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Virtual Advocacy Day

Virtual Albany Day The New York State legislature is reopening for just a few days and we need your help advocating at our Virtual Albany Day! Join us on Tuesday, July 21 for our Virtual Albany [...]

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NYCHC Responds To Injustice

NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers to [...]

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NYSBDC Webinar

The New York State Bleeding Disorders Coalition hosted a webinar Thursday, May 14 at 2 PM for community members. This webinar provided an update on our advocacy work and community needs during [...]

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NYSBDC Data Survey

The New York State Bleeding Disorders Coalition (NYSBDC) is conducting an anonymous survey to collect demographic data and information on the needs of the bleeding disorders community across New [...]

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Advocacy Tips

Advocates from the bleeding disorders community, including two familiar faces to our chapter, recently shared some of their most important tips regarding advocacy! Whether you are preparing to [...]

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Advocacy Skills Training Program

*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update.   For the first time, the New [...]

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Albany Days 2020

*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update.   Our Chapter is happy to join [...]

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READY Teen Retreat

*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update.   The Regional Education [...]

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