For the first time, the New York State Bleeding Disorders Coalition is offering an Advocacy Skills & Knowledge Training Program open to adults from all over New York State with three years of advocacy experience or less. You will receive a special introductory training on the ins-and-outs of advocacy, a comprehensive review of the issues, preparing your elevator pitch, effective story-telling, and the legislative process.
You will then have the opportunity to utilize your advocacy skills when we go to the Capital as a part of Albany Days on March 16th.
Coalition Chapters unite in Albany annually to advocate for the needs of the bleeding disorders community. Individuals and families are encouraged to participate in this legislative day.
During a pre-meeting, attendees become more comfortable with the issues and receive various training tools and resources enabling them to meet their legislators (or representatives) to express their views. Throughout the event, families learn more about the legislative process, and meet other families navigating through the same health care issues.
Participants have the opportunity to meet face-to-face with lawmakers and staff who shape statewide healthcare policy, and become more informed on critical issues that affect continued access to quality care and learn effective grassroots advocacy techniques. This productive and informative day offers a unique experience for members and families of the bleeding disorders community to work together for the good of the community.
You must live in New York State and either have a bleeding disorder, be a carrier, or be a family member of someone with a bleeding disorder in order to attend.
***If you register for the Advocacy Skills & Knowledge Training Program, you do not need to additionally register for Albany Days.***
Registration closes on Friday, February 21st, 2020.
If you have any questions, please contact Lindsay Cox, the New York State Bleeding Disorders Coalition’s Coalition Manager, at [email protected].