The National Hemophilia Foundation (NHF) is once again hosting Washington Days from February 26 to February 28, 2020! This event is an excellent opportunity for you to advocate on important issues on a national and local level, learn how the legislative process works, and meet other community members from across the country. Learn more about Washington Days here. Advocacy Captains do […]
*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update. The Regional Education Advocacy Development for Youth (READY) Teen Retreat is a free leadership program that teaches teens the ins and outs of advocacy and gives participants the […]
*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update. For the first time, the New York State Bleeding Disorders Coalition is offering an Advocacy Skills & Knowledge Training Program open to adults from all over New York […]
*** This event has been postponed due to the Coronavirus (COVID-19) *** Read our statement about the postponement here. Please check back soon for an update. Coalition Chapters unite in Albany annually to advocate for the needs of the bleeding disorders community. Individuals and families are encouraged to participate in this legislative day. During […]
In our community, every patient has a different story. Whether you have hemophilia, vWD, or any other type of bleeding disorder, this has likely caused some major headaches in your life. But, as we've seen repeatedly, it can also allow our community members to flourish, make new connections, and do things they never thought would […]
Christopher’s Hemophilia Benefit is taking place on Friday, March 27, 2020 at 7 PM at The Coral House, located 70 Milburn Ave, Baldwin NY 11510. This incredible event will feature an open bar, hors d’oeuvres, and a sit down dinner. All funds raised at this event will go toward Christopher’s Walk Team: Christopher’s Crew!
On Thursday, April 2 at 9:30 AM ET we are teaming up with the New England Hemophilia Association (NEHA) to host a Virtual Coffee Cafe for Moms and Women with a bleeding disorder! These Virtual Coffee Chats allow our community members to stay connected during this public health emergency, while also meeting others from the bleeding […]
