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Living with a rare disease means managing unique challenges, including frequent doctor visits, rigorous treatment regimens and hospitalizations, and exposure risks. While quality and duration of [...]

A nuestras familias latinas las invitamos a participar en una presentación educativa acompañada por una deliciosa cena gratuita, completamente en español el lunes 13 de marzo a las 6:30 p. m. en [...]

Join us for an educational dinner on Monday, March 13 at 6:30 PM at Market Table (54 Carmine St., New York, NY 10014). In addition to enjoying an incredible meal, attendees will also […]

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Join us on Sunday, May 7, from 11:30 AM to 2 PM for our Infusion Training and Lunch. This will be held at the NYCHC Office. The entrance is located at 205 […]

Bring your crew to the Zoo for a roaring good time! Join us for a fun day at the Bronx Zoo on Sunday, April 30, beginning at 11:30 AM. This event […]

Attention all New York Medicaid, Child Health Plus, and Essential Plan enrollees: you MUST take action to renew your health insurance! New York state resumed eligibility reviews on February 1, [...]

The B More Scholarship is open to anyone with Hemophilia B who is pursuing a degree or certification after graduation from High School, even if you’ve been out of school […]