Spotlight: Iris Vega
To celebrate March as Bleeding Disorders Awareness Month, we are conducting short Q&As to learn more about members of our community!
This week, we’re interviewing Iris Vega!
What and when was your diagnosis?
Hemophilia A, diagnosed at birth.
What does bleeding disorders awareness month mean to you?
It means the community is trying to expose everyone to this small group and hopefully help with their understanding of these disorders.
What is the best part about being part of the bleeding disorder community and how has have a bleeding disorder shaped your life thus far?
It is great that the community really tries to help navigate life in a difficult time period, especially for a baby. So far for nothing has stopped my toddler, but it has made him afraid when he goes to the hospital. Pretty normal for a toddler.
What advice would you give to parents of children with bleeding disorders?
I am trying to figure it out myself as a parent of a child with Hemophilia. I just keep trying to remind myself that there is so much moving forward with treatments, that life will hopefully be as “normal” as possible.
About Bleeding Disorders Awareness Month
In 2016, the US Department of Health and Human Services (HHS) officially declared March as Bleeding Disorders Awareness Month! This month aims to foster a stronger sense of unity among all individuals in our community, and to elevate awareness to the general public. Learn more here.