NYC Hemophilia Chapter

Blood Brothers Chat
2021-08-10 13:00 - 14:00, 2021-08-03 13:00 - 14:00, 2021-07-27 13:00 - 14:00, 2021-07-20 13:00 - 14:00, 2021-07-13 13:00 - 14:00, 2021-07-06 13:00 - 14:00, 2021-06-29 13:00 - 14:00, 2021-06-22 13:00 - 14:00 UTC and 4 more dates
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with each other.
Join Here

Unheard Stories
2021-08-05 18:00 - 19:00
As people with a rare bleeding disorder, many in our community already share a lot in common. You sometimes feel different, left out, or unheard. Having a bleeding disorder has probably caused unique challenges or situations in your life that people outside of our community may struggle to understand. We want to help you speak up and share your story.
On Thursday, August 5 at 6 PM, we will host our second Unheard Stories event. We’ll provide the virtual safe space where community members like you can share your story. Speakers will have roughly 5 to 10 minutes to share any story they’d like. We’ll also work with you beforehand to plan out your story. Sharing these stories can be a powerful experience for both the speaker, and the audience listening to the story.
Want to see what this event is all about? Watch the three stories that were shared at our first Unheard Stories event by clicking here. These stories can help connect members of our community around shared experiences or receiving support for the stories that are shared. After these stories are told, we will debrief as a group to see where these stories connect to your life and how you can support others facing similar challenges.
Register Here

vWD Community Chat
2021-07-29 13:00 - 14:00
On Thursday, July 29 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Teens Only Game Night
2021-07-09 19:00 - 20:00
Join us on Friday, July 9 at 7 PM for a Teens Only Game Night alongside the Hemophilia Association of New Jersey (HANJ)!
Each month, we will play a different game chosen by the teens!
This event is intended for teens ages 13 and over.
Register Here

2021 Unite Walk Kick Off
2021-06-27 12:00 - 16:00 | Bronx Zoo, 2300 Southern Boulevard, Bronx, New York, 10460
The event will be held at the beautiful Bronx Zoo on Sunday, June 27 from 12 PM to 4 PM and will serve as a Kick-Off event to officially launch the NYC Hemophilia Chapter’s 2021 Unite Walk!
This day will help families, individuals, and Walk Teams come together to learn more about our Unite Walk in October. This will include tips on fundraising, resources, and more. You will then be able to explore the Zoo and interact with other members of our community.
Agenda

Welcoming Remarks at the Dancing Crane Pavilion by NYCHC
Box lunch served and sponsor interaction opportunity
Explore the Zoo at your leisure

Participants will receive wristbands granting them access to a variety of special attractions at no additional cost. Each participant will also receive a souvenir goody bag with zoo-themed items and other surprises.
Cost
During this difficult time, we have waived all registration fees for this event. If you are able to make a donation to help support this event, as well as our other programs and services, you will have the option to place a donation on the following page when securing your tickets.

Registration will end on Wednesday, June 23.
This event is open only to people with bleeding disorders and family members living in their immediate household from the New York City tri state area.

COVID-19 Protocols
Face masks must be at all times when inside the park. Social distancing is also enforced. Please keep at least six feet of distance between you and anyone outside of your family. Read the Zoo’s COVID-19 protocols here.
Register Here

Unheard Stories
2021-06-24 18:00 - 19:00
As people with a rare bleeding disorder, many in our community already share a lot in common. You sometimes feel different, left out, or unheard. Having a bleeding disorder has probably caused unique challenges or situations in your life that people outside of our community may struggle to understand. We want to help you speak up and share your story.
On Thursday, June 24 at 6 PM, we will host our first Unheard Stories event. We’ll provide the virtual safe space where community members like you can share your story. Speakers will have roughly 5 to 10 minutes to share any story they’d like. We’ll also work with you beforehand to plan out your story. Sharing these stories can be a powerful experience for both the speaker, and the audience listening to the story.
These stories can help connect members of our community around shared experiences or receiving support for the stories that are shared.
After these stories are told, we will debrief as a group to see where these stories connect to your life and how you can support life up others facing similar challenges.
Register Here

vWD Community Chat
2021-06-24 13:00 - 14:00
On Thursday, June 24 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Building Relationships: Communication & Intimacy
2021-06-22 19:00 - 20:00
Join us on Tuesday, June 22 at 7 PM for this session about intimacy and communication in a relationship.
During this highly interactive session, couples will have an opportunity to build the type of relationship that is fulfilling with your spouse, significant other or intimate partner. We will be exploring how effective communications skills help to create authenticity in your intimate relationships. Further discussion will surround how to navigate intimacy while coping with the impact of the COVID-19 Pandemic.
Come ready to share your experiences in a safe virtual environment. Seasoned social workers, David Rushlow and Karen Boyd, facilitate this engaging and important one hour session.
This is an HFA Partnered Program.
Register Here

Accepting Your Hero's Journey - Week 5
2021-06-21 19:00 - 20:00
This is Week 5 of our Accepting Your Hero’s Journey workshop. Learn more about the workshop here.

Monday, June 21 at 7 PM: Transformation

Register Here

Photography for the Moment - Class 3
2021-06-20 11:00 - 12:00
Photography offers wonderful opportunities for mindfulness in your daily life. The process of increased awareness helps bring tangible benefits like calming the mind and providing relief from stress. Studies have shown that a person’s perspective on themselves and the world can be gradually explored and changed through the process of taking photographs, analyzing them and discussing with others.
We are excited to host a three-part workshop about the healing power of photography and how it can help us better express, understand and overcome personal challenges. Professional photographer, Alex Benyon, will lead us through a three-part workshop to learn about his experience finding healing through photography. See his work here.
This workshop is designed to increase conversations about mental wellness through photography. You will learn new skill and hopefully make some new friends along the way. Attendees are expected to attend all three sessions. During this three week workshop, Alex will share tips to help you create and learn about the following styles of photography:

Sunday, May 23 at 11 AM: Street Photography
Sunday, June 6 at 11 AM: Documentary Photography
Sunday, June 20 at 11 AM: Self Portraits

Participants can use their cell phone camera to take photos, or any other camera that they own. While we would love for you to share the photos that you take with us, this is not required.
Register Here

Moms and Women Community Chat
2021-06-17 18:00 - 19:00
On Thursday, June 17 at 6 PM, we are hosting our next virtual chat for moms and women with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Accepting Your Hero's Journey - Week 4
2021-06-14 19:00 - 20:00
This is Week 4 of our Accepting Your Hero’s Journey workshop. Learn more about the workshop here.

Monday, June 14 at 7 PM: Turning Points and Rewards
Monday, June 21 at 7 PM: Transformation

Register Here

Teens Only Game Night
2021-06-11 19:00 - 20:00
Join us on Friday, June 11 at 7 PM for a Teens Only Game Night alongside the Hemophilia Association of New Jersey (HANJ)!
Each month, we will play a different game chosen by the teens!
This event is intended for teens ages 13 and over.
Register Here

Accepting Your Hero's Journey - Week 3
2021-06-07 19:00 - 20:00
This is Week 3 of our Accepting Your Hero’s Journey workshop. Learn more about the workshop here.

Monday, June 7 at 7 PM: Mentors and Challenges
Monday, June 14 at 7 PM: Turning Points and Rewards
Monday, June 21 at 7 PM: Transformation

Register Here

Photography for the Moment - Class 2
2021-06-06 11:00 - 12:00

Virtual Game Night
2021-06-04 19:00 - 20:00
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
Join us on Friday, June 4 at 7 PM as families from our communities come together for a night full of fun, community, and laughs.
Register Here

vWD Community Chat
2021-05-27 13:00 - 14:00
On Thursday, May 27 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Inhibitor Chats
2021-05-25 18:30 - 19:30
This series of chats are designed to keep our inhibitor families connected and informed about the latest science and research around inhibitors. Patients will share real world experiences of how their current treatment is working and outline areas for future research and development. The setting will be informal, but guest speakers will be invited from time to time to share the latest developments.
This month’s chat will take place on Tuesday, May 25 at 6:30 PM.
Register Here

Accepting Your Hero's Journey - Week 2
2021-05-24 19:00 - 20:00
This is Week 2 of our Accepting Your Hero’s Journey workshop. Learn more about the workshop here.

Monday, May 24 at 7 PM: Hearing Your Call
Monday, June 7 at 7 PM: Mentors and Challenges
Monday, June 14 at 7 PM: Turning Points and Rewards
Monday, June 21 at 7 PM: Transformation

Register Here
