NYSBDC Town Hall Meeting

 In Advocacy, News, Teens / Young Adults, VWD, Women

NYSBDC Town Hall Meeting – Advocacy: The Other Side of the Desk

The New York State Bleeding Disorders Coalition hosted a Town Hall Meeting on Friday, June 26. This was a conversation between elected officials in the bleeding disorders community about advocacy from both sides of the table.

Speakers Include:

  • Randi Clites represents Ohio’s 75th House District. She began her advocacy work after her son was diagnosed with a rare bleeding disorder, then went on to serve as the Associate Director of the Northern Ohio Hemophilia Foundation and the Advocacy Coordinator for the Ohio Bleeding Disorders Council.
  • Vaughn Ripley has hemophilia and currently serves as on the Brunswick City Council in Maryland. Vaughn previously served as Advocacy Chair on the Hemophilia Foundation of Maryland’s Board of Directors.
  • Jeremy Griffin is the Executive Director of the New York City Hemophilia Chapter and has been a tireless advocate for the our community. Jeremy also serves on the Oradell School Board in New Jersey.

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