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Advocacy Alert: May 2022

We’re building strong support in the New York Assembly for the copay accumulator bill, but we need your help! Take 60 seconds to fill out our quick and easy to use form to email Assembly [...]

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Young Adult Advocacy Summit

Are you a young adult interested in advocacy and making a difference? Sign up for HFA’s 2022 Young Adult Advocacy Summit! If you are between the ages of 18 and 30 with a bleeding disorder, [...]

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Washington Days 2022

NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer [...]

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READY Teen Retreat

The Virtual Regional Education Advocacy Development for Youth (READY) Teen Retreat is a free leadership program that teaches teens the ins and outs of advocacy and gives participants the [...]

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Virtual Albany Days

Join the New York State Bleeding Disorders Coalition for Virtual Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and [...]

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Virtual Advocacy Day

Virtual Albany Day The New York State legislature is reopening for just a few days and we need your help advocating at our Virtual Albany Day! Join us on Tuesday, July 21 for our Virtual Albany [...]

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NYCHC Responds To Injustice

NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers to [...]

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