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The bill mandating coverage for outpatient clotting factor under the state’s Child Health Plus program has just passed in the New York State Assembly. It’s now in the Finance [...]

The New York City Hemophilia Walk is being promoted on the largest electronic advertising sign in the world, the Walgreens sign in Times Square! This was arranged through our good […]

CLICK HERE TO REGISTER  OR SET UP A TEAM OR PERSONAL PAGE With less than three months to go until our June 1 Walk date, now is a great time […]

The New York City Hemophilia Walk was recognized by NHF as the first and most successful of the Walks that are now held across the country. Today we received this […]

On Sunday, December 30 at 6:30am, NYCHC will be featured on the public affairs show “Plugged-in to Long Island.” The show can be heard throughout much of the New York […]

A promising new gene therapy study for hemophilia B is getting started and Mount Sinai will be one of two initial study sites.  Asklepios Biopharmaceutical (AskBio) in collaboration with [...]

More than 300 community members came to the NYCHC Annual Meeting on Sunday, December 2nd starting at 10:00am at the New York Marriott Downtown. Participants heard a Chapter update from […]

The New York City Hemophilia Chapter held its 2012 Gala on Saturday, December 1st at Bayard’s in New York City’s fabled  downtown district. During the Gala, the families of three [...]

Our thoughts are with all families who were harmed in any way by Hurricane Sandy.  There are a variety of resources available for affected New Yorkers which can be found […]

Hurricane/Tropical Storm Sandy is expected to hit New York City beginning Monday morning. We encourage you to be prepared and stay informed. You should have water, non-perishable food, a [...]