Interested in participating in research studies on hemophilia, VWD, and other bleeding disorders? We’ll periodically post opportunities here.
A pharmaceutical/biotech company in the process of developing a new potential hemophilia A therapy will be hosting a small Patient/Caregiver Advisory Board meeting on May 19, 2017 in New York, NY.
At this one-day meeting, people and caregivers living with hemophilia A will be invited to share their experiences and challenges living with hemophilia A, and also to provide their view on existing and future hemophilia treatments. This advice will inform our healthcare partners work in developing a new hemophilia A therapy and appropriately engaging with the hemophilia community.
Our healthcare partner will reimburse the approved travel expenses of invited participants, and provide a small honorarium to compensate for their time and participation.
Participants must be people with Hemophilia A or caregiver of a patient. People and caregivers living with inhibitors are strongly encouraged to respond.
Participants should be willing to travel to NYC, for a one-day meeting on
May 19, 2017
Space is limited. Anyone interested in attending should contact Maurizio Mazzi at Infusion Communications by sending a single reply to both email addresses below. Or, you can call Maurizio at 860 235 6475. Infusion Communications will then contact interested parties with further details.