NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers […]
Many community members have been struck by the coronavirus. Maria, her husband, and three children live in Queens, and four of them contracted the virus. Read their story below. Read […]
The New York State Bleeding Disorders Coalition (NYSBDC) is conducting an anonymous survey to collect demographic data and information on the needs of the bleeding disorders community across New [...]
We’re here for you during this difficult time. We are excited to introduce “We’re Here,” a new virtual series to help families in our community come together on a weekly […]
*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update. For the first […]
