Alan NeaigusBoard Member

    Alan Neaigus, PhD, grew up in London, England. He immigrated along with his family to the United States and lived in Los Angeles for many years. Alan studied at the University of California at Los Angeles, where he obtained a PhD in Sociology. The majority of his professional career has been in epidemiology and public health. Most recently, he directed research in the HIV Epidemiology Program at the New York City Department of Health and Mental Hygiene. Prior to this position, he was a Principal Investigator at National Development and Research Institutes in New York City. His area of research, for over 25 years, has mainly focused on the social and behavioral factors associated with HIV/AIDS and viral hepatitis in at-risk populations. Alan has held several academic positions including, until recently, a position as an Adjunct Associate Professor in the Department of Epidemiology at the Joseph L. Mailman School of Public Health at Columbia University. He has presented his research at professional and community-based meetings and in peer-reviewed journals.

    Alan has a strong interest in supporting the hemophilia and other bleeding disorders community. This has been influenced by his own personal history as a person with Hemophilia A and a late-onset inhibitor, as well as having family members affected by hemophilia. His life as a person with hemophilia has spanned major changes in the diagnosis, treatment and management of the disease. Recently, he was a discussant at the plenary Opening Session of the 2019 National Hemophilia Foundation (NHF) Inhibitor Summit in Seattle, and he is a member of the NHF Research Registry Stakeholder Advisory Group for the development of MyBDC, which focuses on patient-centered outcomes among people with bleeding disorders.

    Alan’s lifetime experience with hemophilia undergirds his belief that, in addition to receiving excellent medical care, it is important that those affected by hemophilia and other bleeding disorders join together to identify and advocate for their medical, health, and related support needs, and to promote their values, interests and well-being. As a board member of the NYCHC, Alan will draw on his experience and expertise in collaboration with other members of the board and the NYCHC to serve the New York City area bleeding disorders community.

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