We are happy to announce that summer camps for bleeding disorder families are being held in-person once again! Learn more about the following local camps. Hole in the Walk Gang […]
Northwell Health Community Relations, Cohen Children’s Medical Center, and The Northwell Health Institute for Nursing have partnered to host an informative educational and clinical series to [...]
On Friday, April 30 at 6:30 PM, we are hosting a paint night for families in the New York City bleeding disorders community. Artist Judy Cohen will lead us over […]
NYC Well New York City set up a free, confidential, mental health support line to connect you with real counselors. All services are offered 24/7. Their website features many helpful […]
NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers […]
