Join us on Wednesday, February 28 at 7 PM for a webinar that will transform the way you think about research and the impact it can have on your life as someone with a bleeding disorder. Dr. Jill Johnsen, a renowned physician scientist from the Washington Center for Bleeding Disorders, will take us through an […]
Join us on Rare Disease Day, Thursday, February 29 at 7 PM, for a unique and fun evening of Diamond Painting over Zoom as we celebrate the strength and resilience of our community. Just as diamonds are some of the rarest gems on earth, so too are the experiences of those living with a bleeding disorder. […]
You’re invited to the New York City Premiere of the inspirational film, Redefining Impossible: a film that highlights the stories of five athletes living with hemophilia and how they refused to let their bleeding disorder stop them from participating in the activities they love! Join us for this VIP Experience at Angelika Film Center (18 W. Houston St), […]
Join bleeding disorders advocates from across New York State for Albany Days from Saturday, March 16 to Monday, March 18. Whether you are new to advocacy, or you're an experienced advocate, you can help us make a difference! This three-day program will feature a fun and interactive advocacy training on Saturday and Sunday followed by meetings […]
Join us on Thursday, March 21 at 7 PM for a webinar focusing on guiding your child through the early years of life with a bleeding disorder with an emphasis on the mental health related aspects that come along with a new diagnosis. Dr. Regina Legere-Buccellato, a Clinical Psychologist and mom of two sons with […]
