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  Earlier this week we shared news stories about how New York City Hemophilia Chapter’s own Seth Patsakos received an autographed football from his beloved Denver Broncos at the [...]

Washington Days, the National Hemophilia Foundation’s annual grassroots advocacy event, will take place from Wednesday, February 26 until Friday, February 28, 2014 at the Crystal Gateway [...]

Today (December 3) is #GivingTuesday™ (#GT), part of a movement to create a national day of giving on the Tuesday following Thanksgiving, Black Friday and Cyber Monday. In the same […]

PLEASE REGISTER NOW!                                 (CLICK HERE TO REGISTER NOW)   Thank you to everyone who registered […]

Applications are now available for the Adaptive Winter Sports Program at Double H Ranch. The program features instruction in skiing and snowboarding for community youth ages 6-16 and their [...]

Your efforts paid off! The bill mandating coverage for outpatient clotting factor under the state’s Child Health Plus program (S2186/A0962) has just been signed by Governor Cuomo and is now [...]

The bill mandating coverage for outpatient clotting factor under the state’s Child Health Plus program, which passed in the New York State Legislature in June with broad bipartisan support, [...]

Whether it’s about how to set limits, which television programs to allow in the home, or who infuses your child, parents often find themselves on different pages when it comes […]

What does Health Care Reform and the Affordable Care Act mean for me? The Affordable Care Act (ACA), sometimes called Obamacare, is Federal legislation that substantially expands insurance [...]