Advocacy

NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers […]

The New York State Bleeding Disorders Coalition hosted a webinar Thursday, May 14 at 2 PM for community members. This webinar provided an update on our advocacy work and community […]

The New York State Bleeding Disorders Coalition (NYSBDC) is conducting an anonymous survey to collect demographic data and information on the needs of the bleeding disorders community across New [...]

Advocates from the bleeding disorders community, including two familiar faces to our chapter, recently shared some of their most important tips regarding advocacy! Whether you are preparing to [...]

*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update.   For the first […]

*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update.   Our Chapter is […]

*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update.   The Regional Education […]

We’re hosting an educational dinner to help people in the bleeding disorders community recognize and discuss how they can be self-advocates in all areas of life. Join us for a free […]