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What does Health Care Reform and the Affordable Care Act mean for me? The Affordable Care Act (ACA), sometimes called Obamacare, is Federal legislation that substantially expands insurance [...]

Families affected by bleeding disorders face particular issues ranging from how to communicate key information to teachers and other members of a school’s staff, to creating an IEP or 504 […]

NYCHC received the following Medical Advisory from the National Hemophilia Foundation (NHF) regarding a voluntary recall of certain lots of Monoject™ prefill flush syringes due to the syringes [...]

  Two Great Annual Events – One Great Weekend Together!   NYCHC 2013 Gala Saturday, November 23   Cocktails at 5:00 PM Dinner at 6:00 PM   At the Historic […]

NYCHC is excited to invite all Chapter families and individuals to an end-of-summer Dinner and Movie Screening in Crocheron Park on Tuesday, August 27th at 6:30 PM. This free program […]

Paul Newman’s Hole in the Wall Gang Camp will host its 2013 Hemophilia Family Weekend from September 20-22 in Ashford, CT. The weekend features fun camp activities for the whole […]

On Wednesday, July 17, New York Governor Andrew M. Cuomo announced that the Department of Financial Services (DFS) has approved health insurance plan rates for 17 insurers seeking to offer […]

It is important and vital that women who are symptomatic carriers, have hemophilia, von Willebrand Disease (vWD), or other rare clotting conditions have a voice in the bleeding disorders [...]

The bill mandating coverage for outpatient clotting factor under the state’s Child Health Plus program (S2186/A0962) has just passed unanimously in the New York State Senate. Although there [...]

The bill mandating coverage for outpatient clotting factor under the state’s Child Health Plus program has just passed in the New York State Assembly. It’s now in the Finance [...]