Why We Walk: Oliver’s Crew

This article was originally published in our Summer 2026 Bleeding Times Magazine. See the entire magazine by clicking here.

Author: Kurt Wiesenmaier, Board of Directors

Our journey with the bleeding disorders community began in 2018 when our son, Oliver, was diagnosed with severe hemophilia A. While I had no family history of hemophilia, my wife Alison’s brother and several cousins are affected, and their family was heavily involved with the New England Hemophilia Association (NEHA).

Shortly after Oliver’s diagnosis, we sought out support and connection within the community. I reached out to NYCHC, and we quickly became involved—attending educational programs, bringing Oliver to events, and participating in chapter activities, including father-focused gatherings. One of the first individuals I met through NYCHC was Erin Cirelli, now NYCHC’s Board President, which marked the beginning of what would become a strong and meaningful connection to the organization.

For Alison and I, the Chapter has been especially impactful as a source of support, particularly as I did not come from a family with a history of hemophilia. Through NYCHC, we found a welcoming and knowledgeable community, and in turn, we’ve worked to ensure others feel that same sense of belonging. Our involvement grew naturally, and I joined the Board of Directors not long after becoming engaged with the chapter.

Since then, Alison and I have been dedicated advocates and fundraisers, inspired each year by the way this community comes together and supports one another. One of my favorite memories is from our very first Unite Walk in June 2019—watching Oliver receive his medal at the starting line. He was so proud! Another unforgettable Walk memory was a few years ago when the Walk was on Father’s Day, and we all went over to Citi Field after the Walk to go on the field and watch a game.

Beyond the impact on us, I’ve seen how valuable this community has been for Oliver. It has given him the opportunity to see and connect with other children who share similar experiences, helping him feel supported and less alone.

For those new to the community or new to the Walk, Alison and I offer simple but powerful advice: take it one step at a time. Participation doesn’t have to mean raising large sums of money; simply showing up and being part of the community is extremely meaningful in itself.