NYCHC Responds To Injustice
NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers to [...]
Maria’s Story: Struggling with COVID-19
Many community members have been struck by the coronavirus. Maria, her husband, and three children live in Queens, and four of them contracted the virus. Read their story below. Read in English [...]
NYSBDC Data Survey
The New York State Bleeding Disorders Coalition (NYSBDC) is conducting an anonymous survey to collect demographic data and information on the needs of the bleeding disorders community across New [...]
“We’re Here” Virtual Game Night
We’re here for you during this difficult time. We are excited to introduce “We’re Here,” a new virtual series to help families in our community come together on a weekly basis. Join us on Friday, [...]
Advocacy Skills Training Program
*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update. For the first time, the New [...]
