New York City Hemophilia Chapter offers a variety of ongoing programs and events for members of our community. If you don’t see a program or event that applies to you on this list, click here to contact us so we can better help you get involved.
In The Know Summit
In The Know Summit
This event helps you learn about treatment options.
Unite Walk
Unite Walk
In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. Since then, we've gathered each year to raise funds and awareness for bleeding disorders.
Education Day
Education Day
Education Day brings the entire bleeding disorders community together to learn, grow, connect, and have fun.
TORCH Teen Retreat
TORCH Teen Retreat
TORCH (Teen Opportunities and Resources for Community Health) is NYCHC’s teen program for teens ages 13-18 within the Greater NYC bleeding disorders community.
Unidos por la Sangre
Unidos por la Sangre
NYCHC has established a Latino Outreach Committee that runs events for Spanish-speaking bleeders and their families.
Women's Retreat
Women's Retreat
This weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more. The focus will be education, personal growth, and networking.
Advocacy
Advocacy
New York City Hemophilia Chapter is a member organization of the New York State Bleeding Disorders Coalition, a partnership of not-for-profit organizations dedicated to public advocacy...
Connections Program
Connections Program
NYCHC’s Connections Program matches families and individuals who are new to hemophilia, new to New York City, new to our Chapter.
VWD Program
VWD Program
Von Willebrand Disease (VWD) is the most common bleeding disorder in the world. It is estimated that 80,000 New Yorkers live with VWD and most do not even know.
Inhibitors
Inhibitors
Whether you’re a patient, caregiver, or a member of the support network, there are day to day challenges that come with having hemophilia with the added complication of an inhibitor.
Dads in Action
Dads in Action
Dads in Action is a program of the Hemophilia Federation of America offering support & education to fathers who have a bleeding disorder in their family.
