NBDF's 77th Annual Bleeding Disorders Conference (BDC)
2025-08-21 - 2025-08-23 | Gaylord Rockies Resort & Convention Center, 6700 N Gaylord Rockies Blvd, Aurora, CO, 80019, United States
The National Bleeding Disorders Foundation’s 77th Annual Bleeding Disorders Conference (BDC) will take place from August 21 – August 23 near Denver, CO! This event brings the national bleeding disorders community together for educational sessions, valuable networking and social connection opportunities, exciting exhibits and so much more.
NBDF will be accepting travel scholarship applications to attend BDC from January 19, 2024 to February 23, 2024. Learn more about the scholarship.
Learn More & Register for BDC

Educational Dinner: Treatment Option for Hemophilia A
2025-08-27 18:00 - 20:30 (America/New_York) | Rosa Mexicano, 9 East 18th St, New York, NY, 10003, United States
Join us on Wednesday, August 27 at 6 PM for an educational dinner at Rosa Mexicano (9 East 18th Street, New York, NY 10003).
Attendees will learn about Altuviiio: a product to treat hemophilia A. This event is sponsored by Sanofi and presented by Tyshawn Constantine, in English.
Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

Cena y sesión educativa en Español
2025-08-27 18:00 - 20:30 | Rosa Mexicano, 9 East 18th St, New York, NY, 10003, United States
Invitamos a la comunidad con desórdenes de coagulación a disfrutar de una cena y una sesión educativa en Español el miércoles 27 de Agosto en el restaurante ‘Rosa Mexicano (9 East 18th St, NY NY) de las 6:00 pm a las 8:30 pm.
El tema de la sesión será: Altuviiio. Este evento es patrocinado por Sanofi y presentado por Alexandra Abreu.
Regístrate aquí
El espacio es limitado, regístrate antes del 22 de agosto.
Para cualquier duda, comunícate con Nelly Miranda por teléfono al número (551) 243-3066 o envía un email a: nelly.miranda@nyhemophilia.org.

Conferencia Latina ‘Unidos por la Sangre’ 2025
2025-10-11 11:00 - 2025-10-12 13:30 | DoubleTree by Hilton, 2117 Route 4 Eastbound, Fort Lee, 07024, United States
Invitamos a la Comunidad Latina con un desorden de coagulación a celebrar juntos el mes de la Hispanidad con NYCHC & HANJ.

Fecha: Sábado 11 y Domingo 12 de Octubre 2025
Lugar: Hotel DoubleTree by Hilton (2117 Route 4 Eastbound, Fort Lee, NJ 07024)

Tendremos un evento lleno de muchas actividades para niños, adolescentes y adultos donde aprenderemos y nos divertiremos juntos. Las sesiones de adultos serán en español y las de los niños y adolescentes en inglés (pero contamos con asistencia en español).
Contaremos con habitaciones en el hotel para que descansen la noche del sábado, alimentos incluidos y transporte (en caso de necesitarlo). Este evento es gratuito y esperamos verlos ahí!
Regístrese aquí
Para más información envía un correo electrónico Nelly (nelly.miranda@nyhemophilia.org) o Neidy (nolarte@hanj.org) por si necesitas ayuda para registrarte.

Education Day
2025-11-23 10:00 - 14:00 | New York Hall of Science, 47-01 111th Street, Corona, 11368, United States
Join us for Education Day on Sunday, November 23 from 10 AM to 2 PM at the New York Hall of Science in Queens!
Education Day is our largest event of the year–packed full of learning, connection and fun for attendees of all ages. This year, attendees will receive tickets to attend the New York Hall of Science after the event concludes!
Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

Virtual Educational Presentation & Gingerbread House Making Session
2025-12-02 19:00 - 20:00
On Tuesday, December 2 at 7 PM, we are hosting a virtual educational presentation in English with Sanofi. This session will help you learn more about ALTUVIIIO–Sanofi’s once-weekly treatment for hemophilia A.
After the presentation, community members will decorate gingerbread houses. Please register by November 17 so we can send you a box via mail with the materials to decorate your gingerbread house. One box will be sent per family.
Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

Disclaimer
This event is a paid advertisement and does not constitute an endorsement or recommendation from the New York City Hemophilia Chapter (NYCHC). The information presented during this event is provided for your general information only. NYCHC does not give medical advice or engage in the practice of medicine. NYCHC, under no circumstances, recommends particular treatment options for specific individuals, and, in all cases, recommends that you consult your physician or local treatment center before pursuing any course of treatment.

En Español: Presentacion Educativa Virtual y Decoración de Casas de Jengibre
2025-12-03 19:00 - 20:00
El miércoles 3 de diciembre a las 7 PM, the New England Hemophilia Association (NEHA) y the New York City Hemophilia Chapter (NYCHC) organizarán una presentación educativa de forma virtual junto a Sanofi en español. Esta sesión te ayudará a conocer más sobre el tratamiento semanal de ALTUVIIIO–Sanofi para el tratamiento de hemofilia A.
Después de la presentación, la comunidad decorará casas de jengibre. Les pedimos que se registren antes del 17 de Noviembre para que la Asociación pueda enviarles por correo una caja con los materiales para decorar la casa de jengibre. Se enviará una por familia.
Regístrate Aquí

Aviso
Este evento es una publicidad pagada y no constituye una recomendación por parte de New England Hemophilia Association (NEHA). La información presentada durante este evento es solo para fines informativos generales. NEHA bajo ninguna circunstancia recomienda tratamientos específicos para individuos y siempre recomienda consultar con tu médico o centro de tratamiento local antes de seguir cualquier tipo de tratamiento.

FAB Women's Retreat
2026-02-06 16:00 - 2026-02-07 15:00 | Courtyard by Marriott, 3 Pembroke Pl, Edgewater, NJ, 07020, United States
The New York City Hemophilia Chapter (NYCHC) is partnering with the Hemophilia Association of New Jersey (HANJ) to host our 3rd Annual Females and Bleeding (FAB) Women’s Retreat! Join us for an overnight stay at the Courtyard by Marriott in Edgewater, NJ from Friday, February 6 to Saturday, February 7 for a weekend of educational sessions, social activities, health and wellness workshops, breakout sessions, and much more! The focus will be education, personal growth, and networking.
Agenda Overview

Start: Friday at 4 PM.
End: Saturday at 3 PM.
Agenda: Will be shared with registered attendees one week before the event begins.
Hotel: Hotel rooms will be provided for Friday evening at no cost to attendees.
Meals: All meals during the retreat are included.

Registration

This retreat is free to attend.
Space is limited to only 30 women who meet all three of the following qualifications:

Live within the Hemophilia Association of New Jersey or the New York City Hemophilia Chapter geographic coverage areas.
Are at least age 18 or older.
Are affected by a bleeding disorder in at least one of the following ways:

is diagnosed with a bleeding disorder, or,
is a carrier of a bleeding disorder, or,
is the spouse of someone with a bleeding disorder, or,
is a parent or legal guardian of someone with a bleeding disorder.

Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

More Information Will Be Shared Soon
