NYC Hemophilia Chapter

Teens Only Game Night
2021-06-11 19:00 - 20:00 UTC
Join us on Friday, June 11 at 7 PM for a Teens Only Game Night alongside the Hemophilia Association of New Jersey (HANJ)!
Each month, we will play a different game chosen by the teens!
This event is intended for teens ages 13 and over.
Register Here

Blood Brothers Chat
2021-06-08 13:00 - 14:00, 2021-06-01 13:00 - 14:00, 2021-05-25 13:00 - 14:00, 2021-05-18 13:00 - 14:00, 2021-05-11 13:00 - 14:00, 2021-05-04 13:00 - 14:00, 2021-04-27 13:00 - 14:00, 2021-04-20 13:00 - 14:00 and 1 more date
Every Tuesday at 1 PM, we host a virtual chat for men with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with each other.
Join Here

Accepting Your Hero's Journey - Week 3
2021-06-07 19:00 - 20:00
This is Week 3 of our Accepting Your Hero’s Journey workshop. Learn more about the workshop here.

Monday, June 7 at 7 PM: Mentors and Challenges
Monday, June 14 at 7 PM: Turning Points and Rewards
Monday, June 21 at 7 PM: Transformation

Register Here

Photography for the Moment - Class 2
2021-06-06 11:00 - 12:00
Photography offers wonderful opportunities for mindfulness in your daily life. The process of increased awareness helps bring tangible benefits like calming the mind and providing relief from stress. Studies have shown that a person’s perspective on themselves and the world can be gradually explored and changed through the process of taking photographs, analyzing them and discussing with others.
We are excited to host a three-part workshop about the healing power of photography and how it can help us better express, understand and overcome personal challenges. Professional photographer, Alex Benyon, will lead us through a three-part workshop to learn about his experience finding healing through photography. See his work here.
This workshop is designed to increase conversations about mental wellness through photography. You will learn new skill and hopefully make some new friends along the way. Attendees are expected to attend all three sessions. During this three week workshop, Alex will share tips to help you create and learn about the following styles of photography:

Sunday, May 23 at 11 AM: Street Photography
Sunday, June 6 at 11 AM: Documentary Photography
Sunday, June 20 at 11 AM: Self Portraits

Participants can use their cell phone camera to take photos, or any other camera that they own. While we would love for you to share the photos that you take with us, this is not required.
Register Here

Virtual Game Night
2021-06-04 19:00 - 20:00
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
Join us on Friday, June 4 at 7 PM as families from our communities come together for a night full of fun, community, and laughs.
Register Here

vWD Community Chat
2021-05-27 13:00 - 14:00
On Thursday, May 27 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Inhibitor Chats
2021-05-25 18:30 - 19:30
This series of chats are designed to keep our inhibitor families connected and informed about the latest science and research around inhibitors. Patients will share real world experiences of how their current treatment is working and outline areas for future research and development. The setting will be informal, but guest speakers will be invited from time to time to share the latest developments.
This month’s chat will take place on Tuesday, May 25 at 6:30 PM.
Register Here

Accepting Your Hero's Journey - Week 2
2021-05-24 19:00 - 20:00
This is Week 2 of our Accepting Your Hero’s Journey workshop. Learn more about the workshop here.

Monday, May 24 at 7 PM: Hearing Your Call
Monday, June 7 at 7 PM: Mentors and Challenges
Monday, June 14 at 7 PM: Turning Points and Rewards
Monday, June 21 at 7 PM: Transformation

Register Here

Photography for the Moment - Class 1
2021-05-23 11:00 - 12:00

Moms and Women Community Chat
2021-05-20 13:00 - 14:00
On Thursday, May 20 at 1 PM, we are hosting our next virtual chat for moms and women with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Accepting Your Hero's Journey - Week 1
2021-05-17 19:00 - 20:00
Join us on Monday, May 17 at 7 PM to kick off our month-long mental health series: “Accepting Your Hero’s Journey.”
What does myth have to do with well-being and mental health? More than one might imagine. The Hero’s Journey® was described by Joseph Campbell as a way to understand the similarities he noticed in folklore and mythologies throughout history and worldwide. By traversing the stages of the Journey (Departure /Separation, On the Road/Initiation, Return/Transformation) this workshop aims to explore the Hero’s Journey® as a way for individuals to conceptualize life experiences that are empowering, affirming, humanizing and inspiring. Bring your curiosity and openness to this workshop and be ready to meet your Inner Hero!
The goal of this session is to create opportunities for mental health discussions in our community with an innovative framework around personal legends. The power of the workshop is to reframe obstacles as opportunity and deepen connections around shared struggle. By recasting our current situations as moments in rich narratives, we can better see potential and possibility while building support around a shared language and experience.
Attendees will receive a workbook to complete activities on their own, followed by discussions with our group. These events are intended for people ages 16 and older.
Following the introductory event on May 17, you will have the opportunity to attend four additional sessions. We invite you to attend as many of these sessions as you wish.

Monday, May 24 at 7 PM: Hearing Your Call
Monday, June 7 at 7 PM: Mentors and Challenges
Monday, June 14 at 7 PM: Turning Points and Rewards
Monday, June 21 at 7 PM: Transformation

Register Here

Finding Your Inner Joy: Episode 12
2021-05-17
Learn More and See The Episode Here

Teens Only Game Night
2021-05-14 19:00 - 20:00
Join us on Friday, May 14 at 7 PM for a Teens Only Game Night alongside the Hemophilia Association of New Jersey (HANJ)!
This month, we will play Talking Points. Public speaking can be intimidating but Talking Points makes it fun! Speakers are given picture slides they’ve never seen before and words to read out loud that they didn’t write. Giving a speech has never been this weird or this funny.
This event is intended for teens ages 13 and over.
Register Here

Finding Your Inner Joy: Episode 11
2021-05-10

Virtual Game Night
2021-05-07 19:00 - 20:00
The New York City Hemophilia Chapter (NYCHC) and the New England Hemophilia Association (NEHA) are excited to host a monthly game night on the first Friday of every month!
Join us on Friday, May 7 at 7 PM as families from our communities come together for a night full of fun, community, and laughs.
Register Here

Finding Your Inner Joy: Episode 10
2021-05-03

April Paint Night
2021-04-30 18:30 - 20:00
On Friday, April 30 at 6:30 PM, we are hosting a paint night for families in the New York City bleeding disorders community.
Artist Judy Cohen will lead us over Zoom in painting during the event. All are welcome to participate: whether you consider yourself an artist or have never picked up a paintbrush before!
Attendees will be mailed all necessary supplies prior to the session including a canvas, paint, and paint brushes.
Please register by Friday, April 16. Space is limited to the first 50 individuals to register. This event is limited to people within the bleeding disorders community living in the New York City tri state area.
Register Here

vWD Community Chat
2021-04-28 13:00 - 14:00
On Wednesday, April 28 at 1 PM, we are hosting our next virtual chat for community members with vWD.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here

Finding Your Inner Joy: Episode 9
2021-04-26

Finding Your Inner Joy: Episode 8
2021-04-19

In The Know Summit
2021-04-17 10:00 - 2021-04-18 12:00
To celebrate World Hemophilia Day, on Saturday, April 17 and Sunday, April 18, we will host our second annual In The Know: Treatment Decision Making Summit. Programming will take place from 10 AM to 12 PM each morning.
This virtual event will provide the bleeding disorders community of NYC with a variety of educational sessions focused on both current and emerging treatments in our community. Tracks will be held for Hemophilia A, Hemophilia B, and vWD. We will also have sessions focusing on emerging therapies like Gene Therapy in addition to panels with patients and doctors, giveaways, and more!
More information and a complete schedule will be provided soon.
Register Here

Moms and Women Community Chat
2021-04-15 18:00 - 19:00
On Thursday, April 15 at 6 PM, we are hosting our next virtual chat for moms and women with a bleeding disorder.
Join us as we come together as a community to share our experiences and connect with others.
Join The Chat Here
