Spotlight: Jeannine Cieri
To celebrate March as Bleeding Disorders Awareness Month and as we get closer to World Hemophilia Day on April 17, we are conducting short Q&As to learn more about members of our community!
This week, we’re interviewing Jeannine Cieri.
What and when was your diagnosis?
I was diagnosed with a bleeding disorder when I was 19 years old.
What does bleeding disorders awareness month mean to you?
It’s essential to spread awareness and to educate the world around us about all bleeding disorders.
What is the best part about being part of the bleeding disorder community and how has having a bleeding disorder shaped your life?
The instant connection you have with everyone when you meet is so life enhancing- you don’t have to say a word, they know. Having a bleeding disorder that all 3 children and my granddaughter have inherited has been both a painful struggle and a bond that has made us closer as a family. Watching each other infuse, being there for each other. It has made us an unbreakable unit. We realize how fragile and precious life is, we value our health and every day we are aware of how lucky we are. We are stronger because of our bleeds as a family and know happiness because of the pain we have witnessed and experienced.
What advice would you give to parents of children with bleeding disorders?
There is no choice so embrace your bleeding community, bond with other families and attend events! Educate you and your family members, make life marvelous! Whenever one of my children had an appointment or bleed I would plan a treat, like a special dinner on the way home, picnic, day somewhere special, all so that when we came home, the bleed or appointment was secondary to the great day!
About Bleeding Disorders Awareness Month
In 2016, the US Department of Health and Human Services (HHS) officially declared March as Bleeding Disorders Awareness Month! This month aims to foster a stronger sense of unity among all individuals in our community, and to elevate awareness to the general public. Learn more here.