Courtney Rabb has worked in the nonprofit sector for over 20 years. She has expertise in fundraising, strategic planning, and board development. Courtney earned a bachelor’s degree from Brandeis University. She also has served on the board of The Mast Cell Disease Society since 2017.

As a symptomatic carrier of Hemophilia A, the mother of an 11-year-old son with Hemophilia A, and the granddaughter of a hemophiliac, she is passionate about the work of the NYC Hemophilia Chapter and the support and education it provides for all those living with or impacted by hemophilia. Courtney is a dedicated rare disease advocate and has personally felt the power of connecting with others who live shared realities. She is grateful for the opportunity to work alongside the board, staff, and volunteers of the NYC Hemophilia Chapter to help expand its positive impact on the hemophilia community.