Webinar – Advocacy: The Other Side of the Desk
The New York State Bleeding Disorders Coalition is holding a Webinar on Friday, June 26 at 10 AM. This will be a conversation with elected officials in the bleeding disorders community about advocacy from both sides of the table. Speakers include:
- Randi Clites represents Ohio’s 75th House District. She began her advocacy work after her son was diagnosed with a rare bleeding disorder, then went on to serve as the Associate Director of the Northern Ohio Hemophilia Foundation and the Advocacy Coordinator for the Ohio Bleeding Disorders Council.
- Vaughn Ripley has hemophilia and currently serves on the Brunswick City Council in Maryland. Vaughn previously served as Advocacy Chair on the Hemophilia Foundation of Maryland’s Board of Directors.
- Jeremy Griffin is the Executive Director of the New York City Hemophilia Chapter and has been a tireless advocate for our community. Jeremy also serves on the Oradell School Board in New Jersey.