Advocacy News

The Virtual Regional Education Advocacy Development for Youth (READY) Teen Retreat is a free leadership program that teaches teens the ins and outs of advocacy and gives participants the [...]

Join the New York State Bleeding Disorders Coalition for Virtual Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and [...]

Virtual Albany Day The New York State legislature is reopening for just a few days and we need your help advocating at our Virtual Albany Day! Join us on Tuesday, July 21 for our Virtual Albany [...]

NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers to [...]

The New York State Bleeding Disorders Coalition hosted a webinar Thursday, May 14 at 2 PM for community members. This webinar provided an update on our advocacy work and community needs during [...]

The New York State Bleeding Disorders Coalition (NYSBDC) is conducting an anonymous survey to collect demographic data and information on the needs of the bleeding disorders community across New [...]

Advocates from the bleeding disorders community, including two familiar faces to our chapter, recently shared some of their most important tips regarding advocacy! Whether you are preparing to [...]

*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update.   For the first time, the New [...]