Events
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Calendar of Events
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2 events,
Virtual Washington Days
NHF’s Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are important to them. In 2020, Washington Days had more than 450 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and access to skilled nursing facilities (SNFs). […]
3 events,
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Blood Brothers Chat
Blood Brothers Chat
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder. Join us as we come together as a community to share our experiences and connect with each other. Join Here
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Cocinando en Familia
Cocinando en Familia
El Chapter de la Hemofilia de NY (NYCHC) te invita a participar a nuestro próximo evento “Cocinando en Familia” este martes 2 de Marzo del 2021 de 6PM a 8PM dirigido para la comunidad latina (en español). Te pedimos que te registres aquí para que te enviemos la receta, el enlace del zoom y los ingredientes. No […]
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Virtual Game Night
Virtual Game Night
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month! Join us on Friday, March 5 at 7 PM as families from our communities come together for a night full of fun, community, and laughs. Register Here
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Blood Brothers Chat
Blood Brothers Chat
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder. Join us as we come together as a community to share our experiences and connect with each other. Join Here
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1 event,
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Teen Escape Room
Teen Escape Room
Join us on Friday, March 12 at 7 PM for a Virtual Escape Room for teenagers within the New York City bleeding disorders community alongside the Hemophilia Association of New Jersey (HANJ)! In teams of four, participants will race to discover the mystery left behind by their best friend. She says she has a secret […]
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Blood Brothers Chat
Blood Brothers Chat
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder. Join us as we come together as a community to share our experiences and connect with each other. Join Here
0 events,
1 event,
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Moms and Women Community Chat
Moms and Women Community Chat
On Thursday, March 18 at 1 PM, we are hosting our next virtual chat for moms and women with a bleeding disorder. Join us as we come together as a community to share our experiences and connect with others. Join The Chat Here
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2 events,
Virtual Albany Days
Join the New York State Bleeding Disorders Coalition for Virtual Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and families are encouraged to participate in this legislative day. This will take place from Sunday, March 21 to Tuesday, March 23. During a pre-meeting […]
Virtual READY Teen Retreat
The Virtual Regional Education Advocacy Development for Youth (READY) Teen Retreat is a free leadership program that teaches teens the ins and outs of advocacy and gives participants the opportunity to use these skills at the State level. This will take place on Saturday, March 20 before taking part in Virtual Albany Days from Sunday, […]
2 events,
2 events,
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Blood Brothers Chat
Blood Brothers Chat
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder. Join us as we come together as a community to share our experiences and connect with each other. Join Here
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1 event,
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Moms’ Paint & Sip Night
Moms’ Paint & Sip Night
On Friday, March 26 at 6:30 PM, we are hosting a paint and sip night for moms within the New York City bleeding disorders community. Artist Judy Cohen will lead us over Zoom in painting during the event. All are welcome to participate: whether you consider yourself an artist or have never picked up a paintbrush […]
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2 events,
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Blood Brothers Chat
Blood Brothers Chat
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder. Join us as we come together as a community to share our experiences and connect with each other. Join Here
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Inhibitor Chat
Inhibitor Chat
This series of chats are designed to keep our inhibitor families connected and informed about the latest science and research around inhibitors. Patients will share real world experiences of how their current treatment is working and outline areas for future research and development. The setting will be informal, but guest speakers will be invited from […]
1 event,
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vWD Community Chat
vWD Community Chat
On Wednesday, March 31 at 1 PM, we are hosting our next virtual chat for community members with vWD. Join us as we come together as a community to share our experiences and connect with others. Join The Chat Here
1 event,
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Virtual Game Night
Virtual Game Night
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month! Join us on Friday, April 2 at 7 PM as families from our communities come together for a night full of fun, community, and laughs. Register Here
