In The Know Summit
Our In The Know Innovation Summit will be held on Sunday, April 12 from 10 AM to 2 PM at the NYC Seminar and Conference Center (114 W 26th St 3rd Floor, New York, NY 10001).
With treatment options changing rapidly for our community, and some newly-approved options now on the market, it is extremely important for patients and families to stay informed of the latest options available to them. This Summit will allow bleeding disorder patients to learn more about specific products or treatment options in order to help our community make informed decisions regarding their choice of care.
Agenda Overview
- 10:00 AM – Fun Innovation Challenge Game
- 10:30 AM – Protecting Bone and Joint Health
- 11:30 AM – Funding Innovation: National Update
- 12:00 PM – Lunch
- 12:30 PM – Wearable Tech for Women with Bleeding Disorders
- 1:00 PM – Patient Panel: Lived Experience with Innovation
- 1:30 PM – The Science of the New Rebalancing Agents
Kids and Teens Field Trips:
- Quiz Boxing where participants step into the arena and experience the thrill of a TV-style quiz game.
- Jurassic Escape Room: An evil group is cloning dinosaurs, and we are the prey! Avoid detection, stop the cloning, don’t become lunch for the dinosaurs.

Agenda Overview
- Sessions will focus on Hemophilia A, Hemophilia B and VWD
- Medical Panel: Scientific Update & Future Treatments
- New Product Showcase
- Kids and Teens will have their own separate age-appropriate educational sessions and fun activities
- Teens can attend adult sessions if they wish
- Lunch will be provided for all attendees

Registration
- Please register before Friday, April 3.
- The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
- Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.
Agenda Overview
- Infusion Training and Refresher
- Sessions will focus on Hemophilia A, Hemophilia B and VWD
- General sessions focusing on shared-decision making with providers, patient empowerment, sports and bleeding disorders, and more
- Kids will create flip books and bracelets before building robots in the afternoon
- Teens will find their voice through improv and learn more about advocacy with an interactive challenge. Teens can also attend adult sessions if they wish
- Lunch will be provided for all attendees
