In The Know Summit

 In News, NYCHC Events, Spring Event, Upcoming events, VWD

To celebrate World Hemophilia Day, on Saturday, April 17 and Sunday, April 18, we will host our second annual In The Know: Treatment Decision Making Summit. Programming will take place from 10 AM to 12:45 PM on Saturday, and from 10 AM to 12 PM on Sunday.

This virtual event will provide the bleeding disorders community of NYC with a variety of educational sessions focused on both current and emerging treatments in our community. Tracks will be held for Hemophilia A, Hemophilia B, and vWD. We will also have sessions focusing on emerging therapies like Gene Therapy in addition to panels with patients and doctors, giveaways, and more!

See our agenda below!

Register Here

Treatment Decision Making Sessions (all bleeding disorders)

Saturday, April 17

    • 10:00 AM: Treatment Journeys: From Obstacles to Opportunities (Patient panel featuring five local community members)
    • 10:40 AM: Building Your Decision Compass

Hemophilia A Sessions

Saturday, April 17

    • 10:40 AM: Gene Therapy Research: Understanding the Science
    • 11:00 AM: NUWIQ – A Natural Choice
    • 11:20 AM: Session Title Coming Soon
    • 12:00 PM: PK+You and Learning about Head-To-Head Studies
    • 12:25 PM: New Treatment Option for the Hemophilia A or B Inhibitor Community

Sunday, April 18

    • 10:00 AM: Move Beyond the Threshold – Esperoct® Can Give You High Factor Levels
    • 10:20 AM: Understanding Gene Therapy Research and Its Potential Application to Hemophilia
    • 11:00 AM: You Count on Your Joints More Than You Think

Hemophilia B Sessions

Saturday, April 17

    • 12:00 PM: New Treatment Option for the Hemophilia A or B Inhibitor Community

Sunday, April 18

    • 10:40 AM: Session Presented by the Coalition for Hemophilia B
    • 11:00 AM: Take Control to a High Level – Rebinyn ®: Reach for High Factor Levels
    • 11:20 AM: New Treatment Option for the Hemophilia A or B Inhibitor Community

Special Session for Inhibitors (Hemophilia A & B)

Saturday, April 17 at 12:25 PM: New Treatment Option for the Hemophilia A or B Inhibitor Community

Sessions for the vWD Community 

Sunday, April 18 from 10:20 AM – 11:40 AM: Let’s Talk VWD: Join us as we discuss VWD, learn about the latest community news, share challenges and successes along with tips and tricks for living with this bleeding disorder.

Spanish Session for Hemophilia A

Sunday, April 18 from 10 AM – 10:45 AM: Pruebelo: Un tratamiento diferente para la hemofilia A

Event Sponsors

We are thankful to these companies for supporting this event:

Platinum Sponsors

Gold Sponsors

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