In 2006, a handful of New York families and friends affected by bleeding disorders went to Riverside Park and started the first Hemophilia Walk. We realized that by standing together we could make a difference for ourselves and our children. There was excitement in the air that first beautiful day, and the promise of a […]
Following the success of the 2017 Inhibitor Retreat, NYCHC once again presents this awesome opportunity for families and patients who struggle with inhibitors. The 2018 Inhibitor Retreat will feature opportunities to: Access and discuss case studies of patients with inhibitors Participate in peer-to-peer mentoring Gain insights and medical expertise Learn strategies for dealing with the […]
NYCHC is expanding our programming to serve the needs of women and girls with bleeding disorders. This Spring, NYCHC will host it's first retreat dedicated to women and girls and their specific needs. This retreat will present the opportunity to: Participate in peer-to-peer mentoring Gain insights with medical expertise from obstetricians and gynecologists familiar with […]
Es tiempo para la escuela, una vez más! ¡Únete a NYCHC mientras nos preparamos para el próximo año escolar! con: Oportunidades para aprender sobre planes 504 e IEP Sesiones para la transición de adolescentes y niños Una oportunidad de hablar con el personal de HTC y las enfermeras de la escuela Una oportunidad para aprender […]
The New York City Hemophilia Chapter invites you to join us at our Manhattan Legislator/Community Breakfast, the first in a series of opportunities to directly connect with legislators from your area. This breakfast will be centered around the topic of pre-existing conditions. Come share your story, partake in a discussion about changes in health care […]
Stay tuned for more details about this event.
¡NYCHC presenta su primer Retiro Latino! Este retiro familiar es para familias latinas / hispánicas y de habla hispana en la comunidad de trastornos hemorrágicos. Este retiro presentará la oportunidad de: Conoce a otras familias en la comunidad Aprenda a infundir (padres e hijos) Discuta sobre planificación familiar, nutrición y seguro con expertos en el […]
The 2018 Gala is an experience not to be missed! Join us for a night of drinks, dancing, and doing good! Every year we celebrate the amazing work that New York City Hemophilia Chapter does, and honor two community members who've dedicated their time and efforts to the bleeding disorders community. Check back for […]
Tis the season for learning and festivities with NYCHC! Join us at the 2018 Education Day and Holiday Party! Featuring: Adult Sessions in English and Spanish on: ++ advocacy and healthcare updates ++ pain management ++ women with bleeding disorders ++ inhibitors ++ aging with a bleeding disorder ++ clinical trials and new treatments Teen […]
