Programs and Events

New York City Hemophilia Chapter is a member organization of the New York State Bleeding Disorders Coalition, a partnership of not-for-profit organizations dedicated to public advocacy...

Dads in Action is a program of the Hemophilia Federation of America offering support & education to fathers who have a bleeding disorder in their family.

NYCHC has established a Latino Outreach Committee that runs events for Spanish-speaking bleeders and their families.

TORCH (Teen Opportunities and Resources for Community Health) is NYCHC’s teen program for teens ages 13-18 within the Greater NYC bleeding disorders community.

Bleeding disorders among women may cause special challenges because of the bleeding associated with menstruation and childbirth.

Von Willebrand Disease (VWD) is the most common bleeding disorder in the world. It is estimated that 80,000 New Yorkers live with VWD and most do not even know.

NYCHC’s Connections Program matches families and individuals who are new to hemophilia, new to New York City, new to our Chapter.

Whether you’re a patient, caregiver, or a member of the support network, there are day to day challenges that come with having hemophilia with the added complication of an inhibitor.

Guests enjoyed a delicious dinner, made connections, and danced the night away with surrounded by beautiful views of Manhattan.

Education Day brought hundreds of people together to learn, grow, explore, and have fun at the Crowne Plaza Times Square Hotel.

In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together we could make a difference for ourselves and our children.

This event helps you learn about treatment options.