In The Know Summit
Our 4th Annual In The Know Treatment Decision Making Summit will be held on Saturday, April 6 from 10 AM to 2:30 PM at the NYCHC Office (enter at 205 W. 37th St., New York, NY 10018).
With treatment options changing rapidly for our community, it is extremely important for patients and families to stay informed of the latest options available to them. This Summit will allow bleeding disorder patients to learn more about specific products or treatment options in order to help our community make informed decisions regarding their choice of care.
Agenda Overview
- Infusion Training and Refresher
- Sessions will focus on Hemophilia A, Hemophilia B and VWD
- General sessions focusing on shared-decision making with providers, patient empowerment, sports and bleeding disorders, and more
- Kids will create flip books and bracelets before building robots in the afternoon
- Teens will find their voice through improv and learn more about advocacy with an interactive challenge. Teens can also attend adult sessions if they wish
- Lunch will be provided for all attendees
Registration
- Please register before March 29.
- The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
- Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.
Our 4th Annual In The Know Treatment Decision Making Summit will be held on Saturday, April 6 from 10 AM to 3 PM at the NYCHC Office (enter at 205 W. 37th St., New York, NY 10018).
With treatment options changing rapidly for our community, it is extremely important for patients and families to stay informed of the latest options available to them. This Summit will allow bleeding disorder patients to learn more about specific products or treatment options in order to help our community make informed decisions regarding their choice of care.
This event will feature:
- Bleeding Disorders Innovation Update
- Sessions on treatment options for hemophilia A, hemophilia B, and Von Willebrand’s Disease (VWD)
- Child and Teen activities
- Lunch will be provided
Registration
- Please register before March 29.
- The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
- Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.
