NYC Hemophilia Chapter

Courageous Conversations
2022-02-24 19:00 - 20:00 (America/New_York)
We’re excited to introduce you to Courageous Conversations: a weekly chat to allow you to open up about your struggles, make connections, and feel supported.
Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain confidential within the group. All community members are invited to participate.
Register Here

Courageous Conversations
2022-02-17 19:00 - 20:00, 2022-02-10 19:00 - 20:00, 2022-02-03 19:00 - 20:00 (America/New_York)
We’re excited to introduce you to Courageous Conversations: a new weekly chat to allow you to open up about your struggles, make connections, and feel supported.
Every Thursday at 7 PM, the group will meet weekly and will be run by Lisa Schoenfeld, a mom in the New York City bleeding disorders community. All conversations will remain confidential within the group. All community members are invited to participate.
Register Here

Virtual Game Night
2022-02-04 19:00 - 20:00 (America/New_York)
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
This event will take place on Friday, February 4 at 7 PM to allow families from our communities to come together for a night full of fun, community, and laughs.

Register Here

En Español: Feliz Año Nuevo!
2022-01-27 19:00 - 20:00 (America/New_York)
Te esperamos a ti y a tus hijos el jueves 27/Enero de 7 a 8pm via zoom.
Te invitamos a participar en una sesión virtual con Guadalupe Hayes-Mota, un mexicano con hemofilia severa que tenía que viajar 8 horas para conseguir su factor en Mexico. Vino a estudiar a EU y se graduó de MIT en Ingeniería y Negocios. Actualmente estudia en la Universidad de Harvard Política Pública.
Nos va a platicar un poco el proceso de cómo aplicó a grandes universidades donde fue aceptado y cómo se puede aplicar por becas. Guadalupe ha trabajado mucho en cómo obtener acceso médico y de tratamiento a personas de bajos recursos. Antes era administrador de clínicas sin cobro al paciente en UCLA Health y es parte de la junta directiva de Save One Life.
Confirma tu asistencia con Nelly Miranda enviando un mensaje de texto al número (551) 243-3066, nelly.miranda@nyhemophilia.org.

Fitness Challenge
2022-01-27
Being physically active is one key to managing a bleeding disorder. It also has many other benefits, like relieving stress, strengthening connections within the community, and improving general quality of life. Physical activity has been crucial during the pandemic: whether that was by going for socially distant walks, hiking locally, or using household objects as weights!

About The Fitness Challenge
To help encourage physical activity within our community, the New England Hemophilia Association (NEHA) and the New York City Hemophilia Chapter (NYCHC) are hosting a new version of our Annual Fitness Challenge.

All community members (age 16+) are invited to participate. This includes bleeding disorder patients, unaffected siblings, and other family members.
All physical activity levels are encouraged to get involved: whether you are looking for motivation to get off the couch, inspiration to increase your current work out level, or competition to set a new personal record.
This challenge is a fun way to become a healthier, happier you! While your activity level is counted in steps per day, the creative platform allows you to track many different activities, like running, walking, biking, lifting weights, swimming, or even cleaning the house.

Registration

Applications will be accepted until Friday, January 14.
Accepted participants will be notified on Tuesday, January 18.
The Fitness Challenge officially begins on Thursday, January 27, and will run for two months.
Each accepted participant will receive a sleek Max Buzz Activity Tracker to help record your activity. You’ll also be able to keep this after the challenge ends to help you track your activity on your own. This will be free to you and is provided by NYCHC and NEHA.

Register Here

Women's Paint Night
2022-01-21 19:30 - 21:00 (America/New_York)
On Friday, January 21 at 7:30 PM, we are hosting a paint night for women within the New York City bleeding disorders community.
Artist Judy Cohen will lead us over Zoom in painting during the event. All are welcome to participate: whether you consider yourself an artist or have never picked up a paintbrush before!
Attendees will be mailed all necessary supplies prior to the session including a canvas, paint, and paint brushes.
Please register by Friday, January 14 at 5 PM. Space is limited to the first 25 women to register.
During this difficult time, we have chosen to cover all supply costs for each participant of this event. If your family is able to make a donation to help support this event and our other programs and services, we would greatly appreciate the it. Donations can be placed when registering through Eventbrite on the next page.
Please note: this event is limited to individuals within the bleeding disorders community living in the New York City tri state area.
Register Here

From Clinic to Kitchen Table: Infusing Kids at Home
2022-01-11 19:00 - 20:00 (America/New_York)
On Tuesday, January 11 at 7 PM, we’re hosting a webinar focusing on helping families care for their bleeding disorder at home. During this session, our speaker will highlight the diversity of home infusion experiences and will share strategies and insights to help families make the most of each infusion.

This session is supported by Sanofi Genzyme.

Register Here

Virtual Game Night
2022-01-07 19:00 - 20:00 (America/New_York)
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
This event will take place on Friday, January 7 at 7 PM to allow families from our communities to come together for a night full of fun, community, and laughs.

Register Here

Blood Brothers Chat
2021-12-21 13:00 - 14:00, 2021-12-14 13:00 - 14:00, 2021-12-07 13:00 - 14:00, 2021-11-30 13:00 - 14:00, 2021-11-23 13:00 - 14:00, 2021-11-16 13:00 - 14:00, 2021-11-09 13:00 - 14:00, 2021-11-02 13:00 - 14:00 UTC and 4 more dates
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with each other.
Join Here

Teens Only Game Night
2021-12-10 19:00 - 20:00 UTC
Join us on Friday, December 10 at 7 PM for a Teens Only Game Night!
Each month, we will play a different game chosen by the teens!
This event is intended for teens ages 13 and over.
Register Here

Virtual Game Night
2021-12-03 19:00 - 20:00 UTC
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
Join us on Friday, December 3 at 7 PM as families from our communities come together for a night full of fun, community, and laughs.
Register Here

Education Day
2021-11-21 10:00 - 13:30 UTC
Join us on Sunday, November 21, 2021 from 10 AM to 1:30 PM for our Virtual Education Day!
This annual event is our largest event of the year and is intended to bring the entire Greater NYC bleeding disorder community together in one virtual setting to connect, learn, and support one another.
Even in a virtual setting, this allows our community members to build deep relationships and to learn from quality and meaningful educational sessions about bleeding disorder management and other relevant topics.
A final agenda and the Zoom link to join the event will be shared with registered attendees before the event begins. Some possible sessions are:

Ask the Experts Panel with NYC area Hematologists
Improving Transition to Adulthood
Understanding PTSD in the community
“Things I wish my mom would have known”
Use of Ultrasounds for Tracking Joint Health
The sibling experience
Teen Virtual Escape Room
Courageous Conversations
Painting for Kids
Improving life with VWD

Register Here

Teens Only Game Night
2021-11-12 19:00 - 20:00 UTC
Join us on Friday, November 12 at 7 PM for a Teens Only Game Night!
Each month, we will play a different game chosen by the teens!
This event is intended for teens ages 13 and over.
Register Here

Virtual Game Night
2021-11-05 19:00 - 20:00 UTC
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
Join us on Friday, November 5 at 7 PM as families from our communities come together for a night full of fun, community, and laughs.
Register Here

Fiesta Latina Dia de Muertos
2021-10-28 18:00 - 19:30 (America/New_York)
El Chapter de la Hemofilia de NY (NYCHC) te invita a participar en nuestro próximo evento para la comunidad latina este jueves 28 de Octubre de 6 a 7:30pm donde cocinaremos juntos de forma virtual (vía zoom) celebrando así Halloween y el Día de los Muertos.

Los ingredientes serán enviados por el Chapter a sus casas si es que vives en el estado de NY y NJ, por lo que les pedimos envíen un email a Nelly Miranda: nelly.miranda@nyhemophilia.org o envía un mensaje de texto a Nelly Miranda al número (551) 243-3066 si estas interesado en participar antes del dia 10/23/21.

Los niños decoraran cupcakes al final del evento y rifaremos 2 tarjetas de regalo de Amazon por $25 entre las familias que se disfracen para este evento.

Esperamos contar con su participación.

Este evento se lleva a cabo gracias al patrocinio de Pfizer.

Unite for Bleeding Disorders Walk
2021-10-10
Our 2021 Unite for Bleeding Disorders Walk will be held on Sunday, October 10.
Learn More Here

Teens Only Game Night
2021-10-08 19:00 - 20:00 UTC
Join us on Friday, October 8 at 7 PM for a Teens Only Game Night!
Each month, we will play a different game chosen by the teens!
This event is intended for teens ages 13 and over.
Register Here
