In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together we could make a difference for ourselves and our children. There was excitement in the air that first beautiful day, and the promise of a better tomorrow. Many of you were there with us, and many more joined in the years that followed.

The 2016 Walk teams raised over $313,616.00 as of June 7, 2016.

Hemophilia Walk

On June 5th, 2016, hundreds of bleeders, family, and friends filled Riverside Park to walk for bleeding disorders.  Over fifty teams walked this year!  Seventeen of these teams were VIP Teams, who raised over $3,000 each for the walk.  These teams received a grand welcome, complete with a red carpet, goody bag, picture frame, and trophy.

Another new addition for this year was celebration beads.  Each color bead signified a different type of person in the bleeding disorder community—for example, purple is hemophilia and red is a person with inhibitors.  Walkers proudly donned many colors to show their support!

We ended the day’s activities with a Holiday Party featuring breakdancers, a super fun photo booth, and Santa and his elves handing out gifts to the kids.

Right before kickoff, the chapter presented to Melissa Penn the Founder’s Award.  The award honors her efforts in starting the Walk here in New York, which has now spread to dozens of chapters across the country and raised over $15 million dollars in total over the years.  Hannah Marie Tokiwa, a 10-year-old girl with Von Willebrand Disease kicked off our walk, with a story of how she raised over $500 for bleeding disorders by making a lemonade stand.

Because of impending rain, all walkers participated in the 1 mile walk, with cheerleaders and Copiague Hip Hop team cheering them on along the way.  The weather held out long enough for everyone to reach the finish line dry.  The walkers were greeted by ice pops, a magician, and salsa dancers to end the day!

In total, the Walk raised over $313,616.00 as of June 7th!  Thanks to all our teams and walkers who raised money and came out to walk…we could not have done it without you!!!

NYCHC would like to thank all our sponsors: our national presenting sponsor, Baxalta; our local presenting sponsor, Novo Nordisk; and all our gold, silver, bronze, kilometer, and in-kind sponsors.

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