This time always brings up a variety of issues for any family with children. Families affected by bleeding disorders face particular issues ranging from how to communicate key information to teachers and other members of a school’s staff, to creating an IEP or 504 plan, and many more. Our national organizations have some great resources and information you may want to check out.
The Hemophilia Federation of America (HFA) has a “Back to School Toolkit” with a very wide variety of resources. CLICK HERE TO VIEW IT
The National Hemophilia Foundation (NHF) also has some excellent resources on its “Steps for Living” website.CLICK HERE TO VIEW THEM
Whether you are dealing with back to school issues, back to work issues, insurance issues, or anything else, NYCHC is here to help. Watch for details on more fun and informative programs and events in the near future, and please let us know if there’s anything we can do to help.