NYC Hemophilia Chapter

Cocinando en Familia
2021-02-09 18:00 - 20:00 UTC
***Tenemos que posponer el evento de cocina de este 2 de febrero del 2021 debido a que nos cancelaron las entregas de los ingredientes por la tormenta de nieve.
La nueva fecha es el martes 9 de febrero a las 6pm.***
El Chapter de la Hemofilia de NY (NYCHC) te invita a participar a nuestro próximo evento “Cocinando en Familia” este martes 9 de Febrero del 2021 de 6PM a 8PM dirigido para la comunidad latina (en español).
Te pedimos que te registres aquí para que te enviemos la receta, el enlace del zoom y los ingredientes.
No hay mejor forma de celebrar con la comunidad que alrededor de la mesa. No se pueden perder este evento y ahí nos vemos.
Este evento está dirigido a familias con un desorden de coagulación y viviendo en el área tri estatal. Registrate antes del 3 de Febrero para que puedas recibir los ingredientes.
Registrarse Aquí

Blood Brothers Chat
2021-02-09 13:00 - 14:00, 2021-02-02 13:00 - 14:00
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with each other.
Join Here

Virtual Game Night
2021-02-05 19:00 - 20:00
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
Join us on Friday, February 5 at 7 PM as families from our communities come together for a night full of fun, community, and laughs.
Register Here

vWD Community Chat
2021-01-27 13:00 - 14:00
On Wednesday, January 27 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Family Paint Night
2021-01-22 18:30 - 20:30
On Friday, January 22 at 6:30 PM, we are hosting a paint night for families in the New York City bleeding disorders community. Artist Judy Cohen will lead us over Zoom in painting during the event. All are welcome to participate: whether you consider yourself an artist or have never picked up a paintbrush before!
Space is limited to the first 30 individuals to register. Attendees will be mailed all necessary supplies prior to the session including a canvas, paint, and paint brushes.
Please register by this Friday, January 8, 2021.
Register Here

This event is generously supported by CSL Behring.

Moms and Women Community Chat
2021-01-21 13:00 - 14:00
On Thursday, January 21 at 1 PM, we are hosting our next virtual chat for moms and women with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Fitness Challenge: Destination GO
2020-12-11 - 2021-01-15
Being physically active is one key to managing a bleeding disorder. It also has many other benefits, like relieving stress, strengthening connections within the community, and improving general quality of life. Physical activity has been crucial during the pandemic: whether that was by going for socially distant walks around the neighborhood, hiking locally, or using household objects as weights!
To help encourage physical activity within our community, the New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are hosting a new version of our Annual Fitness Challenge. This year, we are inviting all community members (age 16+) to get involved. This includes bleeding disorder patients, unaffected siblings, and other family members. This challenge is a fun way to become a healthier, happier you!
Each accepted participant will receive a sleek Max Buzz Activity Tracker that will be free to you and is provided by NYCHC and NEHA. The new version of this challenge, Fitness Challenge: Destination GO, officially begins on January 27, 2021 and will run for two months!
Space is limited, so please apply as soon as possible. You must apply by Thursday, January 15. Accepted participants will be notified on Monday, January 18.
Apply Here

Virtual Holiday Party
2020-12-09 18:00 - 19:30
This year, we will be hosting a Virtual Holiday Party on Wednesday, December 9 from 6 PM to 7:30 PM.
This festive event will include holiday cookie decorating, an Ugly Holiday Sweater competition, a visit from Santa, and other holiday activities!
Please register by Friday, November 27 to receive your holiday cookie decorating set. Gifts will be mailed to the address used during registration!
Register Here

Education Day 2020
2020-11-15 10:00 - 13:00
This event is our largest event of the year and is intended to bring the entire Greater NYC bleeding disorder community together in one virtual setting to connect, learn, and support one another.
Even in a virtual setting, this allows our community members to build deep relationships and to learn from quality and meaningful educational sessions about bleeding disorder management and other relevant topics.
This will feature:

Educational session in English and Spanish for adults
Leadership Programming for Teenagers through GutMonkey
Interactive Activities and Magic Show for children ages 6-12

Register Here

Cocinando con la Familia
2020-10-27 18:00 - 20:00
El Chapter de la Hemofilia de NY (NYCHC) te invita a participar en nuestro próximo evento organizado para la comunidad latina este próximo martes 27 de Octubre de 6pm a 8pm.
Durante nuestro evento, tendremos una presentación especial de Pfizer con el tema “Como estabilizar el bienestar emocional” por Mike Sager, muy interesante y no nos lo podemos perder.
En el cual contaremos con la participación de Ana Yolanda Santos (nutrióloga) que nos enseñara a preparar unas ricas fajitas de pollo de forma virtual mientras los niños decorarán cupcakes.
Te pedimos que te registres aquí para que te enviemos la receta de las fajitas y el enlace para el zoom.
NYCHC puede enviarte los ingredientes para la preparación de la comida y los cupcakes.
No hay mejor forma de celebrar con la comunidad que alrededor de la cocina.
Al final del evento contaremos con un concurso de disfraces; rifaremos 3 tarjetas de regalo de Amazon: $100 para el primer premio, $50 para el 2o y $25 para el 3er premio. No se pueden perder este evento y ahí nos vemos!
Registrarse Aqui

Let's Talk Movie Screening
2020-10-17 19:00 - 20:00
On Saturday, October 17 at 7 PM, we are hosting a virtual screening of the newly released film, “Let’s Talk.” This takes you through the lives of five members of the bleeding disorders community, as they show how we can gain strength through mental health struggles.
The film is intended to spark conversation, increase awareness, and decrease stigma. Following the screening, there will be a talk-back facilitated by Patrick James Lynch and Debbie de la Riva.

Register For The Screening Here

15th Anniversary Unite Walk
2020-10-10 10:00 - 13:00

vWD Community Chat
2020-09-30 13:00 - 14:00
On Wednesday, September 30 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Dealing With Male Role Expectations
2020-09-22 13:00 - 14:00
On Tuesday, September 22, at 1 PM, in place of our weekly discussion for men with a bleeding disorder, we will host a discussion with HFA, titled: “But I Can’t Bring Home the Bacon! Coping with Male Role Expectations.”
Society places great pressure on men to be the head of the household and primary ‘breadwinner,’ for their families. This session will discuss ways adult men with bleeding disorders can cope with male role expectations and find valuable ways they can still contribute and support their households, families, and relationships.
Join The Discussion Here

Advanced Stress Session
2020-09-17 19:00 - 20:00
On Thursday, September 17 at 7 PM, we are joining with the Hemophilia Federation of America (HFA) to host a virtual discussion focused on understanding stress, anxiety, and depression, especially in light on COVID-19.
This discussion will be centered largely around the impact of COVID-19, and the challenges and stress caused by the transition back to school this year. This will help you learn coping strategies to better manage and deal with stress.
Register Here

Back To School (Regreso A Clases)
2020-08-30 10:00 - 13:00
On Sunday, August 30, we will host our Annual Bilingual Back to School Event. This virtual event was designed to help your family transition out of summer and get ready to return to school.
This year, we will pay special attention to helping parents navigate the changing roles and expectations for school through a pandemic.

Here is an overview of the types of programs that will be offered:

A guide for parents about school this fall
Coping with stress of the unknown
English and Spanish sessions on how to set up a 504 Plan (disability accommodation plan) or IEP (Individualized Education Plan) for your child.
Opportunities to talk to HTC nurses
Activities for kids and teens
Register for a bilingual book trade

In order to help you prepare to go back to school, we are excited to raffle off one free laptop computer to a community member who attends this event!
Register Here
El domingo 30 de agosto, tendremos nuestro evento anual ‘Regreso a Clases’ con sesiones en inglés y español. Esta vez se realizará de forma virtual y está diseñado para ayudar a tu familia con la transición del fin del verano y prepararse para el regreso a la escuela.
Este año, tendremos sesiones especiales en los roles y expectativas durante una pandemia que tendrán los padres en este inicio de clases.

A continuación encontrarás una descripción general de los tipos de programas que se ofrecerán:

Una guía para padres sobre la escuela este otoño
Cómo manejar el estrés en estos días ante lo desconocido
Sesiones en inglés y español sobre cómo establecer un Plan 504 (plan de adaptación) o IEP (Plan de Educación Individualizado) para tu hijo(a).
Sesiones con enfermeras de los Centros de Tratamiento de Hemofilia (HTC)
Actividades para niños y adolescentes
Regístrate para un intercambio de libros en ambos idiomas

Queremos ayudar en este regreso a clases y estamos muy entusiasmados porque rifaremos una laptop (computadora portátil) a un miembro de la comunidad que asista a este evento y esperamos que seas tu!
Registrate Aquí

English Sessions for Adults

10 AM: Balancing Emotional Wellness, Sponsored by Pfizer bit.ly/Meet1-NYCHC
10 AM: I Can Do It Myself – Tips to Improve your Infusing Skills, Sponsored by BDRN bit.ly/ZoomA-NYCHC
11 AM: Panel Discussion: Is It Safe? Answers from doctors and school administrators about going back to school bit.ly/ZoomA-NYCHC
12 PM: Managing the Unknown- Mental health resources bit.ly/ZoomA-NYCHC
12 PM: Staying Fit During a Pandemic bit.ly/Meet1-NYCHC
1 PM: Laptop Raffle, Social Connections, and Meet our Local Teen Impact Award Winners bit.ly/ZoomA-NYCHC

En Español

10 AM: Cómo establecer expectativas educativas, Sponsored by Sanofi Genzyme bit.ly/ZoomB-NYCHC
11 AM: Aumento de la resiliencia en los niños, Sponsored by Octapharma bit.ly/ZoomB-NYCHC
12 PM: Gestionar lo desconocido: recursos de salud mental bit.ly/ZoomB-NYCHC
1 PM: Rifa de computadoras portátiles, conexiones sociales y conozca a nuestros ganadores del premio Local Teen Impact bit.ly/ZoomA-NYCHC

Kids

10 AM: I Can Do It Myself – Tips to Improve your Infusing Skills, Sponsored by BDRN bit.ly/ZoomA-NYCHC
11 AM: Master Builders Lego Building Club bit.ly/Meet2-NYCHC
12 PM: Imagineering – Design Your Own Amusement Park bit.ly/Meet2-NYCHC
1 PM: Laptop Raffle, Social Connections, and Meet our Local Teen Impact Award Winners bit.ly/ZoomA-NYCHC

Teens

10 AM: Balancing Emotional Wellness, Sponsored by Pfizer bit.ly/Meet1-NYCHC
10 AM: I Can Do It Myself – Tips to Improve your Infusing Skills, Sponsored by BDRN bit.ly/ZoomA-NYCHC
11 AM: How to land a job as a video game designer bit.ly/Meet3-NYCHC
12 PM: Let’s Debate – Pick a Side bit.ly/Meet3-NYCHC
1 PM: Laptop Raffle, Social Connections, and Meet our Local Teen Impact Award Winners bit.ly/ZoomA-NYCHC

Platinum Sponsor

Platinum Sponsor

Platinum Sponsor

Platinum Sponsor

Silver Sponsor

Silver Sponsor

Silver Sponsor

vWD Community Chat
2020-08-26 13:00 - 14:00
On Wednesday, August 26 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

HFA Annual Symposium (Virtual)
2020-08-24 - 2020-08-29

Mom's and Women Chat
2020-08-20 13:00 - 14:00
On Thursday, August 20 at 1 PM, we are hosting our next virtual chat for mom’s and women!
Join us as we come together as a community to share our experiences and connect with others. At 1 PM, join the chat by going to bit.ly/NYCHCLunch

En Español Virtual Chat
2020-08-10 13:00 - 14:00
On Monday, August 10 at 1 PM, we are hosting our next virtual chat in Spanish! Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Dad's in Action Community Chat
2020-08-07 17:00 - 18:00
On Friday, August 7 at 5 PM, we are hosting our next virtual chat for Dad’s in Action. Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

NHF Bleeding Disorders Conference (Virtual)
2020-08-01 - 2020-08-08

vWD Community Chat
2020-07-29 13:00 - 14:00
On Wednesday, July 29 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

In The Know: Treatment Decision Making Summit (Virtual)
2020-07-26

JeoPARODY
2020-07-23 19:00 - 20:00
On Thursday, July 23 at 7 PM, NYCHC will be taking part in the Great Northeast Jeoparody Challenge!
Here, BioMatrix, CSL Behring, and the Executive Directors of 7 Northeastern bleeding disorders chapters will go head-to-head in a bleeding disorders’ Jeoparody challenge.
During some of the gameplay, community members can participate by throwing their knowledge at a struggling Director. There will be banter, jests, and the expected Executive Director bravado. There will be education, right answers, wrong answers, and “Hey! I didn’t know that!” moments.

Register Here

Participating chapters include: The New England Hemophilia Association, The Hemophilia Alliance of Maine, the Connecticut Hemophilia Society, the New York City Hemophilia Chapter, the Hemophilia Alliance of New York, the Bleeding Disorders Association of Northeastern New York, and the Hemophilia Alliance of New Jersey.

Moms and Women Chat
2020-07-23 18:00 - 19:00
On Thursday, July 23 at 6 PM, we are hosting our next community chat for moms and women with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Virtual Albany Day
2020-07-21
Virtual Albany Day
The New York State legislature is reopening for just a few days and we need your help advocating at our Virtual Albany Day! Join us on Tuesday, July 21 for our Virtual Albany Day as advocates from all over New York State mobilize and advocate in support of the Prior Authorization bill.
Participating takes 15 minutes by doing the following tasks on July 21:

Email your legislators through our automatic, easy-to-use form
Post on Facebook and Twitter and tag your legislators using our templates
Register to receive an “Advocacy Package” in the mail
Live advocacy help via Zoom from 11 AM – 3 PM

Register below or follow our social media pages for more information! If you have any questions, please contact Lindsay Cox at lindsay.cox@nyhemophilia.org.
Register Here

Game Night
2020-07-10 19:00 - 20:00, 2020-07-03 19:00 - 20:00
