On Friday, April 30 at 6:30 PM, we are hosting a paint night for families in the New York City bleeding disorders community. Artist Judy Cohen will lead us over […]
NYC Well New York City set up a free, confidential, mental health support line to connect you with real counselors. All services are offered 24/7. Their website features many helpful […]
NYCHC Stands United Against Injustice and Inequality. As a rare disease patient organization, it has always been our role to speak up about health inequity, and fight to eliminate barriers […]
Many community members have been struck by the coronavirus. Maria, her husband, and three children live in Queens, and four of them contracted the virus. Read their story below. Read […]