NYC Hemophilia Chapter

Teens Only Game Night
2021-05-14 19:00 - 20:00 UTC | NY
Join us on Friday, May 14 at 7 PM for a Teens Only Game Night alongside the Hemophilia Association of New Jersey (HANJ)!
This month, we will play Talking Points. Public speaking can be intimidating but Talking Points makes it fun! Speakers are given picture slides they’ve never seen before and words to read out loud that they didn’t write. Giving a speech has never been this weird or this funny.
This event is intended for teens ages 13 and over.
Register Here

Blood Brothers Chat
2021-05-11 13:00 - 14:00, 2021-05-04 13:00 - 14:00, 2021-04-27 13:00 - 14:00, 2021-04-20 13:00 - 14:00, 2021-04-13 13:00 - 14:00, 2021-04-06 13:00 - 14:00, 2021-03-30 13:00 - 14:00, 2021-03-23 13:00 - 14:00
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with each other.
Join Here

Finding Your Inner Joy: Episode 11
2021-05-10
Learn More and See The Episode Here

Virtual Game Night
2021-05-07 19:00 - 20:00
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
Join us on Friday, May 7 at 7 PM as families from our communities come together for a night full of fun, community, and laughs.
Register Here

Finding Your Inner Joy: Episode 10
2021-05-03

April Paint Night
2021-04-30 18:30 - 20:00
On Friday, April 30 at 6:30 PM, we are hosting a paint night for families in the New York City bleeding disorders community.
Artist Judy Cohen will lead us over Zoom in painting during the event. All are welcome to participate: whether you consider yourself an artist or have never picked up a paintbrush before!
Attendees will be mailed all necessary supplies prior to the session including a canvas, paint, and paint brushes.
Please register by Friday, April 16. Space is limited to the first 50 individuals to register. This event is limited to people within the bleeding disorders community living in the New York City tri state area.
Register Here

vWD Community Chat
2021-04-28 13:00 - 14:00
On Wednesday, April 28 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Finding Your Inner Joy: Episode 9
2021-04-26

Finding Your Inner Joy: Episode 8
2021-04-19

In The Know Summit
2021-04-17 10:00 - 2021-04-18 12:00
To celebrate World Hemophilia Day, on Saturday, April 17 and Sunday, April 18, we will host our second annual In The Know: Treatment Decision Making Summit. Programming will take place from 10 AM to 12 PM each morning.
This virtual event will provide the bleeding disorders community of NYC with a variety of educational sessions focused on both current and emerging treatments in our community. Tracks will be held for Hemophilia A, Hemophilia B, and vWD. We will also have sessions focusing on emerging therapies like Gene Therapy in addition to panels with patients and doctors, giveaways, and more!
More information and a complete schedule will be provided soon.
Register Here

Moms and Women Community Chat
2021-04-15 18:00 - 19:00
On Thursday, April 15 at 6 PM, we are hosting our next virtual chat for moms and women with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Finding Your Inner Joy: Episode 7
2021-04-12

Teens Only Game Night
2021-04-09 19:00 - 20:30
Join us on Friday, April 9 at 7 PM for a Teens Only Game Night alongside the Hemophilia Association of New Jersey (HANJ)!
Teens from our chapters will come together for the laughs, fun, and competition! This three-round competition will include something for everyone as we play three different games. Prizes will be award!
This event is intended for teens ages 14 and over.
Register Here

Finding Your Inner Joy: Episode 6
2021-04-05

Virtual Game Night
2021-04-02 19:00 - 20:00
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
Join us on Friday, April 2 at 7 PM as families from our communities come together for a night full of fun, community, and laughs.
Register Here

vWD Community Chat
2021-03-31 13:00 - 14:00
On Wednesday, March 31 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Inhibitor Chat
2021-03-30 18:30 - 19:30
This series of chats are designed to keep our inhibitor families connected and informed about the latest science and research around inhibitors. Patients will share real world experiences of how their current treatment is working and outline areas for future research and development. The setting will be informal, but guest speakers will be invited from time to time to share the latest developments.
This month’s chat will take place on Tuesday, March 30 at 6:30 PM.
Register Here

Finding Your Inner Joy: Episode 5
2021-03-29

Moms' Paint & Sip Night
2021-03-26 18:30 - 20:30
On Friday, March 26 at 6:30 PM, we are hosting a paint and sip night for moms within the New York City bleeding disorders community.
Artist Judy Cohen will lead us over Zoom in painting during the event. All are welcome to participate: whether you consider yourself an artist or have never picked up a paintbrush before!
Attendees will be mailed all necessary supplies prior to the session including a canvas, paint, and paint brushes.
Please register by Friday, March 12. Space is limited to the first 25 women to register.
During this difficult time, we have chosen to cover all supply costs for each participant of this event. If your family is able to make a donation to help support this event and our other programs and services, we would greatly appreciate the it. Donations can be placed when registering through Eventbrite on the next page.
Please note: this event is limited to individuals within the bleeding disorders community living in the New York City tri state area.
Register Here

Finding Your Inner Joy: Episode 4
2021-03-22

Virtual READY Teen Retreat
2021-03-21
The Virtual Regional Education Advocacy Development for Youth (READY) Teen Retreat is a free leadership program that teaches teens the ins and outs of advocacy and gives participants the opportunity to use these skills at the State level. This will take place on Saturday, March 20 before taking part in Virtual Albany Days from Sunday, March 21 – Tuesday, March 23.
Teens will learn how to tell their story and will have the opportunity to utilize your advocacy skills when they speak to legislators at Virtual Albany Days. The retreat will be filled with interactive games and sessions.
This program is for ages 13 – 18 and is FREE to all attendees. You must live in New York State and either have a bleeding disorder, be a carrier, or be a family member of someone with a bleeding disorder in order to attend.
***If you register for the READY Program, you do not need to additionally register for Albany Days.***
Regular registration closes on Friday, March 5, 2021. Late registration closes on Friday, March 12, 2021.
If you have any questions, please contact Lindsay Cox, the New York State Bleeding Disorders Coalition’s Coalition Manager, at lindsay.cox@nyhemophilia.org.
Register Here

Virtual Albany Days
2021-03-21 - 2021-03-23
Join the New York State Bleeding Disorders Coalition for Virtual Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and families are encouraged to participate in this legislative day. This will take place from Sunday, March 21 to Tuesday, March 23.
During a pre-meeting Advocacy Skills & Knowledge (ASK) training, attendees become more comfortable with the issues and receive various training tools and resources enabling them to meet their legislators (or representatives) to express their views.
Participants have the opportunity to meet face-to-face with lawmakers and staff who shape statewide healthcare policy, and become more informed on critical issues that affect continued access to quality care and learn effective grassroots advocacy techniques. This productive and informative program offers a unique experience for members and families of the bleeding disorders community to work together for the good of the community.
You must live in New York State and either have a bleeding disorder, be a carrier, or be a family member of someone with a bleeding disorder in order to attend.
Regular registration closes on Friday, March 5, 2021. Late registration closes on Friday, March 12, 2021.
If you have any questions, please contact Lindsay Cox, the New York State Bleeding Disorders Coalition’s Coalition Manager, at lindsay.cox@nyhemophilia.org.
Register Here

Moms and Women Community Chat
2021-03-18 13:00 - 14:00
On Thursday, March 18 at 1 PM, we are hosting our next virtual chat for moms and women with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here
