As someone with hemophilia, you may experience physical pain every day. This program helps you understand the full impact that pain has on you and your family. You’ll discover useful tips to recognize potential pain medication abuse. And you’ll get details on complementary therapies that might help you better deal with pain. Join us for […]
Wednesday June 14, 2017 | 6:00pm-7:00pm Maggiano's Little Italy 600 Garden City Plaza Garden City, NY 11530 Finding the Positives When Living with a Bleeding Disorder We'll discuss the challenges with raising children with bleeding disorders, the roles parents take on in their children's lives, and finding positivity despite adversity. Hector Grisalez was born in […]
Thursday June 15, 2017 | 7:00pm-8:00pm Jake's Steakhouse 6031 Broadway Bronx, NY 10471 Raising Young Children with Hemophilia There are many trials and tribulations when children are first diagnosed with hemophilia. In this discussion, we'll go over tips and tricks to navigate early childhood education, 504 plans, and advocating for your family's care and wellbeing. […]
Looking for insights from someone with experience on ELOCTATE? MyELOCTATE Peers™ are patients and caregivers who have treatment experience with ELOCTATE and want to give you a look into their life since making the change. Join us for an interactive educational experience and meet a MyELOCTATE Peer™— a patient or caregiver who will share what it’s been […]
Join us for dinner and a presentation on problem-solving approaches to the day-to-day challenges posed by living with hemophilia! Being Prepared for a Hemophilia Emergency with Jennifer Harris, RN, BSN Wednesday, August 9 | 6:30pm Broadway Bistro 3 South Broadway Nyack, NY 10960 Please feel free to extend this invitation to a anyone whom you think […]
You and a family member or caregiver are cordially invited to join us for Common Connections: An AFSTYLA Story! Wednesday, September 06, 2017 Check-in 5:30 PM - 6:00 PM Presentation 6:00 PM - 7:00 PM Maggiano's Little Italy 600 Garden City Plaza Garden City, NY 11530 Featuring: Dawn Hezel, RN, MS, CPNP/CPHON Four Seasons Medical […]
Join us for Common Connections: An AFSTYLA Story! Thursday, September 7, 2017 Check-in 5:30 PM - 6:00 PM Presentation 6:00 PM - 7:00 PM Zuppa 59-61 Main Street Yonkers, NY 10701 Featuring: Dawn Hezel, RN, MS, CPNP/CPHON Four Seasons Medical of Western New York Buffalo, NY Hector Grisalez Cicero, IL This program offers you and your […]
Looking for insights from someone with experience on ALPROLIX? Join us for an interactive educational experience and meet a MyALPROLIX PeerTM — a patient or caregiver who will share what it’s been like for them. Together we’ll review important information including clinical data, the science behind ALPROLIX, and support resources. Speakers include: Michelle M., MyALPROLIX Peer […]
Whether we like it or not, uncertainty can be a part of life when it comes to living with a chronic condition. For parents with bleeding disorders, there are unique challenges that can directly impact family life. These parents may have a lot of questions, such as: How do I talk to my kids about my condition? Is […]
