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PRODID:-//NYC Hemophilia Chapter - ECPv6.2.4//NONSGML v1.0//EN
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X-WR-CALNAME:NYC Hemophilia Chapter
X-ORIGINAL-URL:https://www.nyhemophilia.org
X-WR-CALDESC:Events for NYC Hemophilia Chapter
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20260308T070000
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DTSTART:20261101T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260412T100000
DTEND;TZID=America/New_York:20260412T140000
DTSTAMP:20260403T173337
CREATED:20260107T161557Z
LAST-MODIFIED:20260306T142908Z
UID:7707-1775988000-1776002400@www.nyhemophilia.org
SUMMARY:In The Know Innovation Summit
DESCRIPTION:Our In The Know Innovation Summit will be held on Sunday\, April 12 from 10 AM to 2 PM at the NYC Seminar and Conference Center (114 W 26th St 3rd Floor\, New York\, NY 10001). \nWith treatment options changing rapidly for our community\, and some newly-approved options now on the market\, it is extremely important for patients and families to stay informed of the latest options available to them. This Summit will allow bleeding disorder patients to learn more about specific products or treatment options in order to help our community make informed decisions regarding their choice of care. \nRegister Here
URL:https://www.nyhemophilia.org/event-calendar/in-the-know-2/
LOCATION:NYC Seminar and Conference Center\, 114 W 26th Street\, 3rd Floor\, New York\, NY\, 10001\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260416
DTEND;VALUE=DATE:20260420
DTSTAMP:20260403T173337
CREATED:20260107T154648Z
LAST-MODIFIED:20260107T154648Z
UID:7687-1776297600-1776643199@www.nyhemophilia.org
SUMMARY:HFA Symposium
DESCRIPTION:The Hemophilia Federation of America (HFA) is heading to New Orleans for their annual Symposium from April 16 to April 19. \nThey will have dozens of sessions for blood brothers\, blood sisters\, children\, parents\, caregivers and more\, along with great opportunities to connect with the new and old friends from around the country. A limited number of travel scholarships are provided by HFA. Learn more about their scholarship offerings by clicking here. \nLearn More and Register
URL:https://www.nyhemophilia.org/event-calendar/hfa-symposium-5/
LOCATION:New Orleans Marriott\, New Orleans Marriott 555 Canal Street\, New Orleans\, LA\, 70130\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260503T113000
DTEND;TZID=America/New_York:20260503T170000
DTSTAMP:20260403T173337
CREATED:20260107T155626Z
LAST-MODIFIED:20260401T121828Z
UID:7694-1777807800-1777827600@www.nyhemophilia.org
SUMMARY:A Day At The Zoo
DESCRIPTION:Bring your crew to the Zoo for a roaring good time! Join us for a fun day at the Bronx Zoo on Sunday\, May 3\, beginning at 11:30 AM. This event will allow families to come together to meet one another and connect in a relaxed and laid-back environment. \nAgenda Overview: \n\n11:30 AM: Arrival & Check-In | Lot C Entrance (2300 Southern Boulevard)\n\nPlease go immediately to the Dancing Crane Pavilion once you check in.\n\n\n11:30 AM: Community Meet & Mingle | Dancing Crane Pavilion\n12 PM: NYCHC Welcome Session and Presentation | Dancing Crane Pavilion\n\nWristbands for lunch will be passed out at the end of the Welcome Session.\nYou must be present at 12 PM to receive a wristband for lunch.\n\n\nLunch | Please eat inside the Dancing Crane Pavilion\nYour ticket allows you to explore the Zoo on your own for the remainder of the day. You can leave at any time. The Zoo closes at 5 PM.\nThe event will happen rain or shine.\n\nRegistration Information \n\nSpace is limited.\nRegistration will end on Wednesday\, April 22.\nEach registered attendee will receive free admission to the Zoo and a lunch bracelet at no cost.\n\n  \nPlease note: this event is for people in your immediate household. Please do not invite extended family members or friends\, as resources are limited. \nRegister Here
URL:https://www.nyhemophilia.org/event-calendar/a-day-at-the-zoo-2/
LOCATION:Bronx Zoo\, 2300 Southern Boulevard\, Bronx\, New York\, 10460
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260607T100000
DTEND;TZID=America/New_York:20260607T130000
DTSTAMP:20260403T173337
CREATED:20260107T155056Z
LAST-MODIFIED:20260304T193341Z
UID:7690-1780826400-1780837200@www.nyhemophilia.org
SUMMARY:Unite for Bleeding Disorders Walk
DESCRIPTION:This year\, the New York City Hemophilia Chapter (NYCHC) is hosting their Unite for Bleeding Disorders Walk on Sunday\, June 7 at Riverbank State Park in Manhattan! \nThis event is a powerful celebration of our community and our largest fundraiser of the year. Every step we take raises crucial funds and awareness for bleeding disorders. All donations directly support our services\, advocacy\, education\, and research—helping us improve lives today while working toward a better tomorrow. Walk with us\, support the cause\, and help shape the future for those living with bleeding disorders. \nLearn More Here
URL:https://www.nyhemophilia.org/event-calendar/unite-for-bleeding-disorders-walk-2/
LOCATION:Riverbank State Park
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260713T100000
DTEND;TZID=America/New_York:20260713T200000
DTSTAMP:20260403T173337
CREATED:20260107T161234Z
LAST-MODIFIED:20260107T161316Z
UID:7703-1783936800-1783972800@www.nyhemophilia.org
SUMMARY:Tee Up For A Cure: Hemophilia Charity Golf Event
DESCRIPTION:Join us on Monday\, July 13 for a great day on a premier golf course. After the round\, the fun continues with an open bar\, dinner\, live entertainment\, raffles\, auction and much more! \nThis charity event provides crucial funding to support NYCHC’s mission to find better treatments and cures for bleeding disorders and to prevent the complications through education\, awareness\, advocacy and research. \nMore information will be shared soon.
URL:https://www.nyhemophilia.org/event-calendar/tee-up-for-a-cure-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260807T143000
DTEND;TZID=America/New_York:20260809T193000
DTSTAMP:20260403T173337
CREATED:20260107T155350Z
LAST-MODIFIED:20260401T131141Z
UID:7692-1786113000-1786303800@www.nyhemophilia.org
SUMMARY:TORCH Teen Retreat
DESCRIPTION:Our TORCH Teen Retreat will be held from Friday\, August 7 to Sunday\, August 9 at the Pocono Environmental Education Center (PEEC)\, a short 2 hour drive from NYC in the Delaware Water Gap region. \nTORCH (Teen Opportunities and Resources for Community Health) is NYCHC’s teen program for teens ages 13-18 within the Greater NYC bleeding disorders community. The goal of this retreat is to foster independence\, self-advocacy\, support\, and accountability among teens\, while also building future leaders in the bleeding disorders community. \nRetreat Details \n\nActivities: Hiking\, ropes course\, orienteering\, team building and leadership training\, games\, canoeing\, campfires & s’mores and more! \nMeals: All meals\, snacks and beverages will be provided from dinner on Friday evening to lunch on Sunday.\nSleeping Arrangements: Teens will share cabins based on their gender. \nPacking List: A full packing list will be shared with registered attendees before the event begins. \nSupervision: Adults present include NYCHC staff\, a nurse\, young adult mentors\, and chaperones in addition to PEEC’s onsite staff.\n\nTransportation \nWe’ll be providing free round-trip transportation to and from PEEC.  \n\nBus will depart NYC on Friday at 3 PM. \nArrive at 2:30 PM.\nLocation: Secaucus Junction\, North Rd\, Secaucus\, NJ 07094.\nOn Sunday\, the bus will drop teens off at the same location\, between 7:00 PM and 7:30 PM (depending on traffic).\n\nRegistration \n\nThis program is free \, however\, spaces are limited.\nThis event is open only to teenagers with bleeding disorders (ages 13 -18) and their siblings living in their immediate household from the New York City tri state area.\nCancellation Policy: By registering for this event\, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event\, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency\, please contact us to discuss.\nRegistration will end on Friday\, July 24.\n\nRegister Here
URL:https://www.nyhemophilia.org/event-calendar/torch-teen-retreat-5/
LOCATION:PEEC\, 538 Emery Rd\, Dingmans Ferry\, PA\, 18328\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260813
DTEND;VALUE=DATE:20260816
DTSTAMP:20260403T173337
CREATED:20260107T160518Z
LAST-MODIFIED:20260112T195857Z
UID:7700-1786579200-1786838399@www.nyhemophilia.org
SUMMARY:NBDF’s 78th Annual Bleeding Disorders Conference (BDC)
DESCRIPTION:The National Bleeding Disorders Foundation’s 78th Annual Bleeding Disorders Conference (BDC) will take place from August 13 – August 15 in Orlando\, FL! \nThis conference is packed full of educational sessions and opportunities to connect with others in the bleeding disorders community from around the country. All members of the bleeding disorders community are invited to attend. \nNBDF will be accepting travel scholarship applications to attend BDC from January 12 to February 23. Learn more about the scholarship. \nLearn More And Register Here\n 
URL:https://www.nyhemophilia.org/event-calendar/nbdfs-78th-annual-bleeding-disorders-conference-bdc/
LOCATION:Orlando World Center Marriott\, 8701 World Center Drive\, Orlando\, FL\, 32821\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261010T110000
DTEND;TZID=America/New_York:20261011T133000
DTSTAMP:20260403T173337
CREATED:20260107T155852Z
LAST-MODIFIED:20260107T155852Z
UID:7696-1791630000-1791725400@www.nyhemophilia.org
SUMMARY:Conferencia Latina ‘Unidos por la Sangre’ 2026
DESCRIPTION:Invitamos a la Comunidad Latina con un desorden de coagulación a celebrar juntos el mes de la Hispanidad con NYCHC & HANJ. \n\nFecha: Sábado 10 y Domingo 11 de Octubre 2026\nLugar: Hotel DoubleTree by Hilton (2117 Route 4 Eastbound\, Fort Lee\, NJ 07024)\n\nTendremos un evento lleno de muchas actividades para niños\, adolescentes y adultos donde aprenderemos y nos divertiremos juntos. Las sesiones de adultos serán en español y las de los niños y adolescentes en inglés (pero contamos con asistencia en español). \nContaremos con habitaciones en el hotel para que descansen la noche del sábado\, alimentos incluidos y transporte (en caso de necesitarlo). Este evento es gratuito y esperamos verlos ahí! \n  \nPara más información envía un correo electrónico Nelly (nelly.miranda@nyhemophilia.org) o Neidy (nolarte@hanj.org) por si necesitas ayuda para registrarte.
URL:https://www.nyhemophilia.org/event-calendar/conferencia-latina-unidos-por-la-sangre-2026/
LOCATION:DoubleTree by Hilton\, 2117 Route 4 Eastbound\, Fort Lee\, 07024\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261122T100000
DTEND;TZID=America/New_York:20261122T140000
DTSTAMP:20260403T173337
CREATED:20260107T160025Z
LAST-MODIFIED:20260107T160025Z
UID:7698-1795341600-1795356000@www.nyhemophilia.org
SUMMARY:Education Day
DESCRIPTION:Join us for Education Day on Sunday\, November 22! \nEducation Day is our largest event of the year–packed full of learning\, connection and fun for attendees of all ages. \nMore information will be provided soon.
URL:https://www.nyhemophilia.org/event-calendar/education-day-5/
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