NYSBDC Town Hall Meeting
NYSBDC Town Hall Meeting – Advocacy: The Other Side of the Desk
The New York State Bleeding Disorders Coalition hosted a Town Hall Meeting on Friday, June 26. This was a conversation between elected officials in the bleeding disorders community about advocacy from both sides of the table.
- Randi Clites represents Ohio’s 75th House District. She began her advocacy work after her son was diagnosed with a rare bleeding disorder, then went on to serve as the Associate Director of the Northern Ohio Hemophilia Foundation and the Advocacy Coordinator for the Ohio Bleeding Disorders Council.
- Vaughn Ripley has hemophilia and currently serves as on the Brunswick City Council in Maryland. Vaughn previously served as Advocacy Chair on the Hemophilia Foundation of Maryland’s Board of Directors.
- Jeremy Griffin is the Executive Director of the New York City Hemophilia Chapter and has been a tireless advocate for the our community. Jeremy also serves on the Oradell School Board in New Jersey.