Coronavirus (COVID-19) Update
As we navigate the current health crisis together, our primary concern is, and has always been, the health and wellness of the individuals and families that we serve.
We’re here to help you during this time. Please tell us what your needs are and how we can help by completing this quick survey. This will help us plan for how to help our community during this time.
All members of our Chapter’s Staff will be working remotely during the foreseeable future. The best way to contact us is by email at [email protected], or by contacting each staff member directly by email or phone.
The CDC has recommended that all gatherings over 50 people be postponed. More information will be provided as we reschedule these events.
To see an updated calendar of our events, click here.
Even while postponing these in-person events, our Chapter’s mission is to foster a sense of community for people affected by bleeding disorders, and we are going to continue doing so during this crisis.
Being connected with each other is crucial, as uncertainty and anxiety are very high. Taking care of your emotional well-being, prioritizing self-care, and staying engaged with others in your life are among the most critical things you can do during this time.
Resources For Our Community
We have compiled multiples lists of resources to help you and your family during this time period from other national organizations within the bleeding disorders community.
- We are able to offer Financial Assistance to active families in our chapter who are in need. Click here to learn more.
- The Hemophilia Association of New York has launched a Direct Support program that provides Emergency Financial and Insurance Assistance to community members in need. Click here to learn more or call (212) 682-5510 with any questions.
- National Hemophilia Foundation’s Medical Science Advisory Council Letter.
- National Hemophilia Foundation’s Statement on Home Delivery and Refills.
- NHF and HFA Town Hall Webinar on COVID-19.
- Hemophilia Federation of America’s Online COVID-19 Hub.
- Questions about medication supply? Read an update from manufacturers here.
- World Federation of Hemophilia List of Resources and Recommendations.
- World Federation of Hemophilia Webinar: “Bleeding Disorders and COVID-19“
- Resources on smoking and vaping.
New York City COVID-19 Services and Resources:
Due to the impact of COVID-19 on New York City’s workforce, the City of New York has developed a list of resources for those who may be unemployed due to COVID-19 or are seeking additional assistance.
This includes: employment resources, food assistance, health and medical information, financial and rent assistance, and more. See resources here.
The New York City Council also released a thorough list of resources. See resources here.
New York City Mental Health Information:
New York City set up a free, confidential, mental health support line to connect you with real counselors. All services are offered 24/7. To access this service:
- Text ‘WELL‘ to 65173
- Call 1-888-NYC-WELL
- Chat with them on their webpage by clicking here
Other Health and Mental Health Resources:
- Creative way to help your kids understand why we need to wash our hands
- Self-Isolation and Mental Health
- How to protect your Mental Health during this pandemic
- Controlling Anxiety during the COVID-19 emergency
- Fighting Loneliness during Self-Isolation
At-Home Activities and Resources:
- 12 Exercises You Can Do From Home and Get In Shape
- At-Home Ideas To Keep Kids Busy (And Adults Sane) During Coronavirus
- 12 Famous Museums Offering Virtual Tours
- The Berliner Philharmoniker Has Opened Its Digital Library to Everyone
- The Metropolitan Opera is Streaming Performances
- Tips on Working from Home