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In The Know

Our 3rd Annual In The Know Treatment Decision Making Summit will be held on Sunday, April 2 from 10 AM to 1 PM at the NYCHC Office (entrance at 205 […]

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NY State Medicaid Unwinding

Attention all New York Medicaid, Child Health Plus, and Essential Plan enrollees: you MUST take action to renew your health insurance! New York state resumed eligibility reviews on February 1, [...]

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Hemophilia B Scholarship

The B More Scholarship is open to anyone with Hemophilia B who is pursuing a degree or certification after graduation from High School, even if you’ve been out of school […]

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HFA Symposium Registration Open

The Hemophilia Federation of America (HFA) is heading to Orlando for what is shaping up to be their biggest and best Symposium yet! Join them from April 13 to April 16, 2023 […]

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NHF BDC Registration Open

NHF is pleased to announce the launch of the 2023 Travel Grants for their Bleeding Disorders Conference from August 17 – August 19 at the National Harbor, Maryland. Please click […]

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NOW Conference Registration Open

Don’t miss out on this exciting opportunity to be part of the April 2023 NOW Conference, being held in Phoenix, AZ at the Hilton Phoenix Resort at the Peak from […]

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Albany Days

Join bleeding disorders advocates from across New York for Albany Days from Saturday, March 18 to Monday, March 20. Whether you are new to advocacy, or you’re an experienced advocate, you [...]

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Cocinando en Familia

NYCHC invita a las familias latinas a preparar galletas para celebrar el Día de San Valentin via zoom. Domingo 12/Feb/23 5 Pm Confirma tu asistencia con Nelly Miranda antes del […]

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Infusion Training & Lunch

Join us on Sunday, January 29, from 11:30 AM to 2 PM for our Infusion Training and Lunch. This will be held at the NYCHC Office. The entrance is located at 205 […]

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FDA Approves Gene Therapy

On November 22, 2022, the U.S. Food and Drug Administration (FDA) approved the first gene therapy treatment for hemophilia! Hemgenix is a one-time gene therapy product given as a single […]