The National Hemophilia Foundation (NHF) will host the annual Washington Days advocacy event March 7-9, 2018 on Capitol Hill in Washington, DC. NHF’s Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are important to them. Last year’s Washington Days had more than 500 volunteer advocates from 47 states that […]
As a member chapter of the New York State Bleeding Disorders Coalition, we unite with other chapters in Albany annually to advocate for the needs of the bleeding disorders community. Individuals and families are encouraged to participate in this legislative day. Prior to the session, attendees receive training and become more familiar with speaking about […]
The New York City Hemophilia Chapter invites you to join us at our Manhattan Legislator/Community Breakfast, the first in a series of opportunities to directly connect with legislators from your area. This breakfast will be centered around the topic of pre-existing conditions. Come share your story, partake in a discussion about changes in health care […]
The National Hemophilia Foundation (NHF) is once again hosting Washington Days from February 26 to February 28, 2020! This event is an excellent opportunity for you to advocate on important issues on a national and local level, learn how the legislative process works, and meet other community members from across the country. Learn more about Washington Days here. Advocacy Captains do […]
*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update. The Regional Education Advocacy Development for Youth (READY) Teen Retreat is a free leadership program that teaches teens the ins and outs of advocacy and gives participants the […]
*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update. For the first time, the New York State Bleeding Disorders Coalition is offering an Advocacy Skills & Knowledge Training Program open to adults from all over New York […]
*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update. Coalition Chapters unite in Albany annually to advocate for the needs of the bleeding disorders community. Individuals and families are encouraged to participate in this legislative day. During […]
In our community, every patient has a different story. Whether you have hemophilia, vWD, or any other type of bleeding disorder, this has likely caused some major headaches in your life. But, as we've seen repeatedly, it can also allow our community members to flourish, make new connections, and do things they never thought would […]
Webinar - Advocacy: The Other Side of the Desk The New York State Bleeding Disorders Coalition is holding a Webinar on Friday, June 26 at 10 AM. This will be a conversation with elected officials in the bleeding disorders community about advocacy from both sides of the table. Speakers include: Randi Clites represents Ohio’s 75th House District. She began her advocacy work […]
Virtual Albany Day The New York State legislature is reopening for just a few days and we need your help advocating at our Virtual Albany Day! Join us on Tuesday, July 21 for our Virtual Albany Day as advocates from all over New York State mobilize and advocate in support of the Prior Authorization bill. Participating takes 15 minutes […]
