program
Bleeding disorders among women may cause special challenges because of the bleeding associated with menstruation and childbirth.
Connections Program
Connections Program
NYCHC’s Connections Program matches families and individuals who are new to hemophilia, new to New York City, new to our Chapter.
Gala
Gala
Guests enjoyed a delicious dinner, made connections, and danced the night away with surrounded by beautiful views of Manhattan.
Education Day
Education Day
Education Day brought hundreds of people together to learn, grow, explore, and have fun at the Crowne Plaza Times Square Hotel.
Hemophilia Walk
Hemophilia Walk
In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together we could make a difference for ourselves and our children.
Spring Event
Spring Event
Our Annual Spring Event is held in celebration of World Hemophilia Day.
HFA Symposium
HFA Symposium
Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements, and build a network of support!
NHF Annual Meeting
NHF Annual Meeting
Whether it’s your first time, or you’re a veteran, NHF’s annual gathering of the entire bleeding disorders community in the US is for you!