Barbara Gordon, LCSW, MSW, MAT, is a clinical social worker, currently working as part of a comprehensive team in a specialized ear and throat program at New York Eye and Ear Infirmary of Mount Sinai. Although she grew up in NYC, Barbara raised her family in Rhode Island. She joined the board of directors of New England Hemophilia Association (NEHA) in the early aughts and was Vice President of the board through a difficult transition after a long-time and much beloved Executive Director retired. Barbara also served as NEHA’s liaison to the national community and the National Hemophilia Foundation (NHF) until NEHA had stable staff leadership.
Coming from a small state like Rhode Island, Barbara and her sons had direct access to their congressional delegation, and have gone to Washington Days and met with both U.S. Senators, their Congressman, and the offices staffs every year since 2002. Barbara has worked closely with NHF’s Washington representatives to advocate for increased or at least stable funding for HTCs and for health care reform legislation. Barbara joined the NHF board in 2009 and served two terms before rotating off the board at the end of 2015.
Barbara has twin sons, Sam and Max Cavas, who recently graduated college. Sam has severe hemophilia A.