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March 2022

Courageous Conversations

March 31 @ 7:00 PM - 8:00 PM EDT

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain confidential within the group. All community members are invited to participate. Register Here

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April 2022

Courageous Conversations

April 7 @ 7:00 PM - 8:00 PM EDT

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain confidential within the group. All community members are invited to participate. Register Here

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In The Know Treatment Decision Making Summit

April 10 @ 10:30 AM - 4:00 PM EDT
New York Marriott Downtown, 85 West Street between Albany & Carlisle Streets
New York, NY 10006 United States
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Join us on Sunday, April 10 from 10:30 AM to 4:00 PM as we host: In The Know: Treatment Decision Making Summit at the New York Marriott Downtown. With treatment options changing rapidly for our community, it is extremely important for patients and families to stay informed of the latest options available to them. This Summit will allow bleeding disorder patients to learn more about specific products or treatment options in order to help our community make informed decisions regarding their choice…

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Courageous Conversations

April 14 @ 7:00 PM - 8:00 PM EDT

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain confidential within the group. All community members are invited to participate. Register Here

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HFA Symposium

April 20 - April 23

Shine those boots and saddle up! The Hemophilia Federation of America is heading to San Antonio for what is shaping up to be their biggest and best Symposium yet from April 20 to April 23, 2022. Learn More

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Courageous Conversations

April 21 @ 7:00 PM - 8:00 PM EDT

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain confidential within the group. All community members are invited to participate. Register Here

Find out more »

Courageous Conversations

April 28 @ 7:00 PM - 8:00 PM EDT

We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported. Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain confidential within the group. All community members are invited to participate. Register Here

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Interactive Pottery Painting & Discussion

April 30 @ 4:30 PM - 6:30 PM EDT
Plaster Palace Pottery, 2005 Palmer Avenue
Larchmont, NY 10538 United States
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On Saturday, April 30 from 4:30 PM to 6:30 PM, we will host a ceramic pottery painting session at Plaster Palace Pottery in Larchmont, NY! The first half of this event will feature an interactive conversation about trusting your parental instincts when it comes to your child’s health. A local mom of a child with hemophilia will share her powerful and relatable story. Following the discussion, we will enjoy a pottery painting session along with dessert and refreshments. Event Logistics This event is…

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May 2022

WFH World Congress

May 8 - May 11

The World Federation of Hemophilia's 2022 World Congress is less than one month away, from May 8 to May 11 in Montreal, Canada!  The World Congress offers a unique opportunity to meet your global peers, learn from leading experts and hear firsthand about cutting-edge research.  The event is hybrid, so whether you make the short trip to Montreal or participate virtually, you won’t miss a thing. View the program and register at: congress.wfh.org

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NYC AIDS Walk

May 15 @ 8:00 AM - 5:00 PM EDT
Central Park- Great Hill

In the 1980s, many bleeding disorders community members contracted HIV and Hepatitis C after injecting contaminated anti-hemophilic clotting factor into their bodies. It is estimated that nearly ten thousand people with Hemophilia contracted HIV (and Hepatitis C) during this time period. In honor of our community members who have passed away and those who still struggle with co-morbidities contracted from contaminated products, we are taking part in this year's New York AIDS Walk. Click below to join us in Central Park on Sunday,…

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