WFH Conducts Survey on Consumer Access to Clinical Trials

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The World Federation of Hemophilia (WFH) is conducting a survey asking consumers and their families, about their perceptions of the challenges of conducting clinical research in hemophilia treatment centers (HTCs). This includes patients’ access to and attitudes towards trials of new products. This survey is for consumers only; a separate survey has been sent to clinicians. The answers will help WFH understand how they may best support HTCs and consumers interested in research, thereby improving the care of people with bleeding disorders globally.

WFH has requested that as many consumers as possible fill out the brief survey which should only take five minutes. It can be completed any time between now and March 15, and they will be reporting on their findings at a later time.

If you would like to assist in this effort, please click here to complete the survey.

For more information about this and other WFH efforts, please visit their website at

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