Uncategorized

Whether it’s about how to set limits, which television programs to allow in the home, or who infuses your child, parents often find themselves on different pages when it comes […]

What does Health Care Reform and the Affordable Care Act mean for me? The Affordable Care Act (ACA), sometimes called Obamacare, is Federal legislation that substantially expands insurance [...]

Families affected by bleeding disorders face particular issues ranging from how to communicate key information to teachers and other members of a school’s staff, to creating an IEP or 504 […]

NYCHC received the following Medical Advisory from the National Hemophilia Foundation (NHF) regarding a voluntary recall of certain lots of Monoject™ prefill flush syringes due to the syringes [...]

  Two Great Annual Events – One Great Weekend Together!   NYCHC 2013 Gala Saturday, November 23   Cocktails at 5:00 PM Dinner at 6:00 PM   At the Historic […]

NYCHC is excited to invite all Chapter families and individuals to an end-of-summer Dinner and Movie Screening in Crocheron Park on Tuesday, August 27th at 6:30 PM. This free program […]

Paul Newman’s Hole in the Wall Gang Camp will host its 2013 Hemophilia Family Weekend from September 20-22 in Ashford, CT. The weekend features fun camp activities for the whole […]

On Wednesday, July 17, New York Governor Andrew M. Cuomo announced that the Department of Financial Services (DFS) has approved health insurance plan rates for 17 insurers seeking to offer […]

It is important and vital that women who are symptomatic carriers, have hemophilia, von Willebrand Disease (vWD), or other rare clotting conditions have a voice in the bleeding disorders [...]

The bill mandating coverage for outpatient clotting factor under the state’s Child Health Plus program (S2186/A0962) has just passed unanimously in the New York State Senate. Although there [...]