On Friday, April 30 at 6:30 PM, we are hosting a paint night for families in the New York City bleeding disorders community. Artist Judy Cohen will lead us over Zoom in painting during the event. [...]
NYC Well New York City set up a free, confidential, mental health support line to connect you with real counselors. All services are offered 24/7. Their website features many helpful resources [...]
NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers to [...]
Many community members have been struck by the coronavirus. Maria, her husband, and three children live in Queens, and four of them contracted the virus. Read their story below. Read in English [...]
