Spotlight: John Coutsouradis
To celebrate March as Bleeding Disorders Awareness Month and as we get closer to World Hemophilia Day on April 17, we are conducting short Q&As to learn more about members of our community!
This week, we’re interviewing John Coutsouradis. John is 16 years old and has severe hemophilia A.
What and when was your diagnosis?
I was two days old when I was diagnosed with severe hemophilia A. The diagnosis was confirmed after the nurse did the standard heel prick and it would not stop bleeding.
What does bleeding disorders awareness month mean to you?
This month reminds me about how far I have come on this journey of having a bleeding disorder, especially since I now infuse myself.
What is the best part about being part of the bleeding disorder community and how has having a bleeding disorder shaped your life?
I really enjoy going to the summer camps including Hole in the Wall, Double H and High Hopes. The camps are so much fun in meeting new kids from all over the tri-state area. For the last few years, I have been swimming competitively which I really enjoy.
What advice would you give to parents of children with bleeding disorders?
Let them be kids. Don’t treat them any differently from other kids.
About Bleeding Disorders Awareness Month
In 2016, the US Department of Health and Human Services (HHS) officially declared March as Bleeding Disorders Awareness Month! This month aims to foster a stronger sense of unity among all individuals in our community, and to elevate awareness to the general public. Learn more here.