Von Willebrand Disease (VWD) is the most common bleeding disorder in the world. It is estimated that 80,000 New Yorkers live with VWD and most do not even know.
Last year, we held our first VWD Retreat which featured opportunities to:
- Meet other community members affected by VWD
- Participate in discussions with local treatment center clinicians and other experts
- Learn strategies for dealing with the day to day challenges of living with VWD
- Share thoughts, experiences and ideas for strengthening this community
2018 events included the return of the VWD Retreat and an upcoming Women and Girls Retreat to be held on August 24-25 at the Hilton Westchester.
Contact us for more information about our VWD program or to learn how to get involved.