Advocacy News

Take 10 Seconds To Make A Difference Last year, lawmakers banned accumulator adjusters in New York! This bill, while incredibly important, only protects patients and families on NY ACA [...]

Attention all New York Medicaid, Child Health Plus, and Essential Plan enrollees: you MUST take action to renew your health insurance! New York state resumed eligibility reviews on February 1, [...]

Join bleeding disorders advocates from across New York for Albany Days from Saturday, March 18 to Monday, March 20. Whether you are new to advocacy, or you’re an experienced advocate, you [...]

Applications to attend the National Hemophilia Foundation’s Washington Days will be accepted until Monday, January 30! Washington Days will be held from March 8 to March 10. This is an […]

On November 22, 2022, the U.S. Food and Drug Administration (FDA) approved the first gene therapy treatment for hemophilia! Hemgenix is a one-time gene therapy product given as a single […]

We’re building strong support in the New York Assembly for the copay accumulator bill, but we need your help! Take 60 seconds to fill out our quick and easy to use form […]

Are you a young adult interested in advocacy and making a difference? Sign up for HFA’s 2022 Young Adult Advocacy Summit! If you are between the ages of 18 and […]

Northwell Health Community Relations, Cohen Children’s Medical Center, and The Northwell Health Institute for Nursing have partnered to host an informative educational and clinical series to [...]

NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 […]