Advocate for Your Community: Join Us for Albany Hemophilia Days on March 6-7

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Albany Hemophilia Days, an annual grassroots advocacy effort at the New York State Capitol, will take place on Sunday and Monday, March 6-7, 2011. Families and individuals affected by bleeding disorders from across the state will be participating. This is your opportunity to learn about key state issues affecting your family and the community at large. More importantly, it’s a chance for you to tell your own story to our elected representatives in Albany and their staff members, helping them understand your genuine needs and concerns. This year, we will be focusing in particular on getting coverage for outpatient (home use) clotting factor under programs like Child Health Plus and Family Health Plus. If you’ve ever had a challenge getting or keeping your insurance coverage, this is your chance to tell your story.

The program will start on the afternoon/evening of Sunday, March 6th with dinner and a review of key issues and strategies. On Monday the group will head to the State Capitol for a full day of face-to-face meetings with members of the Assembly and Senate and their staff to share personal stories and ask for support. To see the full schedule of events, click here.

Rooms have been secured at the Desmond Hotel in Albany, where the Sunday events will also take place. Hotel and transportation costs for a limited number of participants will be covered, and dinner Sunday evening is also included. If you would like to join us or have questions, please send an email to Glenn Mones at [email protected].

Albany Hemophilia Days is an important way to advocate for your family and your community. Please join us!

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