HFA Symposium
2025-03-27 - 2025-03-30 | Sheraton San Diego Hotel & Marina in San Diego, CA, 1380 Harbor Island Drive, San Diego, CA, 92101, United States
The Hemophilia Federation of America (HFA) is heading to Indianapolis for their annual Symposium in sunny San Diego from Thursday, March 27 to Sunday, March 30 at the Sheraton San Diego Hotel & Marina in San Diego, CA.
They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with the new and old friends from around the country. A limited number of travel scholarships are provided by HFA. Learn more about their scholarship offerings by clicking here.
Learn More and Register

In The Know Treatment Decision Making Summit
2025-04-06 10:00 - 14:30 (America/New_York) | NYCHC Office (WeWork), 205 W. 37th St., New York, NY, 10018, United States
Our 5th Annual In The Know Treatment Decision Making Summit will be held on Sunday, April 6 from 10 AM to 2:30 PM at the NYCHC Office (enter at 205 W. 37th St., New York, NY 10018).
With treatment options changing rapidly for our community, and some newly-approved options now on the market, it is extremely important for patients and families to stay informed of the latest options available to them. This Summit will allow bleeding disorder patients to learn more about specific products or treatment options in order to help our community make informed decisions regarding their choice of care.
Learn more about this event by clicking here.
Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

Hablemos de salud mental
2025-04-22 19:00 - 20:00
El Chapter de la Hemofilia de NY (NYCHC) está organizando una sesión educativa en español para la comunidad latina con un desorden de coagulación para el martes 22 de Abril a las 7pm vía zoom.Esta sesión es presentada por Novo Nordisk.
Después de la presentación, recibirán una tarjeta de regalo de Amazon por $25 por familia.
Regístrate antes del 18 de Abril con el siguiente link.
Regístrate aqui
Para más información comunícate con Nelly Miranda al número 551-243-3066 o enviando un email a: nelly.miranda@nyhemophilia.org.

Educational Dinner & Elevated Views at SUMMIT One Vanderbilt
2025-04-24 16:30 - 19:00 | SUMMIT One Vanderbilt, 45 E 42nd Street, New York, NY, 10017, United States
Join us on Thursday, April 24, at 4:30 PM for an inspiring evening of learning, networking, and breathtaking high-rise views!
Our evening will start at SUMMIT One Vanderbilt (45 E 42nd St, New York, NY 10017). SUMMIT offers amazing skyline views and is located right next to Grand Central Station. After seeing the incredible views, we will walk as a group to 450 Lexington Ave for dinner and an educational presentation. Dinner and SUMMIT admission will be covered for all attendees.
Registration

Please note: Space is limited to the first 15 people who register. We are limiting registration to 3 people per family, to allow more families to participate.
The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

Moving Forward: Joint Health and Pain Management
2025-04-27 11:00 - 15:00 | NYCHC Office (WeWork), 205 W. 37th St., New York, NY, 10018, United States
On Sunday, April 27 at 11 AM, we are hosting a session on Joint Health and Pain Management at the NYCHC Office (enter at 205 West 37th St., New York, NY 10018). This session will provide valuable insights into the T.H.R.I.V.E. campaign and explore various pain management techniques including medical marijuana, pain science, ultrasound technology, and hypnosis. See our agenda here.
This event is part of our “Thriving With Time” series. This initiative is dedicated to empowering aging adults living with bleeding disorders. These events offer an intimate and supportive space for individuals to connect, learn, and explore topics specifically tailored to their unique experiences and needs.
Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

A Day At The Zoo
2025-05-04 11:30 - 17:00 | Bronx Zoo, 2300 Southern Boulevard, Bronx, New York, 10460
Bring your crew to the Zoo for a roaring good time! Join us for a fun day at the Bronx Zoo on Sunday, May 4, beginning at 11:30 AM. This event will allow families to come together to meet one another and connect in a relaxed and laid-back environment.
Agenda Overview:

11:30 AM: Arrival & Check-In | Lot C Entrance (2300 Southern Boulevard)

Please go immediately to the Dancing Crane Pavilion once you check in.

11:30 AM: Community Meet & Mingle | Dancing Crane Pavilion
12 PM: NYCHC Welcome Session and Presentation | Dancing Crane Pavilion

Wristbands for lunch will be passed out at the end of the Welcome Session.
You must be present at 12 PM to receive a wristband for lunch.

Lunch | Please eat inside the Dancing Crane Pavilion
Your ticket allows you to explore the Zoo on your own for the remainder of the day. You can leave at any time. The Zoo closes at 5 PM.
The event will happen rain or shine.

Registration Information

Space is limited.
Registration will end on Wednesday, April 23.
Each registered attendee will receive free admission to the Zoo and a lunch bracelet at no cost.

Please note: this event is for people in your immediate household. Please do not invite extended family members or friends, as resources are limited.
Register Here

Mother’s Day Dinner & Walk Fundraising Event
2025-05-09 17:30 - 18:30 | NYCHC Office (WeWork), 205 W. 37th St., New York, NY, 10018, United States
On Friday, May 9 at 5:30 PM, we are hosting a Mother’s Day Dinner & Walk Fundraising Event at the NYCHC Office.
Join us for food and fundraising while schmoozing with other hemophilia Moms, led by Walk Chair and Mom, Shari Bender.
Suggested donation: $20 (pay upon arrival).
Register Here

Aprendiendo juntos
2025-05-22 18:00 - 19:00
El Chapter de la Hemofilia de NY (NYCHC) está organizando una sesión educativa en español para la comunidad latina con desordenes de coagulación para el jueves 22 de Mayo a las 6pm vía zoom. Esta sesión es presentada por Novo Nordisk.
Después de la presentación, recibirán un voucher por $25 por familia.
Regístrate antes del 20 de Mayo con el siguiente link.
Regístrate aquí
Para más información comunícate con Nelly Miranda al número 551-243-3066 o enviando un email a: nelly.miranda@nyhemophilia.org.

20th Annual Unite Walk
2025-06-01 10:00 - 13:00 | Flushing Meadows Corona Park, Queens, NY, 11354, United States
This year, the New York City Hemophilia Chapter (NYCHC) is hosting their 20th Anniversary Unite for Bleeding Disorders Walk! Unite with us on Sunday, June 1 at Flushing Meadows Park in Queens!
This event is a powerful celebration of our community and our largest fundraiser of the year. Every step we take raises crucial funds and awareness for bleeding disorders. All donations directly support our services, advocacy, education, and research—helping us improve lives today while working toward a better tomorrow. Walk with us, support the cause, and help shape the future for those living with bleeding disorders.
Learn More Here

Community Connection: Porch Stomp on Governors Island
2025-06-21 12:00 - 15:00 | Governor’s Island, Hay Road, Brooklyn, NY, 11231, United States
The New York City area has so many free events to offer! This summer, we’re planning numerous get togethers at a variety of events where individuals and families in our community can come together, enjoy a fun and free activity, and connect with others in our community.

On Saturday, June 21 at 12 PM, we are coming together for the Porch Stomp Folk Music Festival on Governors Island—an uplifting, free celebration of folk music, creativity, and connection.
Join us to enjoy incredible live music, explore the charming porches and green spaces of the island, and connect more deeply with one another. Whether you’re a longtime folk fan or just looking for a joyful way to spend a Saturday, we’d love to see you there!
Learn more about this public event by clicking here.
Register Here

Community Connection: Muppet Babies Take MoMI
2025-06-22 12:00 - 15:00 | Museum of the Moving Image, 36-01 35th Avenue, Astoria, New York, 11106
The New York City area has so many free events to offer! This summer, we’re planning numerous get togethers at a variety of events where individuals and families in our community can come together, enjoy a fun and free activity, and connect with others in our community.

On Sunday, June 22 at 12 PM, we are coming together for an afternoon at the Museum of the Moving Image (MoMI). Museum admission is free.
While at the museum, attendees can enjoy “Muppet Babies Take MoMI” featuring fun and educational activities for families, anchored by the exhibition of newly restored puppets, including Muppet Babies puppets of Kermit the Frog, Baby Gonzo, and Baby Rowlf, in the Museum lobby. Visitors are invited to take photos with the puppets, participate in hands-on workshops, and more.
Learn more about this public event by clicking here.
Register Here

Infusion Training & Lunch
2025-06-29 11:30 - 14:00 | NYCHC Office (WeWork), 205 W. 37th St., New York, NY, 10018, United States
Join us on Sunday, June 29, from 11:30 AM to 2 PM for our Infusion Training and Lunch at the NYCHC Office (entrance is located at 205 W. 37th St., New York, NY 10018).
This small gathering will feature hands-on infusion and injection instruction and guidance from trained medical staff.

Patients of all ages and skill levels are invited to join us, whether you would like to learn more about the infusion process or wish to perfect your skills.
Parents, guardians and other caretakers are also invited to attend to learn how to infuse on someone else (i.e. a child).
The medial team will provide infusion techniques for peripheral IV, port access, and subcutaneous injections.
Please bring your own medication and supplies if you would like to infuse while at the training.

Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

Tee Up For A Cure: Hemophilia Charity Golf Event
2025-07-14 10:00 - 20:00 | Knollwood Country Club, 200 Knollwood Road, Elmsford, NY, 10523, United States
Join us on Monday, July 14 for a great day on a premier golf course. After the round, the fun continues with an open bar, dinner, live entertainment, raffles, auction and much more!
This charity event provides crucial funding to support NYCHC’s mission to find better treatments and cures for bleeding disorders and to prevent the complications through education, awareness, advocacy and research.
Learn More Here

Community Connection: Family Movie Day
2025-07-27 12:30 - 16:00 | The Picture House – Pelham, 175 Wolfs Ln, Pelham, NY, 10803, United States
The New York City area has so many free events to offer! This summer, we’re planning numerous get togethers at a variety of events where individuals and families in our community can come together, enjoy a fun and free activity, and connect with others in our community.

On Sunday, July 27 at 12:30 PM, we are coming together for a Family Movie Day at The Picture House in Pelham, NY.
Bring the whole family for a fun-filled afternoon featuring a special screening of the brand-new Smurfs movie. Admission is free—just come ready to enjoy the show and make some memories together!
Register Here

TORCH Teen Retreat
2025-08-01 14:30 - 2025-08-03 19:30 | PEEC, 538 Emery Rd, Dingmans Ferry, PA, 18328, United States
Our TORCH Teen Retreat will be held from Friday, August 1 to Sunday, August 3 at the Pocono Environmental Education Center (PEEC), a short 2 hour drive from NYC in the Delaware Water Gap region.
TORCH (Teen Opportunities and Resources for Community Health) is NYCHC’s teen program for teens ages 13-18 within the Greater NYC bleeding disorders community. The goal of this retreat is to foster independence, self-advocacy, support, and accountability among teens, while also building future leaders in the bleeding disorders community.
Retreat Details

Activities: Hiking, ropes course, orienteering, team building and leadership training, games, canoeing, campfires & s’mores and more!
Meals: All meals, snacks and beverages will be provided from dinner on Friday evening to lunch on Sunday.
Sleeping Arrangements: Teens will share cabins based on their gender.
Packing List: A full packing list will be shared with registered attendees before the event begins.
Supervision: Adults present include NYCHC staff, a nurse, young adult mentors, and chaperones in addition to PEEC’s onsite staff.

Transportation
We’ll be providing free round-trip transportation to and from PEEC.

Bus will depart NYC on Friday, August 15 at 3 PM.
Arrive at 2:30 PM.
Location: Secaucus Junction, North Rd, Secaucus, NJ 07094.
On Sunday, the bus will drop teens off at the same location, between 7:00 PM and 7:30 PM (depending on traffic).

Registration

This program is free, however, spaces are limited.
This event is open only to teenagers with bleeding disorders (ages 13 -18) and their siblings living in their immediate household from the New York City tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.
Registration will end on Friday, July 25.

Register Here

Meet Our Board of Directors
2025-08-14 17:00 - 18:00 | NYCHC Office (WeWork), 205 W. 37th St., New York, NY, 10018, United States
Join us on Thursday, August 14 from 5 PM to 6 PM at the NYCHC Office (entrance located at 205 W 37th St.) for an informal open community gathering with the NYCHC Board of Directors and our Advisory Board members.
This is your chance to connect, share your ideas, and help shape the future of our chapter while enjoying light refreshments, wine, and non-alcoholic beverages. Come meet the members of our Board, learn more about our work and our chapter’s history, and let us know how we can better support our community.
RSVP Here

Educational Webinar: Treatment Option for Hemophilia A or B with Inhibitors
2025-08-18 19:00 - 20:00
On Monday, August 18 at 7 PM, we are hosting an interactive educational webinar with Novo Nordisk to help you learn more about their new subcutaneous prophylactic treatment option that comes in a prefilled injection pen.
This treatment is available for adults and adolescents who have hemophilia B or A with inhibitors! The presentation will provide an overview of a product, as well as its clinical studies, safety, efficacy, and mechanism of action.
Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

NBDF's 77th Annual Bleeding Disorders Conference (BDC)
2025-08-21 - 2025-08-23 | Gaylord Rockies Resort & Convention Center, 6700 N Gaylord Rockies Blvd, Aurora, CO, 80019, United States
The National Bleeding Disorders Foundation’s 77th Annual Bleeding Disorders Conference (BDC) will take place from August 21 – August 23 near Denver, CO! This event brings the national bleeding disorders community together for educational sessions, valuable networking and social connection opportunities, exciting exhibits and so much more.
NBDF will be accepting travel scholarship applications to attend BDC from January 19, 2024 to February 23, 2024. Learn more about the scholarship.
Learn More & Register for BDC

Educational Dinner: Treatment Option for Hemophilia A
2025-08-27 18:00 - 20:30 | Rosa Mexicano, 9 East 18th St, New York, NY, 10003, United States
Join us on Wednesday, August 27 at 6 PM for an educational dinner at Rosa Mexicano (9 East 18th Street, New York, NY 10003).
Attendees will learn about Altuviiio: a product to treat hemophilia A. This event is sponsored by Sanofi and presented by Tyshawn Constantine, in English.
Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

Cena y sesión educativa en Español
2025-08-27 18:00 - 20:30 | Rosa Mexicano, 9 East 18th St, New York, NY, 10003, United States
Invitamos a la comunidad con desórdenes de coagulación a disfrutar de una cena y una sesión educativa en Español el miércoles 27 de Agosto en el restaurante ‘Rosa Mexicano (9 East 18th St, NY NY) de las 6:00 pm a las 8:30 pm.
El tema de la sesión será: Altuviiio. Este evento es patrocinado por Sanofi y presentado por Alexandra Abreu.
Regístrate aquí
El espacio es limitado, regístrate antes del 22 de agosto.
Para cualquier duda, comunícate con Nelly Miranda por teléfono al número (551) 243-3066 o envía un email a: nelly.miranda@nyhemophilia.org.

Conferencia Latina ‘Unidos por la Sangre’ 2025
2025-10-11 11:00 - 2025-10-12 13:30 | DoubleTree by Hilton, 2117 Route 4 Eastbound, Fort Lee, 07024, United States
Invitamos a la Comunidad Latina con un desorden de coagulación a celebrar juntos el mes de la Hispanidad con NYCHC & HANJ.

Fecha: Sábado 11 y Domingo 12 de Octubre 2025
Lugar: Hotel DoubleTree by Hilton (2117 Route 4 Eastbound, Fort Lee, NJ 07024)

Tendremos un evento lleno de muchas actividades para niños, adolescentes y adultos donde aprenderemos y nos divertiremos juntos. Las sesiones de adultos serán en español y las de los niños y adolescentes en inglés (pero contamos con asistencia en español).
Contaremos con habitaciones en el hotel para que descansen la noche del sábado, alimentos incluidos y transporte (en caso de necesitarlo). Este evento es gratuito y esperamos verlos ahí!
Regístrese aquí
Para más información envía un correo electrónico Nelly (nelly.miranda@nyhemophilia.org) o Neidy (nolarte@hanj.org) por si necesitas ayuda para registrarte.

Education Day
2025-11-23 10:00 - 14:00 | New York Hall of Science, 47-01 111th Street, Corona, 11368, United States
Join us for Education Day on Sunday, November 23 from 10 AM to 2 PM at the New York Hall of Science in Queens!
Education Day is our largest event of the year–packed full of learning, connection and fun for attendees of all ages. This year, attendees will receive tickets to attend the New York Hall of Science after the event concludes!
Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

Virtual Educational Presentation & Gingerbread House Making Session
2025-12-02 19:00 - 20:00
On Tuesday, December 2 at 7 PM, we are hosting a virtual educational presentation in English with Sanofi. This session will help you learn more about ALTUVIIIO–Sanofi’s once-weekly treatment for hemophilia A.
After the presentation, community members will decorate gingerbread houses. Please register by November 17 so we can send you a box via mail with the materials to decorate your gingerbread house. One box will be sent per family.
Registration

The event is free for our community members. This event is open to anyone with a bleeding disorder and their family, living in their immediate household, from the NYC tri state area.
Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

Register Here

Disclaimer
This event is a paid advertisement and does not constitute an endorsement or recommendation from the New York City Hemophilia Chapter (NYCHC). The information presented during this event is provided for your general information only. NYCHC does not give medical advice or engage in the practice of medicine. NYCHC, under no circumstances, recommends particular treatment options for specific individuals, and, in all cases, recommends that you consult your physician or local treatment center before pursuing any course of treatment.

En Español: Presentacion Educativa Virtual y Decoración de Casas de Jengibre
2025-12-03 19:00 - 20:00
El miércoles 3 de diciembre a las 7 PM, the New England Hemophilia Association (NEHA) y the New York City Hemophilia Chapter (NYCHC) organizarán una presentación educativa de forma virtual junto a Sanofi en español. Esta sesión te ayudará a conocer más sobre el tratamiento semanal de ALTUVIIIO–Sanofi para el tratamiento de hemofilia A.
Después de la presentación, la comunidad decorará casas de jengibre. Les pedimos que se registren antes del 17 de Noviembre para que la Asociación pueda enviarles por correo una caja con los materiales para decorar la casa de jengibre. Se enviará una por familia.
Regístrate Aquí

Aviso
Este evento es una publicidad pagada y no constituye una recomendación por parte de New England Hemophilia Association (NEHA). La información presentada durante este evento es solo para fines informativos generales. NEHA bajo ninguna circunstancia recomienda tratamientos específicos para individuos y siempre recomienda consultar con tu médico o centro de tratamiento local antes de seguir cualquier tipo de tratamiento.

FAB Women's Retreat
2026-02-06 16:00 - 2026-02-07 15:00 | Courtyard by Marriott, 3 Pembroke Pl, Edgewater, NJ, 07020, United States
The New York City Hemophilia Chapter (NYCHC) is partnering with the Hemophilia Association of New Jersey (HANJ) to host our 3rd Annual Females and Bleeding (FAB) Women’s Retreat! Join us for an overnight stay at the Courtyard by Marriott in Edgewater, NJ from Friday, February 6 to Saturday, February 7 for a weekend of educational sessions, social activities, health and wellness workshops, breakout sessions, and much more! The focus will be education, personal growth, and networking.
Agenda Overview

Start: Friday at 4 PM.
End: Saturday at 3 PM.
Agenda: Will be shared with registered attendees one week before the event begins.
Hotel: Hotel rooms will be provided for Friday evening at no cost to attendees.
Meals: All meals during the retreat are included.

Registration

This retreat is free to attend.
Space is limited to only 30 women who meet all three of the following qualifications:

Live within the Hemophilia Association of New Jersey or the New York City Hemophilia Chapter geographic coverage areas.
Are at least age 18 or older.
Are affected by a bleeding disorder in at least one of the following ways:

is diagnosed with a bleeding disorder, or,
is a carrier of a bleeding disorder, or,
is the spouse of someone with a bleeding disorder, or,
is a parent or legal guardian of someone with a bleeding disorder.

Cancellation Policy: By registering for this event, you agree to the following cancellation policy. If you cancel your registration within one week of the event or do not show up for the event, you will be charged a $25 per person fee. If you are experiencing a personal or medical emergency, please contact us to discuss.

More Information Will Be Shared Soon
