New York City Hemophilia Chapter offers a variety of ongoing programs and events for members of our community. If you don’t see a program or event that applies to you on this list, click here to contact us so we can better help you get involved.
New York City Hemophilia Chapter is a member organization of the New York State Bleeding Disorders Coalition, a partnership of not-for-profit organizations dedicated to public advocacy...
Whether you’re a patient, caregiver, or a member of the support network, there are day to day challenges that come with having hemophilia with the added complication of an inhibitor.
Dads in Action is a program of the Hemophilia Federation of America offering support & education to fathers who have a bleeding disorder in their family.
TORCH (Teen Opportunities and Resources for Community Health) is NYCHC’s teen program for teens ages 13-18 within the Greater NYC bleeding disorders community.
Von Willebrand Disease (VWD) is the most common bleeding disorder in the world. It is estimated that 80,000 New Yorkers live with VWD and most do not even know.
In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together we could make a difference for ourselves and our children.
Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements, and build a network of support!